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    • CommentAuthorAdmin
    • CommentTimeJun 27th 2009
     
    Jeanette,

    Welcome to my website.

    I've just noticed a few posts from you. Do you really live in Holland? If so, I think you win as the member from the farthest distance. I have received e-mails from Brazil, England, New Zealand, and Australia, but only someone from England has posted on the boards. Tell us about yourself and your husband when you feel that you would like to share that information.

    You have come to a place of comfort for spouses who are trying to cope with the Alzheimer's/dementia of their husband/wife. The issues we face in dealing with a spouse with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse.

    The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. I recommend starting with "Newly Diagnosed/New Member" and "Understanding the Dementia Experience". There are 3 sections for EOAD members - two of which focus on the young teens whose parents have EOAD (early onset AD). There is a great new section on informative videos. Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. Log onto the home page daily for new blogs; news updates; important information.

    I hope you will visit often and get the support and information you are looking for.

    Currently, the message boards and all of the resources can be accessed for free, but due to the high cost of maintaining the website, anyone who is able to make a payment in any amount to help defray the costs may do so by clicking on the "sticky topic" - Payments to this website. Any purchases made through the Amazon links and Zazzle Marketplace also help keep this site up and running. Thank you.

    joang
    • CommentAuthorKadee*
    • CommentTimeJun 27th 2009
     
    Hi & Welcome Jeannette, I am sorry for your need to join us, however, I am sure you will find comfort here. This group has been a godsend to me. My husband is 58 years old with FTD. Again, Welcome.
    •  
      CommentAuthorSusan L*
    • CommentTimeJun 27th 2009
     
    Welcome to our family Jeannette! Sorry you have to be here, but you'll soon find youself feeling like you've always been a part of our fold. I don't know where I'd be without the best friends in the world. I'm 53 and my husband is 62 with FTD, stage 4/5.
    Chat again soon. Susan
  1.  
    Good morning susan-hope you're feeling better
    • CommentAuthordivvi*
    • CommentTimeJun 27th 2009
     
    Welcome Jeanetteinholland! from another post you did say you live in holland. this is a really nice caring group of AD spouses who share a wealth of knowledge, skills, and cry on shoulders, if ever you need support. good to see some international members posting! joans arms are getting longer all the time! divvi
    • CommentAuthormarygail*
    • CommentTimeJun 27th 2009
     
    welcome Jeanette,this is the best place and I can`t express how happy I was to find it, I`m sorry you have the need for it but glad you found us,I`m 63 and dh is 70 today he has alz.
  2.  
    Welcome, Jeanette! This website is "home" for a lot of us who check in daily to be with our "family" who truly understand what we are going through and to give advice, comfort and a hug when needed. (((HUG)))
    • CommentAuthorCharlotte
    • CommentTimeJun 27th 2009
     
    Jeanette - welcome. Sorry you are here. It will be interesting to find out how AD and other dementias are treated and looked at in Holland. My husband was diagnosed with aMCI but has now progress to EOAD according to the neuropsych testing he just had done. He is 61.

    Be sure to post in 'age of caregiver' thread.
    • CommentAuthorWeejun*
    • CommentTimeJun 27th 2009
     
    Welcome JeanetteinHolland, You will find much support and caring friends on this site. Check out the abbreviations on the home page if needed. My DH is 73 with FTD; I'll be 61 in August and am his full-time caregiver.
    • CommentAuthornatsmom*
    • CommentTimeJun 27th 2009
     
    Welcome to you, Jeanette ~ Do hope you will be encouraged and nutured through this time in your life by all the wonderful friends you are sure to make here on this site...It has been good for me for many months now. Glad you are here, but sorry for your circumstances.
  3.  
    Welcome aboard, Jeanette. So very sorry you have to be here but it's a wonderful, friendly, caring group who gather here and will now be your friends.
    •  
      CommentAuthordeb112958
    • CommentTimeJun 27th 2009
     
    Welcome Jeanette. This site is wonderful and will help you out any way we can.
    • CommentAuthorpilly
    • CommentTimeJun 28th 2009
     
    Welcome to the website. You are not alone.
    •  
      CommentAuthorJeanetteB
    • CommentTimeJun 28th 2009
     
    Thank you, everyone, and especially to Joan for getting this site going. I'm a bit overwhelmed by the warm welcome!
    Since discovering the site (my son was talking about blogs and some interesting ones that he had found, so I got the bright idea of doing a Google search for a blog on alzheimer's. Bingo!) I've been using all my spare time reading Joan's blogs and now the message boards. No where near through it yet, but what a wealth of information and support.

    Yes, I do really live in Holland. I'm a rural Ohio girl and met Siem in 1962 on my way to a Junior Year Abroad at Heidelberg Germany. I was on the SS New Amsterdam with my group and he was working a summer job as a night steward. A shipboard romance that stuck! I did go back to the states for my senior year and then managed to get a Fulbright which allowed me to be in Amsterdam for a year. At the end of that year we got married and have lived in Holland ever since except for a year in New Jersey (Siem worked for Exxon). We raised two boys, I taught English lit at a teacher training college (they were thrilled to have a "native speaker") and later ran our own computer training company: an exciting time. The decline of the company after 15 years I now think coincided with my husband's lapse into AD.
    He was diagnosed last December after a long course to tests and scans and has been on Exelon since then; I think it helps, but he continues to decline slowly. Mild to middle stage, I think.
    Holland has been a good place to live and raise a family. There is affordable compulsory health insurance so medical expenses are no worry. We have good friends and Siem's two brothers live nearby. Our younger son lives an hour's drive away with his wife and daughter, soon that will be two daughters. The elder son lives in Pennsylvania with family (three kids). Up to now we've gone to see them three times a year but from now on travel is going to be much more difficult. They were here in May. My own family is very supportive, but spread out all over the States. We all get together for Christmas. I don't know if I'll be able to visit my mother (87) in Oak Harbor before Christmas.
    Out town has just this year started an "Alzheimer's Café" which is an informal support group open to all: patients, spouses, friends and family. There is a speaker who is usually interviewed on some prearranged theme (last time it was about mourning for the disappearing person). I took Siem along to the first couple but he didn't like it, was unable to explain why. I have not yet found the kind of new friends that Joan has been able to find, but am getting to know some of the regulars.
    My husband was always the one to take initiatives and make decisions so this has been a real adjustment for me. He can't even decide what to eat in a restaurant or whether he wants a cup of coffee. Finding that I can do it (decisions, finances, social calendar, taxes, gardening, simple repairs) has been some compensation.
    He has never admitted that there is anything wrong with him. That makes it impossible to talk or laugh about it. His mother had severe AD for several years and he thinks all the testing, medication, etc, is to keep him from getting it. This is the fib I use to get him to hospital appointments and to take the medication.
    Sorry I've made this so long. I'll keep in shorter from now on!
    •  
      CommentAuthorJeanetteB
    • CommentTimeJun 28th 2009
     
    I'm still finding my way but maybe someone can help: are there message boards on
    -- dealing with diabetes diet issues (anyone on insulin?)
    -- bicycling (this is what we do; how long will he be able to do it?)
    -- getting hubby into the shower
    •  
      CommentAuthorJeanetteB
    • CommentTimeJun 28th 2009
     
    There I am again: forgot to mention that we are both 66 and live in Rhoon, a village near Rotterdam.
  4.  
    JeanetteinHolland. How interesting your story was to me. I am in the USA. West Virginia. Joan and some others will be here to guide you
    about different threads here. I know there are several dealing with diabetes and also the shower. Thankfully, I have had neither at this point. Dan bicycles and was going on a trip this week with his brother. It might be interesting to start a thread on bicycling. Actually, I will start it for you and you do the first post. Lois
    • CommentAuthorCharlotte
    • CommentTimeJun 28th 2009
     
    Jeanette - your post was not too long. I found it very interesting and great to get to know you. I even thank you for breaking it into paragraphs. I have a hard time following long post that are one big paragraph. Just a quirk I guess.

    My husband is 61 and new to this within in the last year although AD runs in his family. His dad was diagnosed in the late 1980s and still around but just a walking sombie. His younger sister was diagnosed in 2005 at age 55.
  5.  
    Jeanette, if you'll do a search for " Washing Their Tush! - Hiney - Bums!" you should find quite a bit of discussion of shower issues. Welcome to the site!
  6.  
    Oh, I forgot to mention -- you need to search for that under Topics.
    •  
      CommentAuthorgmaewok*
    • CommentTimeJun 28th 2009
     
    Jeanette, Welcome to the site. I find it so helpful and am sure you will too. I can't thank Joan and all the contributors here for so much help and understanding! I'm from Washington State and my spouse was diagnosed about 6 years ago. He's in stage 6 now. Again, Welcome!!!
  7.  
    Hi Jeanette. Nancy here...from Texas. Welcome...and know you've been accepted into a very kind and caring group . It's akin to reading a step by step textbook into the disease with side bars. My husband has never admitted he has Alzheimer's, and in fact has often denied that he has anything wrong. I do not think he has spoken the word "Alzheimer's" to me. He once told his daughter that he thought "something was wrong with him, but he couldn't figure it out"... I decided that it didn't matter. You will often hear the expression "Pick your battles". We are here for YOU, so don't hesitate to come here if you're facing a challenge, have a question - or want to share a little humor. We caregivers have a very unique sense of humor - that only we understand. Sometimes it's easier to laugh than cry! (My husband has filled his mouth with shave cream instead of toothpaste, lodged his hearing aid far up inside his nostril, gargled with after shave cologne - and the list goes on and on.) - NancyB
    • CommentAuthordivvi*
    • CommentTimeJun 28th 2009 edited
     
    sorry, edited. my email is getting too many hits from that reply...
    sandi sorry i wet your whistle..haha.
  8.  
    Okay, Divvi...you have my attention......so, if it can't be put on this board you better email the details to me....LOL!
  9.  
    What in the world did you say, Divvi?...........It followed my email... no fair!! I leave the computer for one hour and all the fun starts (and ends!)
  10.  
    Divvi, curiosity may have killed the cat....but we have most of our nine lives left.
    • CommentAuthordivvi*
    • CommentTimeJun 28th 2009
     
    jeanetteinholland, i got the topic off track and i do apologize. there are so many good topics on bathing issues just google in search and you will find more topics than you can read. hope to see you joinin the discussions soon! divvi
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      CommentAuthorJeanetteB
    • CommentTimeJun 29th 2009
     
    Yes, divvi, thank you, I've found the topics (at least some of them). I'm beginning to think keeping up on this site is like a full-time job. It is fun. I find myself sitting down at the computer at odd moments of the day, just for a quick break to read some more topics.
    • CommentAuthordivvi*
    • CommentTimeJun 29th 2009
     
    warning! if you read some of those nasty little topics too long you can get overwhelmed easily! go have some wine and try later! divvi
    • CommentAuthorCharlotte
    • CommentTimeJun 29th 2009 edited
     
    Jeanette - I gave up on the old post. I find keeping up with the current ones is enough work. And, occasionally the old ones will come back to the top. And, I learned to not read through ones that don't really interest me now.

    Divvi is right - if you read too much of the 'nasty' or 'challenging' symptoms of this disease it can be overwhelming and depressing. It helped me when it was finally posted that most AD patients do not get so severe. I was looking at the worse case scenario even though my FIL was docile throughout his disease (he still is just a walking zombie).