A unique opportunity has presented itself for us. I invite you to log onto the home page - www.thealzheimerspouse.com -and read today's blog. Women are wanted, but MORE MEN ARE NEEDED for this new project.
I completed one of their survey's on Alzheimer's last fall. I don't qualify for this survey, but hope they will do a similar one on depression for widows/widowers in the future.
they just called me from Oregon and asked me another 30+ questions and decided that I would make a good participant. They have already sent me an email to give me a method to provide them with a signed agreement. Now I just have to find an hour that I can do the online questionaire. s
I did it online and it took me about 30 minutes. I'm sure if you do a phone interview, it will take longer because of the interaction of talking with someone.
I have just discovered this spouse caregiver site and it is just what I need. But I am confused as to the process for submitting comments. How do I sign up for an interview? annab
Welcome Anna, You have already signed yourself in. Go to the discussion page and at the top there are some sticky notes for you to enter you and your spouse/s ages and where you are from and maybe something about your situation. Just type them like you did above. Then scroll down theough the topics for one you would like to comment on and click on it and post your question, concern, whatever. Joang will be along to welcome you but it may be tomorrow.
Welcome to my website. There is so much information and support here for you. But let me answer your interview question first. Log onto the home page of this website - www.thealzheimerspouse.com - and scroll down to the Friday Blog - it's right in the middle of the page - It says - "Joan's Blog- Friday, May 15, 2009 - New Depression Management Program - You Can Help". Read the blog - it will explain everything about the interview. Toward the end, there is a link to click that will get you started on the interview process.
You can go to the top of this page, and post whatever information you want about yourself, your spouse, etc. in the topic - Welcome New Members.
You have come to a place of comfort for spouses who are trying to cope with the Alzheimer's/dementia of their husband/wife. The issues we face in dealing with a spouse with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse.
The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. I recommend starting with "Newly Diagnosed/New Member" and "Understanding the Dementia Experience". There are 3 sections for EOAD members - two of which focus on the young teens whose parents have EOAD (early onset AD). Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. Log onto the home page daily for new blogs; news updates; important information.
I hope you will visit often and get the support and information you are looking for.
Currently, the message boards can be used for free, but due to the high cost of maintaining the website, anyone who is able to make a payment in any amount to help defray the costs may do so by clicking on the "sticky topic" - Payments to this website. Any purchases made through the Amazon links and Zazzle Marketplace also help keep this site up and running. Thank you.
I just finished the survey. Definitely worth doing. They called this afternoon and asked a few questions. I got the first email not long after and signed permission to continue. And I did the actual survey tonight. It did not take that long. I preferred doing it online and I'm very glad I chose that option. If you are considering doing this but waiting to find out how it went for someone else, it is worth doing.
I received the access to the interview forms and completed them in about 45 minutes. I have had second thoughs afterward about what were the first 5 answers I thought of. We have so many aspects of being a caregiver that I wished I had taken a little more time. I realized that repetition of same questions is more aggravating than I probably indicated on the intervies. My recomendation is take your time. It is not that long and give some of your answers a little more thought. bill
I will call the Evaluation Coordinator tomorrow - she specifically said they needed men. I'll bet they are getting a lot of responses and can't keep up with them. What a great group we have here!
I did my interview Monday after very rapid contact with them. They were very professional and moved much faster than I expected. I am 76 and a full time Caregiver so They must have just gotton real busy. I do recommend that you take your time if you edo the online interview..
Hey...got a call yest4erday, and I was accepted to do the interview!!! I chose to do it online, and now am waiting for the access.....hurray..Joan gets $75.00!!!!!!!!!!!!!!!!!!!!!
Just got the telephone call, but after answering about 10 min. of questions, I was screened out. I wasn't depressed, fatigued, non-responsive, feeling over-whelmed -etc., enough for the study. As I told her, I guess that's a good thing- for me! They may expand the study later on and left me in the data bank.
I screened in and they are sending me the consent form and after I return it they will send me $75.00. Sounds great and it is promised to Joan for this site.
I got the phone call today and, after many questions, was screened out because my wife does not keep asking the same question over and over. Actually, she almost never asks any questions. When I get her up to go somewhere, she never asks where we are going. Even after we get in the car she doesn't ask. A couple of days ago I commented to her that she never asks where we are going, and she still didn't ask. Sorry Joan, no $75 from this, but I plan to send something for my wife's birthday next month.
marsh, she didn't ask me anything about my dh. Stage, age, meds or whatever. It was all about me and me feelings. Not sure why they are not asking everybody the same questions.
I was selected, sent back the concent form and recieved the survey the next day... Have since completed the on line type and returned,,, now just waiting for Joans money... Did ask if they could send the $75 directly to Joan but they would not do that............
The fact that they are being selective as to what reactions some of the spouses have and the feelings of the caregivers, I wonder if it is a survey to prove points that they want to prove for an article for a journal, and the rest of us don't meet the criteria needed to prove their hypothesis. Of course, I'm a cynic.
I was one of the early ones to do the survey, and they weren't asking any questions about if he repeats himself. He does, and he doesn't these days. If we are going out to lunch he won't remember where we are going and he will ask multiple times about that. Once he is aware that the trash needs to go out, he will repeat that question. So I don't know if they would have accepted me on what must now be a second, third, or fourth round. I think what they are curious about is changing.