Not signed in (Sign In)

Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    •  
      CommentAuthorCharlotte
    • CommentTimeJul 15th 2018 edited
     
    Part 1 of 3

    https://www.brightfocus.org/alzheimers/article/challenging-behaviors-alzheimers-disease-part-one
    •  
      CommentAuthorCharlotte
    • CommentTimeJul 15th 2018
     
    Part 2

    https://www.brightfocus.org/alzheimers/article/challenging-behaviors-alzheimers-disease-uses-and-misuses-antipsychotic?utm_source=facebook&utm_medium=social&utm_campaign=alz%20expert&utm_content=challenging%20behaviors%202
    •  
      CommentAuthorCharlotte
    • CommentTimeJul 15th 2018
     
    part 3

    https://www.brightfocus.org/alzheimers/article/challenging-behaviors-alzheimers-disease-other-treatment-options-part-three


    really nothing new but is interesting. Don't know about changing from calling it dementia to MaND - Major Neurocognitive Disorder
    • CommentAuthorbhv
    • CommentTimeJul 29th 2018 edited
     
    Hey Charlotte, I just read these articles because it doesnt seem like the depakote is working enough.

    Ended up doing a search on the title and your comment here came up in the search! Kind of cool.

    Years ago I worked in a prison hospital for mentally and dangerous. They were on these meds. Sometimes a list that took up half a.page single spaced, small font. You can see why I wanted to try non-medication interventions first.

    This week s full moon again. A red moon, whatever that means. I have had to lock myself in my safe room two nights and leave the house several times during the day. Will send email to psychiatrist. Appt isn't til end of August. These articles talk about depakote and seroquel sounds even worse.
    • CommentAuthorpaulc
    • CommentTimeJul 31st 2018
     
    bhv, my wife is on maximum dose of depakote. It wasn't enough so they added topamax on top of it and that did the trick once they got the dosage correct. Depakote and topamax are related and complementary and there is no danger of adding topamax when the depakote is maxed out. Since the depakote isn't working enough I am wondering if he needs a higher dosage.
    • CommentAuthorbhv
    • CommentTimeJul 31st 2018
     
    Thanks Paulc. I remembered you had said something about the max dose. I will write this down this time!
    • CommentAuthorDRA
    • CommentTimeAug 1st 2018
     
    My husband was only on Namenda and Aricept for 2 years before he had the episode that ended up with him in the Geriatric Psych ward. At that time, they started him on anti-psychotic drugs and nothing worked. He was there 2 weeks and didn't sleep, walked the halls, very agitated. They said he talked to the machines like they were me. We then moved him to a larger facility where they did additional testing to see if there was something other than ALZ that caused the rapid decline. They again tried different cocktails of drugs and nothing helped. They said they were treating him for dillarium and nothing could pull him out of it. Anyway, he ended up in Hospice and died after 3 days. I told his story on another board for new members, but up until that Thursday he was functioning, driving, etc. On the day he ended up in the hospital he drove me to work.

    I guess I wonder if I did the right thing by letting them give him all of those drugs. Maybe he would have come back on his own. He was 70 and in perfect physical health. They diagnosed him 1 1/2 ago with ALZ. For 4 years all they would say is age related. But it for the most part was a good 4 years. I lost him in a month and 1/2.
    •  
      CommentAuthorCharlotte
    • CommentTimeAug 1st 2018
     
    I know it is hard, but you need to stop second guessing yourself. If you had done nothing and let it play out, then you would be wondering if you should have tried the drugs. This is a no win disease. Try to be glad he went so quickly - good one day, gone the next - vs years of being in limbo with this disease. None of our spouses (nor would I) want this long goodbye.
    • CommentAuthorDRA
    • CommentTimeAug 1st 2018
     
    Charlotte, I know you are right. When I read these boards I realize that this could have gone on for years. And, we had talked about it and I knew he didn't want to be in a nursing home, not knowing anyone. I guess since it was so sudden, I have a hard time grasping that this was unavoidable. He told me about 2 months before he died that he felt he would die soon. Of course, I told him that wasn't true, he was in such good physical shape he would live for a long time. We were married 47 years and our 48th anniversary would have been July 18. He passed away on June 27. True love hurts and I know that each of us are hurting so much because we loved so much.

    Thanks for your response.