Not signed in (Sign In)

Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    • CommentAuthorSedgly
    • CommentTimeJul 4th 2018
     
    Anyone ever use it for determining time to nursing home care? If so did you find it to be accurate?
    •  
      CommentAuthorCharlotte
    • CommentTimeJul 4th 2018
     
    never heard of it
    • CommentAuthorbhv*
    • CommentTimeJul 4th 2018
     
    Here is a link


    http://www.cumc.columbia.edu/dept/sergievsky/predictor.html

    At the bottom it ll send you to a page to do the calculation. Interesting. Perhaps hopeful. It says my hb may need nursing home care in 9-18 months and may die within 2-5 years. That's more hopeful than the idea that this could go on for another 20 years or so.

    I forgot to look at the date of the study. Had not heard of it before either.
    •  
      CommentAuthorCharlotte
    • CommentTimeJul 4th 2018
     
    for my husband prediction:
    Based upon the patients that we have followed, 25% of patients with a similar clinical profile require nursing home care within 12.2 months, 50% within 16.9 months, and 75% within 24.6 months.
    Based upon the patients that we have followed, 25% of patients with a similar clinical profile die within 19.0 months, 50% within 36.4 months, and 75% within 47.3 months.
    • CommentAuthorbqd*
    • CommentTimeJul 5th 2018
     
    I've never heard of this predictor, but it sounds interesting.
    I always used the old "will die about seven years after diagnosis. Well, DH was diagnosed in 2012 but by the he was already late stage 5 or early stage 6.
    As far as placement is concerned, I really think it should be when the caregiver is ready, not their spouse. Too many times caregivers wait too long, thinking that keeping their spouse at home as long as possible is what they are supposed to do, so by the time placement actually happens we have a caregiver who is too worn out, and a dementia patient who may have benefited from the services the NH had to offer.
    • CommentAuthorbhv*
    • CommentTimeJul 5th 2018
     
    Well I am trying to decide at what point do I decide to pay others to do what I am doing now. No one else will pay for this. They say to.place when the caregiver can no longer safely care for him at home. So far there are no safety issues. Sometimes I wonder if he would enjoy the memory care place more than here because I sometimes cannot make myself smile and don't know how to entertain him other than the tv. But then I realize he doesn't participate at day care. He just sits in the office in the afternoon because it is too noisy with the others. He is waiting for me. Has tears in his eyes when he sees me, but then, lately, won't come with me until the nurse leads him up front. So yes, when he gets placed his caregiver will be WAY BEYOND burned out and he probably will be beyond the time when he can benefit.
    • CommentAuthorpaulc
    • CommentTimeJul 6th 2018
     
    "They say to.place when the caregiver can no longer safely care for him at home." I disagree that this is the sole criteria. It is one possible reason to place but it is too focused on the state of the person with dementia. Other reasons is danger to others in the house, including emotional damage. Caregiver burnout is another reason.

    Placement is often based on the caregiver's health, not the stage of the person with dementia.
    • CommentAuthorRona
    • CommentTimeJul 6th 2018
     
    I agree with Paulc.
    •  
      CommentAuthorCharlotte
    • CommentTimeJul 6th 2018
     
    It says 12 months for 25% - well I hope he is placed before then but with my luck it will be longer. As for death it says 25% within 19 months - my luck he will be the 4 years or even longer.
    • CommentAuthorNicky
    • CommentTimeJul 7th 2018
     
    Charlotte - tried the calculator & my husband's results are very similar to yours. His profile requiring nursing home care is identical to your results. His profile to die is only 2 -3 months less than yours. So, I guess time will tell.