Not signed in (Sign In)

Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    • CommentAuthorjulie55
    • CommentTimeMay 11th 2018
     
    Hi everyone. I joined back in 2012 or 13 I believe, after my hubby was diagnosed at 62. Although I've read the message board once in awhile over the years I haven't really contributed. He is now late stage 6. Very rarely knows who I am, gets lost in the house, shuffles, eats with his hands, and actually needs help in all aspects of daily living. He is still at home as I am lucky enough to have our 26 year old son help, as co caregiver.

    I was friends with Charlotte on Facebook for awhile and her advice helped during those first few months after diagnosis.

    There it is in a nutshell. I didn't want to just show up without re introducing myself. I still recognize some of the names posting here which is quite comforting. Including Charlotte.
    • CommentAuthorbhv
    • CommentTimeMay 11th 2018
     
    Hi Julie. I am a little behind you. Hb started having difficulties in 2009. Worse in 2012. Diagnosed in Jan 2015. I, too lurked for quite awhile cause some if the discussions were so scary. I guess my hb is stage 5 or 6. Idk. Just started Adult Day Care and medication for aggression/agitation.Hb is now almost 75. I just turned 64.

    Welcome back. I too am grateful to have Charlotte as a friend.
    • CommentAuthorNicky
    • CommentTimeMay 11th 2018
     
    julie55 - I noticed you're from Toronto Canada. I'm just wondering if you're receiving any support from CCAC? I know CCAC offers a lot of programs, however I heard CCAC made a lot of cuts. I lived in Ontario all my life until we moved to Gatineau Quebec 5½ years ago. This province doesn't have many programs, which made it more difficult to keep my husband at home. I often thought I might have been better off staying in Ontario - but wondering if CCAC could have helped?
    • CommentAuthorjulie55
    • CommentTimeMay 11th 2018
     
    Hi bhv. Thank you. Yes my hubby goes to daycare too. Was just put on Seroquel originally because of wanting to go "home" and more recently because of crying. He was sent home from daycare last week because of crying. It is so sad. We are doing our best to keep him at home as long as possible. i hate this disease.
    • CommentAuthorjulie55
    • CommentTimeMay 11th 2018
     
    Nicky his daycare is subsidized. I pay 31 dollars a day. As for in home care from CCAC, now called the LINH. they only offer 3 hours a week for bathing. I find it easier to walk in the shower with him and do it myself. It takes me about 15 min to shower, shave and brush his teeth. I would be on their schedule if I accepted their help, which could be offered on a day he goes to daycare, or in the middle of the day. So far my son and I are a good team. Thanks for your input though I really appreciate it.