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Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    • CommentAuthorJazzy
    • CommentTimeApr 20th 2018
    Joan you have given so much of your life both as a dementia caregiver and as a widow and have been a very great help to all of us and I wish you well. If it is time for you to move on then that is alright. You deserve it. Bless you and Thank You!!

    The following comments are not a judgement but just and observation from my dementia world.

    I am finding that the widowed members of my support group will come to our meeting a couple of time then they just seem to go their own way and build a new life. I don't feel that they have abandoned us but that they have given as much help as they can and now we have to do the same for the others in our group.
    We wish them well and are so happy they have been able to leave the dementia world.
    I realize many of you are having trouble leaving the dementia world as it take up so much of our live and I wish all of you the very best in your new world.
    • CommentAuthorCharlotte
    • CommentTimeApr 20th 2018
    I think we all understand that despite what she said while in the midst of Sid's disease, she may want to leave it. That is fine, we just need to know one way or another. None of us like being in limbo.
    • CommentAuthorAdmin
    • CommentTimeApr 20th 2018 edited
    Recently, I started a discussion in which I informed everyone that I had definitely made my decision as to the future of the website - that I was going to keep it open, so all of the valuable information would always be available for access, but that it would be "inactive", meaning that I would not be writing anymore blogs. I would also keep all of the valuable information on these particular message boards available to access. Active conversations would be moved elsewhere under a different format. Those plans have NOT changed. However, life continues to intervene. My IT guy is out of town on extended business, and I am in such horrendous pain most of the time, that it is difficult for me to work on anything, including the website. No, I do not plan on handing it over to someone else to run. My decision on how to proceed has not, and will not change. I am just giving you plenty of notice, while I wait for Matt to return, and my next sciatic nerve procedure to hopefully give me some relief. I have not abandoned y'all ( picked up that expression after 12 years of living in the South). I have a HUGE explanatory, exceptionally grateful, heartfelt blog to write. While I wait for some pain relief and Matt's return, these boards will remain as they are.

    • CommentAuthorbhv*
    • CommentTimeApr 24th 2018
    I wonder if a new place for the active conversations is required. I have been getting used to the Spouse message board over on alzconnected. Takes a little while to feel.comfortable. There are a bunch of new people who seem to be sticking around. There's a.cadre who have been.there awhile, some W&Ws, some with spouses in placement.
    Charlotte, Rodstar, Nicky and I are over there as

    Maybe Matt can find out how many individuals are actually actively posting say since Jan or so.

    I remember back around 2009 when I first found this site, the alzconnectd site didn't have anything like this. I lurked on this site for a long time because most of the people like Wolf, Divvi, Bluedaze and several Marys, were much farther along than I was. It was scary reading what they were going through. When I caught up, I used search and reread some of that stuff.

    We are alzheimer caregivers....we KNOW how to be patient....