This is a link to an article about the family burden of Dementia care. I couldn't get the actual link to paste but if you copy and paste the link, it should open fine.
This is one sentence from the article that I most liked. "One of the challenges in this country is that we have not adequately appreciated the full social impact of dementia," Bott said. "It's not just the patient who is diagnosed with dementia -- it's the family." The article also mentions the PACE program.
When I first started reading it, I didn't like the idea that the title made it sound like men in the family don't help. There are two main intents of the article. First to discuss the long-term burden on the family in general, and second, that the majority of caregivers are the women in the family. It is a good article and worth reading. The more articles that talk about this issue, the better.
Thank you for the link, Mary. Your quote is so correct. I have always felt that "we have Alzheimers". Not just my partner. The article also mentions the PACE program, a program that has made my partner's care at home both practically and financially possible. I wish the program were universal.