Three wks out of hospital and my DH is still in decline. Weakness, lethargy,more confusion, can't feed self,and high blood sugars. Today he told me I want out of here! No way I can lift him ! I know many of you have been in this same scenario! But it sucks!
Yes, I well remember those days. Just take it one day at a time, Ky caregiver, and find short moments of rest and relaxation--fit them in between all the work and worry. Cherish every good moment that you do have with him.
My best advice Ky, is to stay "in the faces" of the medical team and keep asking questions. And when you have had them answered insist very vocally,on action. Just keep at it if you can and your husband will eventually receive the help that he needs to be comfortable (at the very least!)
Ky caregiver, we all do it just the way you are doing it....one day, one hour, one step at a time. Doing the best we can under almost unbearable circumstances. Sending you BIG {{{HUGS}}}.