As many of you know, Phranque's son, Kevin Ducharme, has EOAD at age 41, following his mother and grandmother. He has written a very good article about his experiences. Here is the link to the article:
Wow. How unbelievably powerful. Thank you for expressing what so very few do and what my own wife could not. I feel for all of you and I wish I could add something that I thought had real meaning.
marsh, Thank you for telling us about this article. It was so compelling and I really related to Kevin's acerbic humor. ("At her request, we didn't stick in a feeding tube or anything like that. We also didn't offer any real treatment, and this wasn't by special request. No real treatment existed then. Hey, exactly like today.")
My heart goes out to Kevin. I am most appreciative that he articulated so well what it is like to have genetic EOAD. DH's extended family knows all too well what it is like to live with and in fear of autosomal dominant EOAD. DH's Mom died at 50. DH was a caregiver to her and now he has AD. I can't believe there still isn't any type of preventative treatment.