My name is Nancy. I'm 61. My husband has late stages of Lewy Body Dementia. He is 18 years older than me. We've been married 23 years. I'm seriously lonely and unhappy. We moved to NC After living in mich for 20 years. Family never visits We have been completely neglected but he does not realize it but I do. He is still at home where I have CNAs help with his bathing. Although I know he has it worse than I being the one with this terrible disease I am devastated and going through an emotional meltdown. I'm glad I found this site because I know many of you must be going through same thing
Welcome Nancy. There is information here about Lewy Body Dementia. Everyone here gets it including marriages with some age difference. Sorry you're here, but welcome.
Welcome, Nancy. Your story has some similarities to mine, although Larry was 25 years older and died almost two years ago. We moved out of state, too, and I've ended up fairly isolated, with family not as supportive (ha,ha--understatement) as I had hoped and assumed they would be. Anyway, you will find that people here "get it" and will be able to help, I am sure, with lots of understanding, kindness, and common sense advice. Yes, the words "devastated" and "emotional meltdown" certainly will resonate with the folks here. Others will be along to welcome you, and I have to say that I could not have got through the Alzheimers years without this group.
Hi Nancy your screen name says it all ... Missing him. My dh also has Lewy body w Parkinsonism he is 59 dx 2 yrs this oct. Today I had a meltdown. I like yourself am exhausted. For some reason today I just missed him so much. Nancy as for the help or lack of I don't think people realize what we are going thru. Everyone else has a busy life and I think they assume we got it covered. It's hard to ask for help but I'm learning . My brother in law text askng if we needed anything done and I am going to ask him to install new thermostat . We are in chicago so consider yourself lucky to escape the winter and it's cold, snowy, isolation. I hope tomorrow better day for you
Hi Nancy, I'm 68. My husband is in the late stages of Alzheimer's disease. He is 19 years older than me and we've been married for 25 years. My husband has been in LTC for 2 years. I have been in various stages of an emotional meltdown for 9 years now, sometimes not too bad, sometimes awful. There are several people on this board who moved to distant states shortly before the diagnosis and they have explained how hard it is to face this terrible disease without familiar faces around. I really sympathize with you.
Welcome to my website. I started this website in 2007 because I couldn't find anyone who would talk about how I felt - I thought I was the only one feeling the way I did about what Alzheimer's Disease was doing to my marriage. I needed a place that dealt with my unique issues as a spouse of an Alzheimer patient. This site is now a place of comfort for spouses/partners who are trying to cope with the Alzheimer's/dementia of their husband/wife/partner. The issues we face in dealing with a spouse/partner with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse/partner.
The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. I recommend starting with "Newly Diagnosed/New Member".
Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. There is a "search" feature on the home page that allows you to look up different topics that may have been explored in a previous blog. Log onto the home page for new blogs; news updates; important information. There is also a search engine at the top of this page for you to look up every topic we have discussed in the last 9 years.
Please excuse the condition of some of the links in the Resource Section and the lack of new blogs. I am currently in the middle of a huge website renovation, and everything will be cleared up and in working order as soon as we finish the remodel.
Welcome missing him. I am 65 and my wife is 60. We moved just over 6 years ago to be closer to my Inlaws as they were really struggling. Mother in law had major stoke and father in law was trying to do it all and not going well. Little did we know that when we moved my wife was well down the journey with Alzheimer's. She was finally diagnosed in 2012 and by then was in mid stages. I just placed her in residential care on Tuesday. I am an emotional wreck.
This site is a lifeline, there are many people here who have travelled this journey before us and many behind us. This site is offers the best support of any resource out there everyone here gets it because they all live it. Sorry your here but good luck.