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    • CommentAuthorPavane78
    • CommentTimeJan 6th 2016
     
    Pavane78. My husband passed away Decmber 20, 2015.
  1.  
    So sorry to hear of your husband's passing. It is especially hard when it happens during the holidays.
    • CommentAuthorPavane78
    • CommentTimeJan 6th 2016
     
    I wasn't sure my message would take. Keep forgetting passwords and then start a new account. Sorry, Joan, for the extra wok

    My husband passed away December 20, 2015. I came on this site not too long after it had first
    started. My husbands journey always seemed to be in step with Joan's husband, Sid, just a few months behind. So...

    This site has been the most valuable resource for me above family, friends, church and particularly the professionals. My husband had Parkinson's, ALS but mostly Frontal Temporal Dementia. He was officially diagnosed in 2004 but I had seen a drastic change in his behavior starting in the 1990s. After the fact, they now tell me that it was early onset. He was 75 when he passed away.

    I am not trying to be bitter or blaming all of my other resources. My husband was very high functioning and he was able to be very convincing to others that he was ok. This is a very cunning disease and he was very good at looking good at any cost. There were times that I would even question myself as he was so convincing, so I can't blame others for not seeing the level of his dysfunction. What they all saw was a charming, well put together man that came with a disheveled, wild looking partner.

    My thanks go out to all of you, who, over the years gave me valuable advice, acceptance and info in how to walk this awful walk. I wish I could offer words of encouragement and comfort. Just know that you are doing a Herculean task. God bless all of you.
    •  
      CommentAuthormary75*
    • CommentTimeJan 6th 2016
     
    Dear Pavane, I hope you will have time now to recover and heal. It is exactly what you say, a "Herculean task."
    • CommentAuthorcassie*
    • CommentTimeJan 6th 2016
     
    Sending you my sincere sympathy pavane78
    and also wishing you peace and strength for the days ahead.
  2.  
    So sorry for the loss of your husband, Pavan78. I hope you can find some restfulness and peace in the new year.
  3.  
    Pavane ... so very sorry for the loss of your husband. Now is your time to rest, and know you did your very best. God bless ...
  4.  
    Pavane I am so sorry-for both of you. My husband also had FTD. I understand only too well how its victims can present so well and turn on a dime into a person you don't know. My adult children could never understand how their dad could behave so well when it suited him.
  5.  
    I am so very sorry,Pavane. I hope you can find some peace and rest now.
    •  
      CommentAuthordeb112958
    • CommentTimeJan 6th 2016
     
    I'm very sorry for your loss.
    • CommentAuthormyrtle*
    • CommentTimeJan 6th 2016
     
    I am so sorry. What a long, hard road you have traveled. I think many of us can identify with your description of "a charming, well put together man that came with a disheveled, wild looking partner."
    • CommentAuthorCO2*
    • CommentTimeJan 7th 2016
     
    My thoughts and prayers are with you. Please stay connected as you grieve. It helps
    • CommentAuthorPavane78
    • CommentTimeJan 7th 2016
     
    Pavane78*
    Thank you for your support.
  6.  
    My sympathy Pavane.

    Such a long, hard journey for you.

    I, too, didn't even realize how worn out and disheveled I was until Bob's passing. I am trying to recover now.

    May you find peace to recover your strength.
    • CommentAuthorWolf
    • CommentTimeJan 7th 2016
     
    I'm sorry for your loss Pavane.
    • CommentAuthorPavane78
    • CommentTimeJan 10th 2016
     
    Have any of you found a blog/online support site that has been helpful. I have found some, but wonder at your experience. Anger has come to visit..I hope it's only a visit. I see the Hospice grief social worker Tuesday. Afraid I am too raw for a grief group yet. He passed away three weeks ago today. Seems like years. Thanks for all your kind messages. They really help. I keep coming back to them for sanity.
    • CommentAuthorLFL
    • CommentTimeJan 10th 2016
     
    Dear Pavane, so sorry for your loss. My DH dx'd in 2008 with FTD. Still at home. Horrible disease.
  7.  
    Pavane........
    Everybody told me that it just takes time and in my case that was so true.
    In my care giving days I learned the value of being patient with my dear Helen.
    After she left me I was patient with myself and my grief went away.

    I wish the same for you Pavane..........You're going to be OK
  8.  
    Pavane, I'm so sorry for your loss. My heart goes out to you and so do prayers...
  9.  
    Pavane, these message boards have been invaluable. I could not have made it through the caregiving and then the bereavement and recovery struggle without this group. Whatever else you try, I would stay on these boards, continue to read the postings, and just stay hooked up with us.
    • CommentAuthorMim
    • CommentTimeJan 10th 2016
     
    Pavane, my sincere condolences.
    • CommentAuthormariposa
    • CommentTimeJan 13th 2016
     
    I am so sorry for your loss. Wishing peace and ease for you. Be very gentle with yourself and take good care.
    • CommentAuthorFiona68
    • CommentTimeJan 14th 2016
     
    Pavene, I am so sorry for your loss.