If there is a separate thread somewhere, then I apologize for starting another one. But Texasmom, I just wanted to say I am so sorry for the loss of your husband, and hope that you've been able to find a little peace and get some rest through this difficult holiday time.
Thank you--- he had been in a dramatic decline since the spring (huge weight loss) and the amazing thing is my daughter who lives in DC had made a last minute trip to Texas that weekend for another reason, so both daughters and I were with him all afternoon on Sunday after the nursing home called to say he had refused to eat lunch. He died very peacefully Monday morning. Between the week of funeral arrangements (memorial service in Houston but he was buried outside Atlanta, where his 88 and 95 year old parents still live) and then Christmas, it is all still very surreal. But there is no doubt in our minds he is in a better place now----almost 10 years since his diagnosis, over 2 years in a wheelchair and a facility, had not spoken in almost 4 years. I hope to continue to advocate for more research for this disease--I see no silver lining to what our family and so many others went through.
My condolences texasmom. I'm sorry for your loss. Maybe our experiences all add voice to the need to do more to help those caught in a long term fatal illness.