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    • CommentAuthorJazzy
    • CommentTimeDec 6th 2015
     
    He told me that his muscles are stiff, especially the calk and upper arm and shoulder. I guess this is part of the disease. The first Doctor he had said he had "Parkinsonism". Balance is not so good. He goes to physio three times a week for the balance problem so now they will have to add the stiffness as well.
    • CommentAuthormyrtle*
    • CommentTimeDec 6th 2015 edited
     
    It's odd that the doctor and ward nurse did not mention Parkinsonism to you in your recent meeting with them. Why don't you ask the doc in charge about whether this is an actual diagnosis or just a possibility or even speculation? The doctor and nurse made it very clear that you should not rely on Kevan for accurate information. If you are going to start worrying about something else you should at least make sure it actually exists.
  1.  
    Yes, I think you might need more information. Does he have Parkinson's, or is he having "Parkinson's-like symptoms" ? Or is the stiffness just a passing thing, like an arthritis flare-up? Or is it a temporary stiffness or soreness due to exercise or over-use in some way? I agree with Myrtle that you should check with the home's staff for accurate information, as you have posted elsewhere that Kevan is not a reliable historian these days.
  2.  
    I didn't mean that you shouldn't listen to Kevan...just check his version of the story with the staff.
    • CommentAuthorJazzy
    • CommentTimeDec 6th 2015
     
    Parkinsonism has been diagnosed by his neuro-geriatric physiatrist four years ago. It will eventually cause paralysis. Google it. This stiffness has been noticed before but was not very bad.
  3.  
    Oh, OK. Parkinson's can progress very slowly though.
    • CommentAuthorJazzy
    • CommentTimeDec 6th 2015
     
    Kevan has had numerous small strokes that are often the cause of Parkinsonism. It's slow progressing and most often will affect the lower body affecting gait and stiffness but does not have spasms.
    Kevan will try to stretch out his arms or legs and if you ask him what is wrong he will tell you he just feels stiff today.
    This is how they know about the stiffness, and they can see his walk is not steady. He is having therapy for the balance and now they will add the stiffness to the exercises.
    We don't go by what he tells us but watch for these symptoms. I am not worried about this as it was explained four years ago and we knew it would be starting to show it's ugly face in the future which is now.
    When you have a person that is not really reliable as Kevan is then you watch for what is changing visibly. Most nurses do this all the time.
    • CommentAuthormyrtle*
    • CommentTimeDec 6th 2015
     
    Jazzy, As is obvious, I also interpreted this to mean that you got this news from Kevan. Sorry for the mistake. I hope this stiffness will not advance too quickly. Several men in my husband's unit seem to have this problem. In the year and a half since he has been there, some of them have symptoms that have advanced very quickly, others seem not to have changed much at all.