When Kevan was first diagnosed I went on line to try to find out what I could about fronto temporal with bv varient. Not much popped up but about six months later one from ucsf gave me a bit of info but they were just starting their research. I went back to that Google fronto temporal again yesterday and one it is a memory site and I found a lot of really good info. I was also able to sit in on some of their talks. They talk about all dementia's not just fronto.