Two weeks ago, I told everyone we had a diagnosis and I have not been in touch since. I would just like to thank everyone who responded to my posting. Paul and I had a lovely Christmas. Very quiet. We went to my friends and my youngest son who is 22 and his girlfriend came along too. As my friend said " we had a grown up Christmas" It was so relaxing. I am not sure about the way I am feeling at the moment. It is almost relief now that we have a diagnosis. I have gone through all the emotions this past couple of years, Denial, anger, sadness and now I think I am in acceptance. I hope it lasts. I find I am now more patient, just take one day at a time and some of you said this horrible disease can make one stronger and honestly, I have changed my outlook on life. I have been a worrier all my life and now I am actually living in the moment. Something I haven't been able to do, ever. Our GP gave Paul a copy of the Neurologist's consult letter. She actually said she thought his disease was progressing rapidly, although I do not see evidence of this. His MCo test she said was 24/30 last year and 19/30 this year. She doesn't want him riding his bike anymore as his problem seems to be visual spatial. He can ride his bike on the bike path but not on the road. He is having a hard time with this but I told him we will take the Streetcar to his dental appointment downtown next week and we will make a day of it. I know that the stage we are at is nothing compared to what some of you are dealing with at the moment and am aware it doesn't get any better. Luckily I belong to a hiking club and one of the ladies in our club's husband was diagnosed in January so we can offer each other support. Believe it or not, when I was 16 and got a weekend job working in a nursing home, on the Alzheimer floor. My job was to feed and wash the Alzheimer patients. Isn't life funny? Wishing you all the best and again, thank you for your kind words.
julie - glad you had a relaxing Christmas.Sorry about your hiking club friend but glad you will have each other for in person support.
For me the process of acceptance, taking a day at a time, etc. go in cycles. Sad to say that right now after 6 years of him not remembering, repeating, etc. I am wearing thin. I think some for me has to do with the death a lady I instantly bonded with on Facebook. She was battling Lyme disease that had destroyed her heart. The reason we bonded: she got it and she had no outside life due to her physical condition and I have no life outside because of husband. We would chat until 1 or 2am because the Lyme disease had messed up her sleep cycle. The other ladies I chat with are fine, but they do not get it. So, after 8pm my life is now silent and it is the reason I think I am so short with hubby now. Hopefully the new year will bring some balance back.