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    • CommentAuthorwatchful7
    • CommentTimeAug 17th 2013
     
    My wife is in Moderate alzheimers. She can still do the activities of daily living, but as of 2 weeks ago, she refuses to do 2 of them. Showering and changing her clothes. In fact she never changes her clothes and wears them day and night. The last she showered was 2 weeks ago. The last time the rest of her clothes were changed (except for underwear since I swapped her panties out on the last shower) was many months ago.

    I've tried every technique suggested by AD help books, online comments,etc Today, a good friend of hers visited, and for over 3 hours, we tried every possible bribe (a birthday present, your hair will look like new instead of scraggly), to coaxing to cajoling to threatening (I can't sleep with you if you stink and you're beginning to do just that) to trickery (let me take your clothes to the cleaner- meanwhile you can these other clothes). I've asked, I've demanded, etc. We tried Xanax to take the edge off the discussion and it didn't seem, to affect her.

    My main issue is to prevent UTI. my next issue is to have nice, clean looking wife, hygienically sound.

    We've even had care facilities indicate that if my wife doesn't change clothes or shower, they might not accept her and she may have to antipsychotics for a week or so, so she can stabilize. That bothered me- I don't want to have my wife to be turned into a Zombie.

    any help with any of this ??????????
  1.  
    Have you tried "accidently" spilling something on her so she has to change clothes?? Must be very trying on you-sending you cyber hugs and prayers./
  2.  
    This is an area in which I had no problems. However, somebody I know used to sneak in at night, steal the dirty clothes and put clean back where the dirty ones had been. They have to sleep at some point......don't they?
    • CommentAuthorMim
    • CommentTimeAug 17th 2013
     
    I have to share this! This has been a weekly battle for us for quite a while now. He's in the shower right now (you know, Saturday night!), so I gathered up all his dirty clothes that he's worn this week (!) & put them in the hamper. I've been doing this for quite some time - he never says a word, I guess he thinks HE put them in the hamper, like he used to do!
    I've been marking his shower "dates" on the calendar, sometimes it works, sometimes not, but tonight I went to mark off the calendar & noticed that he had pencilled in MY name by "shower" on every Saturday night! I laughed out loud - I think he was sending me a message! Very childlike - if I have to shower, so do you! There are funny moments.
    Lack of cleanliness itself, is certainly not funny, though - a real problem for many of us. You are not alone, although that doesn't help get your LO into the water. Wish I had some definitive advice, but I don't.
    • CommentAuthorJanet
    • CommentTimeAug 17th 2013
     
    I think if you search on this site for other posts on antipsychotics, you'll find that most people don't find their LOs become zombies on them. My husband started on a low dose of seroquel a few months ago, and he's doing fine. He's calmer and easier to deal with, but there's no other noticeable change. Some of those who post here say they would never have made it without the medications like seroquel and risperdol.
    • CommentAuthorCharlotte
    • CommentTimeAug 18th 2013
     
    have you tried having a female come in to try? I know others here have posted where their spouse only wants someone of the same sex to help them bath or someone other than their spouse.
    • CommentAuthordivvi*
    • CommentTimeAug 18th 2013 edited
     
    I don't understand the inability to take the dirty clothes while they are in the shower. its not a question of whether they want to or not. you must do what you have to and then deal with the onslaught of drama but we all have had to make valid decisions regarding care for our spouses. dirty stinky folks just aren't a part of it.
    its detrimental to them and us to allow that to happen. and yes it may be time you visit the idea of a med to mellow her out. if shes having that kind of tantrums over one set of clothing, many well almost all of us resort to meds to iron out difficult situations along the way. not all meds cause zombies. many attest here that it takes time to find the one that works but please don't be afraid to try. you will not last long in this run as a caregiver without the aide of medications along the way. and its a constant battle. changes and dosings are needed - just swap your wifes clothing and be done with it. yes she may throw a tantrum but she may also get used to the idea of having clean clothes. you cant live with allowing them to make the decisions. we have to be the ones to make that happen, and sometimes its difficult but we do what we must. many times the fear is in our own mind as well. and isn't near as bad as we imagined it would turn out.
    they are not and should not be allowed to manipulate when their hygiene is concerned. staph infections are very worrisome and hard to clear up if they are a result of poor hygiene. sorry to be so blunt. but been there done that, my title poop queen well you can see I have been thru everything imaginable. it will work out in the end . we must be proactive -not easy to do -but in the best interest for everyone.

    watchful I have brought up the old bathing topic. it has a lot of useful helpers.
    divvi
    • CommentAuthorwatchful7
    • CommentTimeAug 19th 2013
     
    It's difficult to change her clothes when my wife never take them off !! She sleeps in them. Also, my sleeping in another room doesn't seem to faze her any more. She started to babble while we're both in bed and I'm trying to go to sleep and she wouldn't stop. What fun !!!!!!!
    •  
      CommentAuthorNikki
    • CommentTimeAug 19th 2013
     
    watchful, I understand what you are saying as my husband also slept in his clothes. It is NOT funny, but I am sorry, I did chuckle at your comment "It's difficult to change her clothes when my wife never take them off !! " I felt exactly the same way. Bathing and trying to get him to change his clothes were two of the most difficult challenges I had when caring for him at home. Second to only the aggression and rages.

    A shower was a guarantee I would end up on the floor. Trying to convince him he HAD to change his clothes was a guaranteed fight. And fight we did!! I feel your pain, but you just have to find a way to get her to change and bathe. Even with Seroquel this was still a battle.

    In the earlier stages my taking a shower with him helped. But as he progressed just nothing worked! I remember Sandi* sharing how she actually had to cut the clothes off her spouse and even chased him around with a spray bottle trying to get him clean. So please know you are not the only one who has felt so overwhelmed with this issue.

    I also remember Trisinger telling me about how their perception is off and how they might fear the water. I tried everything, I colored the water in the tub to help him see it clearer. Didn't work. I got him a handheld shower head because he seemed just petrified of the shower spray. Didn't work. I tried spilling things on his clothes, didn't work. etc. etc. etc. We kept increasing and changing his meds, it helped with every other area but changing his clothes and bathing.

    I still strongly believe he had a true fear of the water. As a last resort I filled up a bucket with soapy water and was able to get him sponge bathe. It was not ideal, it was a lot more work, but it was better than nothing! He was not intimidated by the small bucket of water and I think it was more easily manageable for him. It still took bribing to get him to do even that.

    At this point try to aim for once a week (unless there is an incontinent issue, or she does get exceptionally dirty) The nursing homes showers only once a week and their residents do just fine! Keep trying until you find something that will work for you guys. In the meantime, know you have my sympathy and I am rooting for you to find a solution. ((Hugs))
    • CommentAuthorbqd*
    • CommentTimeAug 20th 2013
     
    Mim, I have taken your idea of marking on the calendar when my DH has a shower, so that I can keep track - he hasn't fought the idea of showers or baths yet, but as he is declining I want to have an idea of how often he does have his showers.
    • CommentAuthorAmber
    • CommentTimeAug 20th 2013
     
    Haven't had to deal with this one yet. One idea someone had was to have identical sets of clothes so when you swap one set you can put an identical set back. Same colours and textures. Also keep the room really warm, when they get undressed, they may feel the cold more than we do.

    I truly feel for you this must be another extremely trying time. There are just so many.
    • CommentAuthorFiona68
    • CommentTimeAug 20th 2013
     
    My DH refused to shower and wore/slept in the same clothes for up to a week - several layers at a time! This went on foe several months before we placed him in the ALF. Same scenario there for several weeks until I insisted we figure out how to get him into clean clothes (especially underwear). They started him on Gabepentin (Neurontin) and he has been much more cooperative. He still likes to wear the same shirt but will acquiesce to taking a shower.

    As Nikki stated, I believe that the shower spray scared my husband too. I'd read about that in other discussion threads so used some of the tricks other members used. In fact, just today I got him into the shower. He stunk and he'd worn this shirt for a week so finally I'd had it. I told him what I was taking off as I did it and he didn't get anxious. I had him step into the shower as I held the handheld shower head and told him that I was going to wet his feet. Before I moved the spray higher, I told him what I was going to do. He didn't resist and soaped himself up. I then said "brace yourself, I'm going to get your head wet so you can wash your hair". The poor guy just frowned and shook his head, but I wet his head and he got it all done.

    I guess my point is that this new med has made him much more cooperative for both the staff and me. Good luck watchful7. I hope you find something that works for you and your DW.
  3.  
    There are no-rinse body wash and shampoos on the market. At least if you can get the old clothing off, those can be used without getting into a tub or shower. I bought them at a camping store--I think Walgreen's may sell them and they're available online too. Dislike of bathing seems to be universal in the dementia world.
  4.  
    Strange how things come and go with our spice! We went through a period of not wanting to shower and if he did, he would not EVER wet his hair to shampoo it. I used the rinseless shampoo and it was fine, worked very well. Got it at Walmart (behind the Pharmacy). Then one morning he got up and said he needed a shower! I still have to 'help' him, but he does a pretty good job. And, he will shampoo his hair! Water running down his face and all! I help him with that - but at least we get it done! I still use the rinseless shampoo if needed. Good stuff!
  5.  
    As we have so often said, what a crazy disease. Glad your husband became more cooperative over time, Vickie. It just shows, we never know what's coming around the corner with this situation.
  6.  
    Watchful, maybe you could say "come on, baby, and take a shower with me." I showered with mine for the last 3 years of his life and never had a problem or any resistance. Of course, I smelled like men's Avon for the last 3 years of his life, but who cares. Lloyd slept in his clothes for the majority of the last year. So what. He changed and showered regularly. Choose your battles carefully...some aren't worth the fight. If they are now afraid of the water, maybe they just need held as you wash them up or they just need to hold onto you for an added measure of security. It's all about the love and they love affection.
    • CommentAuthorCharlotte
    • CommentTimeAug 22nd 2013
     
    In the past some here spoke of buy identical clothes for their spouse. That way they could wear the 'same' clothes after they figured out how to get them in the shower.
    • CommentAuthorlulliebird
    • CommentTimeAug 22nd 2013 edited
     
    Mine...his hygiene is horrible, but he does manage to shower/shave once a week without coaching. The other 6 days he is content wearing the same clothes day in day out.


    Showering and changing clothes: I think it's just so difficult physically for them they think it's not worth the trouble. To ask for help = loss of independence and dignity.

    This is such a pitiful disease. God I hate it!
    • CommentAuthorbriegull*
    • CommentTimeAug 23rd 2013
     
    Right now, think bribes. No ice cream unless you have clean clothes on. Remember the regression to childhood. I'll make another post about that!