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    • CommentAuthorFiona68
    • CommentTimeJan 27th 2014
     
    Lorrie, I love that one. It's going on my 'daily reminder' list as something to work toward this year. thank you
    • CommentAuthorLakegirl*
    • CommentTimeJan 28th 2014
     
    Asked to submit our stories to the Alzheimer's Reading Room, I thought of all the things I could submit but decided on the following. The journey we all have is hard but love, I believe will get us through it offering moments of happiness and joy. Some people in this world never even have those moments.


    Our Story:

    My husband is 81 years old.

    Born in Brooklyn, now we live on a lake in Minnesota. I am 65.

    This is the second marriage for both of us. We’ve been married 20 years.

    When I was dating Bob, I asked him to tell me all his stories. He was an only child and his parents were deceased.

    I loved all the stories he told me and treasure them today.

    He remembers he once boxed in the golden gloves at Madison Square Garden and he was born in Coney Island Hospital – both which he loves to share will different people we meet on our travels.

    I tell him some of the navy stories – remind him he was in the Korean conflict not Viet Nam – the fun story of when he was in Japan with his sailor buddies.

    More important when we were dating he listened to my stories.

    I told him a story of when I was 4 years old going to my great grandfather’s house who sold Hartford Insurance. He had a deer head on the wall and would take it down so I could play with it. I wanted that deer head after he passed but somehow it went from a small town in Iowa to a great aunt in California.

    Bob heard my story and when we were dating he bought me the most wonderful courting gift – a deer head from a flea market.

    I have that on our wall today.

    We are on a trip to Florida today from Minnesota, several people we’ve met he’s told his Brooklyn boxing stories but couldn’t remember the town we have lived in for 12 years.

    I tell him that’s ok – he turns to me and I fill in the blanks.
    I told him I would help be his memory.

    I treasure his enjoyment of talking with people.

    We are a team.

    I love him dearly and it was the other way around, he would be there for me.
    Bob Ballard retired after a successful career in commercial real estate and lives with his wife, Jill Ballard on a lake in Minnesota. Jill retired from a career in sales management to spend more time and care for her husband. They enjoy watching the grandchildren fish from their dock and sharing in their lives. Every day is a gift and they try to live each day to its fullest.
    • CommentAuthorWolf
    • CommentTimeFeb 16th 2014
     
    The wave comes unrelenting and in a deafening roar crashes down sending bone crushing shivers through my hull; but, my little boat lifts and comes out the other side because even so the force of nature is very strong - so am I.

    Countless generations my ancestors fought through their lives facing threats I can't imagine in an unbroken chain back to the dawn of life so that I could be here - and so will I.

    I watch humanity, called by some unheard voice to where few are chosen, fall and break one after another pursuing it, believing in something more - and so do I.

    I see others surmount hardship, overcome the odds, break through the barrier, stay strong under fire, keep their head, find their way, never give up - and so can I.

    The wave comes unrelenting and in a deafening roar crashes down sending bone crushing shivers through my hull; but, my little boat lifts and comes out the other side because even so the force of nature is very strong - so am I.
  1.  
    Spent the afternoon volunteering with Hospice. Assigned a 4th grade young man. Mother lost to breast cancer, no maternal relatives, second marriage. step brothers teasing him and step father working long hours. I had him laughing and giggling playing with my iPad and proudly announcing for all to hear he was trouncing me in chess. To give a child like that 2 hours of smiles wipes out a ton of sorrows and grief
  2.  
    Marty, you are doing a wonderful thing with your *after* time. Bless your heart.
  3.  
    Proud of you, Marty*.
  4.  
    marty* that is awesome. Children are our future.
    • CommentAuthormarg75
    • CommentTimeFeb 19th 2014
     
    Marty* this says a lot about you - how wonderful that you could brighten this boy's world for a little while, and make him forget his problems. God bless.
  5.  
    Will be officially enrolled as a Support Group facilitator volunteer with local Alzheimer's Chapter next week . Between caring for MIL +DW + this forum I've found I've got a lot to contribute to ease the journey of those just starting our. I think from a therapeutic standpoint I get more benefit than the attendee's
  6.  
    Marty

    How kind of you to continue to help others along this path.

    I am certain your experience and compassion will touch the lives of others.

    What a loving tribute to your family.
    • CommentAuthorbqd
    • CommentTimeJun 6th 2014
     
    From a Breast Cancer website: " Life is Available only in the Present Moment"
    I read this to mean take each day and find something positive in it, it may be the last.

    A quote from Rose Kennedy: " It has been said that time heals all wounds. I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone"
    • CommentAuthorbqd
    • CommentTimeJun 16th 2014
     
    "Finish each day and be done with it. You have done what you could;
    some blunders and absurdities have crept in; forget them as soon as
    you can. Tomorrow is a new day; you shall begin it serenely and with
    too high a spirit to be encumbered with your old nonsense."
    Ralph Waldo Emerson
    • CommentAuthorFiona68
    • CommentTimeJun 16th 2014
     
    Love this bqd. thanks so much
    •  
      CommentAuthorNikki
    • CommentTimeOct 30th 2014 edited
     
    This sums it up pretty well for me.....


    "Well, if you can't get what you love,
    You learn to love the things you've got.

    If you can't be what you want,
    You learn to be the things you're not.

    If you can't get what you need,
    You learn to need the things that stop you dreaming.

    Oh, all the things that stop you dreaming....."
    •  
      CommentAuthorNikki
    • CommentTimeNov 18th 2014
     
    An oldie, but goodie....

    The Dash
    by Linda Ellis copyright 1996

    ​I read of a man who stood to speak
    at the funeral of a friend.
    He referred to the dates on the tombstone
    from the beginning…to the end.

    He noted that first came the date of birth
    and spoke the following date with tears,
    but he said what mattered most of all
    was the dash between those years.

    For that dash represents all the time
    that they spent alive on earth.
    And now only those who loved them
    know what that little line is worth.

    For it matters not, how much we own,
    the cars…the house…the cash.
    What matters is how we live and love
    and how we spend our dash.

    So, think about this long and hard.
    Are there things you’d like to change?
    For you never know how much time is left
    that can still be rearranged.

    If we could just slow down enough
    to consider what’s true and real
    and always try to understand
    ​the way other people feel.

    And be less quick to anger
    and show appreciation more
    and love the people in our lives
    like we’ve never loved before.

    If we treat each other with respect
    and more often wear a smile,
    remembering that this special dash
    might only last a little while.

    ​So, when your eulogy is being read,
    with your life’s actions to rehash…
    would you be proud of the things they say
    about how you spent YOUR dash?
  7.  
    Nikki this is wonderful, thank you.

    I especially liked these two verses...-

    If we could just slow down enough
    to consider what’s true and real
    and always try to understand
    ​the way other people feel.

    And be less quick to anger
    and show appreciation more
    and love the people in our lives
    like we’ve never loved before.
    •  
      CommentAuthorNikki
    • CommentTimeNov 19th 2014
     
    Coco, so lovely to hear from you ♥ This was one of the poems read at my Dad's service... glad you like it as much as I do :)
    • CommentAuthorInJail
    • CommentTimeDec 14th 2014
     
    "That which doesn't kill you makes you stronger."

    Favorite saying of my Mom who endured an incredibly horrible life and lived to 94.
  8.  
    “Whenever anybody whom we love dies, we discover that although death is commonplace it is terribly original. We may have thought about it all our lives, but if it comes close to us, it is quite a new, strange thing to us, for which we are entirely unprepared. It may, perhaps, not be the bare loss so much as the strength of the bond which is broken that is the surprise, and we are debtors in a way to death for revealing something in us which ordinary life disguises.”
    ― William Hale White
  9.  
    Always remember a positive mind and optimistic view would definitely help you face the challenges more easily. At the same time we nned to educate the masses about simple measures to delay or prevent the onset of Alzheimers . Healty habits, eating right, exercising, mental and social activeness, stress in check are few measures.Brain healthy lifestyle would reverse the brain deterioration
    • CommentAuthorcassie*
    • CommentTimeSep 9th 2016 edited
     
    Do you have a spouse with Alzheimers? If so, welcome.
    Please feel free to tell us about your story.
    But do wait until you know us a little better before you offer us advice.
    •  
      CommentAuthormary75*
    • CommentTimeSep 10th 2016
     
    Well said, Cassie.
    • CommentAuthorpaulc
    • CommentTimeSep 11th 2016
     
    In the Unbreakable Kimmy Schmidt Kimmy explains in episode 2 that you can deal with almost everything for 10 seconds, be it waiting for a parent to arrive so you can open your birthday presents or turning the mystery crank. So when you LO is difficult to deal with just count to 10 and then start counting to 10 again. Live life 10 seconds at a time.