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      CommentAuthorNew Realm*
    • CommentTimeJul 22nd 2008 edited
     
    Ya know the nerves are frayed when that flies out of the mouth spontaneously. The guilt sets in for that indiscretion which in turn makes the nerves more frayed, and the result is............... it flies out again.

    Today was stressful, on top of the past several days in a row of DH continuously challenging my relationship to our kids, where we live, when I'm going to take him back to his house, how he can call his Mother, and complaining about things the kids do that they didn't do, as well as calling the kids when they are out of the house trying to be normal, waking them up early in the morning telling them its time to get on the road to go home (teens + summer = sleep!), and a whole host of other inaccurate statements.

    In the middle of all this we had the final appt today to sign our Living Will/Trust. We had done POA's already, and all of the basics for our estate, but finally got in there to sign this stuff and have it all finalized. All week I was soooooo nervous, as DH was more confused on the simplest things, and I lay in fear all week that at this final appt, with all the time and expense, that he'd say or do something that would make just one witness/notary (all law office employees) question the validity of having DH sign anything. Thankfully all went fine.

    After the atty meeting I had to grocery shop, which is something I hate to do with DH as he fusses, gets tired, distracts me, puts things in the cart, mixes up frozen, nonfrozen, soft and hard, light and heavy stuff. I have a specific way I shop, load the cart, load the check out conveyor, load and unload the car, and put groceries away. I end up missing items on my list, having damaged groceries when I get home, and get so very exhausted. Dinner still has to be made, the kids are needing "MO-o-o-o-m." The bags of groceries are now a pot pouri of frozen stuff in with cans, soft fruits in with boxes, etc. Makes me mad, cuz my system of shopping and packing lets me get all the frozen, refridgerated stuff in first and put away, then I can relax and take my time while getting the rest put away. We live a bit rural, so when I go into town and shop it is no small amount of shopping. Not at all.

    Here I sit tonight, tired, and still getting the questions: "are we married? do you have kids? Whose kids are those? Are you their mother? Whose the Dad? how long you lived here?" Followed by "I love you, you know that." Well, NO I DO NOT!!!!!!! I want to scream out to him: "HOW DO YOU THINK I FEEL HAVING A COMPLETE STRANGER TELLING ME HE LOVES ME WHEN HE KNOWS NOTHING ABOUT ME?" I hold it in, I let it out, I hold it in again, and inside I'm screaming "JUSSHUDUP.....Pa-leeeeez. Cuz whenever you talk to me it HURTS!!!!!" Those questions. They sting so bad. That is my history too!
    • CommentAuthorJean21*
    • CommentTimeJul 23rd 2008
     
    New Realm, I am so sorry you are going through all this. My DH isn't too bad yet and I still get really irritated with him. I think because he isn't so bad I expect him to remember things and it doesn't look like it is going to happen. I also shop a certain way but most times I do it alone and just call my DH when I am on the way home so he can meet me in the parking lot and carry the groceries up the stairs....making sure he takes the cold stuff FIRST.lol I hope you have a better day today and your DH also has a better one. It must be so hard on you and your children. Take care and God Bless.

    Jean in SC
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      CommentAuthorNikki
    • CommentTimeJul 23rd 2008
     
    Diana, I can "hear" your frustration loud and clear! I am so sorry AD has taken over your life this way. So heartbreaking. I remember the stage where Lynn would fade in and out. I too remember the times that Joan was talking about where you hold it ..and hold it… and hold it …until you either lose your cool or burst into tears. We have all been where you are, or will be… keep posting , let it out and let us encourage you and give you strength. ~Nikki
    • CommentAuthorFLgirl*
    • CommentTimeJul 23rd 2008
     
    Oh, I said that a few times yesterday...too many days in a row without someone coming to stay with him. I couldn't even get to the garage to put water in the air conditioner as he was following me around all day. When I tried to go to the garage, he somehow decided to pick up a coffee cup, heading to the garage and dropped it. I ran in to pick up the smashed cup before he or the dogs stepped on it. I tried again and he opened the door again. When I shut it (hard), he stepped back and must have slipped in the water from when I cleaned up the coffee and fell!! He screams like a toddler I notice---big mouth open and baby like scream. Thankfully, he only cut his finger. I just can't take the shadowing and constant questions. And,exactly...all the questions about where home is, chasing the "men" out of the house, etc. and then he says he loves me. I say it back, but it's so silly...my DH isn't there...he's lost to AD!
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      CommentAuthorStarling*
    • CommentTimeJul 23rd 2008
     
    New Realm, venting is good.

    Wish I had good advice for you but I don't, except this is a safe place to just say all the things you can't say anywhere else.

    And yes, everyone here understands exactly what you are going through. We have all been there.
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    New Realm, glad you got those papers signed and FLgirl, what a day you've had! I haven't had the shadowing yet but just the constant repeat of questions that I've answered over and over and over drives me crazy. I just have to leave the room sometimes.
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      CommentAuthorshoegirl*
    • CommentTimeJul 23rd 2008
     
    New Realm, I hear ya loud and clear. Sometimes I just want to scream! The combination of the questions and the shadowing can reduce me to one giant frayed nerve. Then like you, I feel really bad if I say something to him. But all that steam in the pressure cooker hasta go somewhere.

    When I visited my 91 yr old aunt, who is still in charge of all her facilities, and my cranky 91 yr old uncle I noticed that whenever he said something annoying to her, she would turn her head away from him and say whatever she wanted. She had some zingers too. He can't hear very well, so he had no idea she was saying anything. Then she'd smile. So now I do that, it kinda helps :)

    I also text swear words to my sister, that helps too :)
    • CommentAuthorDuane
    • CommentTimeJul 23rd 2008
     
    Good for you shoegirl-- I can certainly identify with that..
    Duane
    • CommentAuthorSunshyne
    • CommentTimeJul 23rd 2008
     
    The one blessing, of course, is that even when we do lose it, our AD spouses usually can't remember what happened for long. (Although it certainly does help if they're hard of hearing!)
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      CommentAuthorStarling*
    • CommentTimeJul 23rd 2008
     
    Turn away and say all the really bad things you are thinking!

    ...[sigh]... He hasn't worn his hearing aids since January. Of course it isn't that he can't hear. I am mumbling...

    I think I'll do some intentional mumbling...
    • CommentAuthorMawzy*
    • CommentTimeJul 23rd 2008
     
    This is really a sad business. We have our will/estate done. POA signed years ago. Thank heaven. In the process of getting him off the road. He doesn't shadow too much. But the same question over and over again. The same stories over and over. Then the corker. It seems as if he's really with it. He'll ask a serious questions. I sit down and all set for a good conversation--like we used to have. We go back and forth (you know how it's done!) Then, out of the blue, he'll say "Who's that? When was that? Where?" and the blank stare. I ask him if he knows what we're talking about and he'll answer "Oh, were you talking to me?"

    Last night before bed, he came up to me from behind and put his arms around me. Said "Have I told you today that I love you?" Then he leaned around to get a nice kiss but he'd just brushed his teeth and hadn't rinsed or wiped his face off. I got a big wet toothpastey kiss. I had a very hard time with that. He wants me to respond with a nice kiss and an "I love you,too" but, how do you do that when you are busy wiping your face.

    very sad indeed. I'm going outside to dig up some more of my garden. We hired a guy to do some yard work and by the time he gets here, I'm going to have it all turned over. But, he can stil mow the lawn. Digging wears me out but I feel better for it.
    • CommentAuthorsthetford
    • CommentTimeJul 24th 2008
     
    I'm sorry, Folks, there is no "I Love You" there within me. I share the same house, even the same bed, but there is no love within me. Just a caregiver. Just a person to cook, clean, do the laundry, work in the yard. Oh, and work a full time job to pay the electric bill because he hasn't worked in 19 years. I want a life!!!! Sorry, I'm kinda down.
    Take care!
    • CommentAuthorSunshyne
    • CommentTimeJul 24th 2008
     
    I'm sorry, too, sthetford. How awful to have reached this point. You deserve a life, and I hope you can find ways to start building one now, instead of being totally devoted to caregiving and survival.
    • CommentAuthordivvi*
    • CommentTimeJul 24th 2008
     
    Me too, sthetford, you are at your ropes end it seems today. if you havent given thoughts to placement in a facility, maybe nows the time to see if its feasible. that way you could have some free time for just you. or if placement isnot a choice, find a way for some thing nice you'd enjoy. some days are better than others. divvi