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Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    • CommentAuthorangelb
    • CommentTimeJul 22nd 2008
     
    Trying to connect with someone who is dealing with a FTD spouse just to see how they are handling this horrible disease. My spouse is in stage 5-6
  1.  
    There are several of us here. I have actually been putting together a list. here are some names to search on. You will get a great amount of information. My husband is almost 55 and will not go to the doctor. I'm pretty sure it is FTD. This place is great.

    bluedaze, kathi37, dilly, libbysd, pollyp53, longyears, mya, bettyhere

    However, any of the folks here can relate and help you with information.

    Mary!!
  2.  
    ftd-my husband suffers from the same monster-or should I say I do the suffering and he does the raging. For a long time the intellect remains-but with the gate keeper that maintains civility gone. Because of DH's hours long rages our bank closed us out, our brokerage threatened to, our auto and home insurance canceled us and we were threatened with numerous law suits because of incredibly nasty behavior. I still feel badly about it-but what I finally had to do was to let him get completely out of control and let the police take over. Not a nice solution. For quite a while he could maintain control of his actions when it was to his advantage. He went from a psych unit to ALF's several times but kept escaping from the most secure units. He was smart and figured out how to get out. He is at stage 6-7 now and is at last at peace-I am still picking up the pieces of my life.
    bluedaze
    • CommentAuthorPatB
    • CommentTimeJul 22nd 2008
     
    ftd,
    Welcome to our group. My DH had Alzheimer’s and is currently 57. The diagnosis maybe a little different, but the turmoil is the same. I know there are others dealing specifically with FTD.

    bluedaze, as you said, “I am still picking up the pieces of my life.” I’d say that's true for all of us, whether we are dealing with an ill wife or husband, whether we know the exact cause of the dementia or not, and no matter what stage of the battle we are in. Well said.

    PatB
    • CommentAuthorMya
    • CommentTimeJul 22nd 2008
     
    My husband ia 58 and has ftd. I would say he is stage 6. Throughout our 34 year marraige he always had bouts of paranoia. I could usually talk him out of it. Things got worse in late 90's. He lost his toolmaking job in 2001and worked as a school custodian for less than a year. He was hospitalized in 2003 for "severe depression" and was seen by a psychiatrist for 3 years. Finally they sent him to a nuerologist and after testing and mri he was diagnosed in Dec, 2006. He spends most of his waking time pacing and doesn't make sense most of the time when he talks.
    • CommentAuthorangelb
    • CommentTimeJul 22nd 2008
     
    I am new to this site and I am so glad I can connect with others experiencing the same thing. This has been so overwhelming for me to say the least. My hubby and I have just celebrated 3 years of marriage and of course he didn't remember. The sad thing is that since being diagnosed just a couple of months ago it seems that so many symptoms are showing. Is it that I wasn't paying attention or is it that now since there is label on it, it is more noticeable .
  3.  
    ftd please don't burdon yourself with "what iffs". There aren't any. If your husband had been diagnosed the first minute the outcome would still be the same.
    • CommentAuthorPatB
    • CommentTimeJul 22nd 2008 edited
     
    ftd,
    I'm not as familiar with FTD, but that does seem to be the case for a lot of us here, the noticing more after the diagnosis. And, a lot of stuff we see in hindsight. It's probably both not noticing and having a label (i.e. knowing what to look for). It seems to be a continueing thread on most sites, the "wow, I hadn't realized". And, I am not sure it ever stops.

    PatB
    •  
      CommentAuthorStarling*
    • CommentTimeJul 22nd 2008
     
    I'm not dealing with FTD, but I've become convinced that there was some dementia before my husband's EVENT. People with Vascular Dementia usually have an EVENT, although it isn't always that way.

    One of the things that happens is that you see behaviour now that you know is dementia, and you realize that if you go back in time, that kind of behaviour was happening long before the diagnosis, or even before the EVENT, if there was one. It is almost impossible to diagnose someone in the early stages of the disease, so it isn't surprising that when you get the diagnosis, and you know it is already a late stage, that you look back and "see" what you hadn't seen before.