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    • CommentAuthordivvi*
    • CommentTimeSep 26th 2012
     
    when it rains it pours! sorry vickie and the the others having issues on top of AD. linda i have a very compassionate dr who does give me the higher dose knowing i will half it when not needed. it makes for less expense for the drug itself. hello! you can use half as needed or the full dose when needed so refills last longer. if i dont get the cooperation i need i found a dr who 'got it'. the last neuro i had was one of those who always asked, how can i help. i would explain the situation and he would usually agree and everyone was happy. keeping the patient safe and happy should really be the only cause of action with this disease.

    i am also seeing a bit more severity of seizure activity of late. ativan has helped quite a bit here instead of upping the neurontin.
    hope your lloyd and you get some relief.
    divvi
  1.  
    I agree, something must be in the air. My DH has been on a downward spiral for the past few weeks. He hasn"t been eating very well, I can already see the loss. Much more easily confused, wants me right in front of him all the time. I know this decline is enevitable, he was dx'd in 06 and had it no telling how long before that, but we are just never really ready for it. the person who likened it to an earthquake waiting to happen is right on.
  2.  
    Vickie, as long as you thought it was funny, that is all that matters! lol
    Divvi, our PCP is really good about letting me have whatever I want. My issue is getting past the office staff who answer the phones without having to take him in. It is so-o-o hard to get him to the doctor's office. Our PCP wrote his very first scrip for Marinol with us. We aren't using it anymore, but it was good for a while until he needed 5mg. We just can't put out the $500 per mo. for that. I got a refill for the 2.5 and only use that in emergencies. I just wish I could get him off that last 10mg Namenda. I've tried, but to no avail.