The VA social worker called the Visiting Nurses Assoc. and asked them to come and evaluate my dh. I had one on Monday, one yesterday and 3 today. They all seemed in agreement that if I agreed my dh should really have Hospice take over at this time. Not the end of life Hospice but the kind that comes and makes sure his medications are correct, teach me how to do various things, help with showers, and be there for me 24/7 if I need help. They think my dh is now at the stage that further downward movement could be more serious and more difficult for me to handle. Such as, probably falling, toilet problems, bathing problems, eating problems. It seems they felt his walking was not really good and he was limping on one leg. Also, they will offer me respite care for 5 days at a time as I feel I need it. They all were so very nice and could see I am a basket case. They are also going to suggest to the Hospice people to try get some volunteer help for me to keep my dh company so I can get out more.
I was so impressed by all of them. They were so kind and caring. It was just a refief to talk to these trained people that expressed support for me...and understood why I needed help and support. My dh liked them and agreed to everything they said. They talked to him about respite care for me and he seemed to know what they were talking about, but he probably will forget what they said, if he hasn't already forgotten.
They will be sending someone here once every week to fill the containers for my dh's medication. They also will keep track of his meds and order them as needed. All I will have to do is give them to him.
JudithKB, the Hospice services we received for George were wonderful....all the staff was so supportive for me and my family, as well as my DH. And they were available anytime we had a question or a problem.
JudithKB, this seems like it could not have come at a better time. Though I am amazed at how quickly things change, I am so relieved for you and know that this is going to help you immensely. Hang in there dear friend we are all pulling for you and him.
Thank you CoCo...as much as a hate to see him on a down hill slide, it is not any surprise to me. He had been very stable with just small things changing weekly, nothing really major, major...so he was due. It is the help they will bring for me that I was most interested in. With the Hospice Care I will be able to call them and have someone here 24/7 and that is better then the ER when we all know there really isn't much they can do for him. The Hospice also has their own doctor and if need be they can contact him for change in meds and/or assistance.