Hi everyone...It is with great saddness that i share about the passing of my husband. He was only 49 years old and was diagnosed with EOAD 3 1/2 years ago and I have 2 daughters, ages 12 and 15. I placed him in an alz assisted living facility 6 months ago. Didn't realize we were facing the end although I think the signs were there but my protective coping skills kept me from seeing them ...i just kept trying to problem solve. His eating was getting worse, lost significant weight, and was beginning to have extremely high fevers that were unexplained. Up until 4 days before he passed he was still walking independently. It is heartbreaking to think that he is no longer with me. I continue to struggle with the reality of it all and feel like I'm in a "fog". I relook at his death certificate and it just doesn't seem like it should have his name on it. I share this only because it may help someone else in some way as this sight has helped me in the last few years.
Jlj, So sorry to hear of your loss of your much loved Husband and Father to your two girls ,so sad to lose him so young .Sincere Condolences to you jlj and your family ,God Bless (((hugs)))
jlj* it is always a shock to see the *. You are (were) both so young. I am so sorry for you and your family. You are a gracious lady to want to help others in your own time of sorrow.
My heart breaks for you and your children, jlj*. So very young to go through this. May you all find your peace, now he has found his. Prayers for strength to carry on. Thank you for sharing this.
jlj: Sorry for your loss at such a young age. Maybe when you feel more composed you could come back and tell us about your total experience. It would be a great help to us that also have husbands who have EOAD and it maybe helpful to you also to have someone to listen to your experiences. We are and always will be here for you.
This disease shows no mercy. I am sorry to hear of your loss at such a young age. I think they should focus the funds that they are talking about at Early Onset, that way if they can stop it early there will be much more benefit.
Please accept my thoughts and prayers to you and your daughters, jlj....thank you for sharing your experience with us. Please continue to post and let us know how you are doing.
I am so sorry to hear of the loss of your husband. I am so sorry your girls lost their father....thank you so much for giving of yourself at your time of loss. I am praying for you and your daughters for peace and comfort. Take care of each other....
My H was dx at 49 and has lost his career and identity (FTD). He is now 52 and I grieve these years that were supposed to be the culmination of his career.
How can we, in most cases, know when the end will happen? Blessings to you and your daughters. As mammie said above; wishing you comfort and peace.
What a loss you and your girls are suffering. I wish I could lighten the load for you. We are all finding out the hard way that life isn't fair. God Bless You.
So sorry to hear of your loss. May the love you have for each other and knowing your hb no longer suffers heal your broken hearts. Prayers for you and your girls.
So so sorry to hear of your loss from this horrid disease. It is such uncharted waters how can you really know exactly what was going on. I am praying for you and your girls. Really..... if you need anyone to talk with feel free to email me.....my hubs is now 48. dx at 46 and I have a 14 year old daughter and a 17 year old son. I know it is so hard at this stage of life!!!!
I am so very sorry, I pray you are able to find strength and comfort from those around you and may you and your daughters find peace in the months ahead. My love and prayers to you......
We also have a 15 year old daughter and life for them is not easy. Special prayers for your girls.
jlj, I am saddened to hear of your loss-such a young man! May you and your daughters have strength to get through these hard days ahead. Prayers for all of you.
jlj--With time you and your girls will move forward into a new and different future. I just Placed my DH--he's 69--a different kind of loss. But, I also lost my Dad at 50 due to a hearnt attack. My Mom was 44 and there were 7 of us kids--the youngest were 8 and 10. No one can know exactly how, but you will make it through. Be gentle with each other. And remember. Remember all the good times. Keep in mind that your Caregiving got him through with dignity and love, and he will live on in the hearts of those he loved and who loved him. You made that possible. Be proud of that.
jlj, my thoughts and prayers are with you. Our arms are around you. May you find the strength to get through this and also to raise your daughters alone during their difficult years. The road is not going to be easy, but we are here for you when you need us.
Thank you ALL so much for your kind words and support. It appears there are a few others with children about the same age...wonder if that would ever be a possibility to allow the children to connect with each other on this board??? This is definitely not something my daughter's friends can relate to. Not even sure if my daughter would want to communicate with others this way. Thinking about starting an 8 week grief support class for young widows with school age children. Just not sure if I'm ready for that OR if now IS the right time???
jlj--On the Home page to the left scroll down a ways from the link to these boards. There are 2 links to support for young teens dealing with Alz in their parents or other relatives. Check them out.
jlj*, I am so sorry for your loss. My heart aches for you and your young daughters. Is there a grief program you could all join together? Just trust yourself, you will know when the time is right for you. ((hugs))
jlj....what a great idea to start a support group for young families. Contact your local Alz group to see how you can help. Prayers for peace for you and your family.