I have to first apologize for not posting after first signing on and introducing myself in 2010. I found it most difficult to explain what I was going thru even tho I so identified with much of what was shared here. I wasn't sure what my husband, Jeff, had. Many of you posted your spouse's symptoms and I could definitely identify, but not sure why i couldn't bring myself to talk about it. He died on January 17. Still not exactly sure which variety of dementia he had - I think PSP. First dx was FTD, then probably AZ, then maybe CBD or PSP. It was so confusing! I came to this website because I wasn't sure where to turn. I can truly say that you all have been such a support. Most of what you all encountered in your journeys, we did too. Incontinence began in August 2011 then such a rapid decline, it took my breath away. I began in-home help around that time, had hospice beginning in Dec. 2011. My husband died in a hospice facility after spending the previous night in his own bed. He developed pneumonia. What has been posted here I found to be true - we tend to wait too late to do anything....bring in help, or take steps to get in-facility help, bring in hospice. I thought it was too soon....it was really too late. Jeff was dx'd in 2008 with dementia. He died January 2012. Thank you all for your help. You are not even aware of how much help you all were.
sisrael, my heartfelt sympathy to you and yours during this terrible and difficult time. Please stay here for any help you might need. May you find peace as he has found his.
sisrael so sorry to hear of your DH losing his battle so quickly. i know its such a shock when things move so fast and we are never ready. condolences to you and your family. divvi
Sorry you had to go through this. We all are on the same journey and this place is such a help to all of us. Keep coming back as you need to for comfort and help getting through your grieving experience.
It also took me several months after registering to post. Nothing about the forum, where the posters have been so supportive; just my own lack of being able to share and trust. For me, I was afraid of letting my sadness and anger be heard.
I just want to extend my sympathy to you and to echo what others have said here.
sisrael, so sorry for your loss. I pray you find peace in the knowledge that he is not suffering anymore. Now take care of yourself & stay with us, we need you.
So sorry for your loss. I know exactly what you went thru, but, you have finished the journey that all of us must take. Take care of yourself and get some enjoyment out of the rest of your life.
So sorry for your loss and all you had to endure..We are still in the journey but there are some here who have earned the * as you have so whenever you feel like talking there are understanding folks here on both sides of this journey who understand.
sisrael: Whenever I read of a passing, I'm so sad. Especially knowing what you and we all have and are going thru. My warmest, kindest thoughts to you and wishes for sunny days that you deserve.
You are all such great people...I hope I can help you in some way. As I mentioned previously, you've all been inspirational to me. My prayers are with each of you in your unique journey. May God bless.