After a short hospital stay due to impacted bowel we are now entered into Hospice Care. He now weighs 128 lbs. and just on the fact that he has lost so much weight they have qualified him. All the nurses at the hospital kept commenting on the fact that I take care of him on my own. Kept asking me how I do it but I never found it to be such a hard task. It is the verbal comments that were the worst. Those have subsided so hopefully he can bow out gracefully. THis could last for sometime so I am trying to calm our kids that it doesn't mean he will pass tomorrow. Glad I have this site to know theses things.
I'm so sorry. Has your DH been losing weight all along? My DH has been losing weight for 3 years now. He is down to 230, he was around 280 when he started losing. So much muscle gone it seems. I will keep you and your family in my thoughts and prayers. Hugs....
It looks like my wife has started on the next phase. She has been reasonably stable for the past year. She did show some deterioration during the summer when I had my surgery, but seemed to come back. Recently she has decreased her eating. We can't check her weight since she won't get on the scales. Then the past few days it has been harder to get her to stand up and walk. This morning she sat on the toilet, not doing anything, for at least 15 minutes. It took 2 of us to get her up. When I got her to day care, she wouldn't get out of the car. Usually she gets out easily since she enjoys day care. With help we got her out. She is also sleeping a lot more. When I get her back from day care, about 2 PM, she gets in her recliner chair and sleeps until time for dinner. The only "good" side of this is that I don't spend so much time chasing her as she wanders about. She is also sleeping more at day care. She still sleeps through the night without any problem.
Odd how these changes come about but differently for each person. I see what you are saying..My DH is sleeping more, napping, sleeps through the night,thankfully no P&P problems yet. Walking is slow most days though when he is more rested it seems a bit better.Grooming getting much harder to corral..getting him to shower and just take a hair cut...I am not going to pester him about the hair cuts and showers before appointments with doctors...I want them to SEE what is going on..( doctors other than the neruo who does get it) with him. Oh and eating..it is getting to me...what to even think about fixing anymore..if it isn't sweets he has little interest in much of anything..Tried smoothies, Boost, other things like that....he used to make a snack for himself and now unless I do it for him he won't even bother cuz he doesn't even know if he is hungry onr not.
Phil, may God grant you peace and you start this phase of the journey. IF all else fails, sometimes babyfood with a thickener is tolerated. Each seems to tolerate foods differently.