Welcome to my website, which I started in 2007, because I needed a place that dealt with my unique issues as a spouse of an Alzheimer patient. It is now a place of comfort for spouses/partners who are trying to cope with the Alzheimer's/dementia of their husband/wife/partner. The issues we face in dealing with a spouse/partner with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse/partner.
Both of your husbands are part of the EOAD (Early Onset Alzheimer's Disease, now called YOUNG onset) group, a rapidly growing segment of the Alzheimer's population. Although we all share many of the same emotions, issues, and problems unique to Alzheimer spouses, Young Onset members have their own set of issues. An excellent resource for you is located on the home page - www.thealzheimerspouse.com - left side, where all of the valuable resources are located. Scroll down to "Early Onset Dementia - A Practical Guide. " There are also 3 other sections on EOAD - two of which focus on young teens living with a parent with Alzheimer's Disease. There is also a section on informative videos. You can go to the top of this page, click on "search", and type in EOAD, making sure the "topic" circle is filled in. All of the EOAD discussions will come up - there are about a dozen of them.
The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. In addition to the EOAD guide, I highly recommend "Newly Diagnosed/New Member" and "Understanding the Dementia Experience". Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. There is a "search" feature on the home page that allows you to look up different topics that I may have explored in a previous blog. Log onto the home page daily for new blogs; news updates; important information.
It has been interesting to me the number of EOAD families on this site, particularly since EOAD is a small minority of cases of AD. I think this is probably because younger spouses (spice) are more comfortable with the internet than those of us who are pushing, or passing, 80.
Kadee, it looks like we need an update on the ages.
Thank you for the welcome....I will be on the site again when I have more time. I have to say I went to sleep last night feeling better than I have for quite some time knowing this site is available to me, as I have struggled with a feeling of isolation because we are so young and our issues are unique. Thanks again!!!
Marsh--I have always thought that the same reason has probably skewed the ages of the members here on the "young" side. Whenever Kadee posts it, I'm always surprised to see how many are in their 50's and 60's.
We love you 'old' folks too. One of the workamper couples this year are in their mid 80s. She got a new smartphone/iphone - one of those new toys - and played all the time with it. I told her I was surprised to see someone her age doing that and her comment was: my husband won't touch any thing computerized but I love all these gadgets!
But I agree Marsh - overall the over 65 tend to shy away from the internet. I am glad you and the others here have not. We value you all very much.