I don't know if anybody has this and perhaps if they do they are better caregivers than I and can handle it. Gord makes noises. He moans,groans, sighs, makes shivering noises, Darth Vader noises and sounds like he is in labour. These noises are like fingernails on a blackboard to me. Then there is the crying. He sobs and wails. I can't walk away from the noises because he follows me. There are times when I feel great compassion for his crying but there are times when it is all I can do not to scream. I have to have a coping mechanism but have not found one yet. Of course, the noises indicate that agitation is coming and as they become more intense, the agitation is here and will soon be followed by crying or anger. Help!
jang if he is experiencing all that you say, i'd say his medications are not up to par. hes obviously fearful, anxious an maybe delusions and paranoia are keeping him in this state. call his dr and explain all that you have said and he should be able to tweak his meds to see if something else helps. if he is on meds they arent the right ones if hes continuing this behaviour. when you find the right ones, he will be calm and more relaxed. divvi
He has been like this for months. He was like this pre-seroquel and still is. Not a day goes by that we don't have this at least a couple of times a day.
seroquel doesnt work for everyone. my DH got very much more anxious and aggitated when we tried it. many times here we see that even if a dr prescribes a certain med that had success with one patient it doesnt work with another. if you tell the dr hes like this he should try another drug to see if it helps or add another to the mix for better results. if hes pre=post seroquel like this, it isnt working well for him. divvi
jang--I believe you said on another thread that your husband cried for you all through his stay in a geripsych unit. It sounds to me like his meds weren't adjusted properly--by the end of the stay, the crying should have stopped. That plus the noises you described above indicate he needs another med adjustment. If his current doctor isn't responsive/capable, I would look for another doctor.
the psychogeritrician was an idiot. He didn't agree with my bringing Gord home and he would not have given him anything until I asked. Our own psychogeriatrician is a great guy. I will e-mail him and tell him about all the noises and the crying.
This may all just be part of his AD, but sometimes AD individuals have pain that they cannot clearly describe. They can get UTI's or tooth problems, maybe this is part of it. There's lots of info if you search 'pain + alzheimer's.' But, absolutely, something has to be done, hopefully soon for both of you. Let us know.
Jang, I am so sorry for the both of you! Pain would be my biggest fear, I hope it is "just" part of the disease for him. Lynn did have the crying, ripped my heart out!!! But he never had the noises you describe. I hope the doctor is able to help soothe him. ((hugs))
Hi Betty and Nikki, I worry about pain but this has been an on-going thing for months. I really don't know how long. I have told the doctor about it but perhaps I have just passed over it lightly.
I totally agree with divvi, I personally know people that can't take anti-depressants or anti-anxiety medication because they actually respond totally the opposite of what the medication is suppose to help. I hope things get better for him after checking his meds. Sometimes, at least I do, we are so busy with the job of caregiving that we have trouble seeing just how much stress our LO's are in. They have their own brand of stress even if they can't verbalize it or even know what it is, it doesn't change the fact that it does exist. Keep coming here and talking to us, we will help keep you sane.
My husband was first placed on risperadone and that did the opposite of what we hoped for. Seroquel did help. Each person is different in their reaction to meds.