Marsh, since you've been there you know the drills. Listen to your doctor and do your PT! Make those numbers! I had mine done about 4 or 5 years ago. Hope it never wears out on me.
When you finally get internet again Marsh you will see all the get well wishes and how much people here care for you. Hang in there.
I am back from my 4 day respite. Our son said he does not know how I do it everyday. He didn't get much sleep and said he thinks I should get 24 hour help....easier said than done. But now he knows.
phil4:13, how wonderful that your son was able to stay with your DH & then realize how much “work” it is. Did you have a good time? My daughters come & stay with their Dad so I can run errands. I also agree that getting in home help is easier said than done. First, the person has to be a good fit & next ya have to find the $$$$$ to afford it. My daughters stay with
Just returned from a visit with my sister in law from my first marriage. It was wonderful to visit with her and relive some happy memories from our time as young wives together. My first husband was her brother. He husband battled cancer while their son was in Iraq and through it all she was one of my strongest supporters during my journey with Charlie. My hat is off to her.
Nikki, our son was well aware of the difficulty I dealt with each day he just didn't realize to the extent. He likes his sleep and didn't get much.
ElaineH, I have someone come in 8 hours a week (2 4 hour days) while I go to Aqua therapy for my back but ow have added an extra 4 hour day just for me to relax. SHe is very good with him and I am glad for him. I am getting to my maximum $$$$ limit. Thankful we have some money to spare.
Today is our 34th anniversary and DH is still in the geripsych unit. His daughter is visiting him today, so I have decided to "take the day off" and go fix up his room at the ALF where he will be living once he is released this week. Keep your fingers crossed!!!!
marylin, our 8th anniversary is Tuesday and he doesn't even know we're related. Thinks it's strange that we have the same last name. Last year I told him it was our anniversary and he went downstairs to the gift shop at our retirement facility and bought a card, signed it, gave it to me and when I opened it I saw that it said "Happy Birthday." That was actually an improvement on the year before, when he didn't know why there was a balloon on our front door that said, Happy Anniversary. Even after I explained he just didn't 'get' it. So I guess this year won't be as hard because I don't expect anything.
Have been enjoying watching the old Barbara Mandrell shows. Hb is laying back on the bed watching something. It is so hard to see him bored. My ankle has been sore for 2 weeks now - I tried a walk around the park last night but today I am paying for it. Short walks and walking around behind the counter at work does not seem to bother it that much - just the longer walking even at a slow pace. And it is too hot to be walking around outside anyway. I know - it is only around 90 but until this evening he has to stay in - I don't want him out in the heat.
Since we only have 30 amp at our site we can only run one a/c which will keep it around 82. I should have pushed for the 50 amp when we arrived but I wanted to stay next to our new 'friends' who are no longer our friends. As soon as they got the chance to move to the site they want for the winter, they moved seemingly without a thought about us. I know have concluded that they wanted away from hb and his repeating and forgetting even though they at first said it was no problem. There were a couple times hb got upset with the husband cause he forgot he had already helped him. The husband took it personally and did not like it.
I have tried talking with them about the sudden move and a few things that happened at work (they both work in the office) but see nothing they did wrong or how it could have been taken differently. I finally sent her an email apologizing for over-reacting, etc. They seemed to accept that because yesterday they were driving out of the park smiling and waving. I have to work with them but fortunately not at the same time. I am determined with God's help to let them go and move on - have to. I am at peace with it and feel it is the best thing I can do. I have more important stuff to do like figuring out where we will be this winter. I sent a resume out for a part time bookkeeping job here in town where I can set my own hours. I think working in the mornings (as much as I hate getting up) would work best cause then I would be home not long after he gets up moving.
Charlotte, this might be right off the wall, but I remember thinking when you first mentioned the change of heart shown by your friend that it was the husband, not her, and that he didn't want her to spend so much time with you. I've been in that boat. It was a fear and a possessiveness that went that far, probably because his first wife was influenced by her feminist friends, to his detriment.
Charlotte, I so admire you! You remind me of the energizer bunny……. Not because you have so much energy, but because you just seem to keep on going. (I can almost hear you saying, “Well what choice do I have?”) From what I have read in the your posts, you have been knocked around pretty much in this life, but you just seem to just pick yourself up, dust yourself off & keep going. It isn’t easy dealing with everything this disease throws at us & I just want you to know that I admire how you handle things. ((HUGS)) !
You are right Elaine - what choice have I? I have fought depression all my life, got better but now back down. I got a call from that research group the other day and they said I was too depressed to participate. She said I need to talk with my doctor and get on medication. I asked her if she was willing to pay for it cause I have no doctor, insurance or money to pay for it. Said she was sorry and hung up. She did say I was welcome to use their program once developed.
Yes, even though depressed, you get back up and keep going. We all are doing it here because we have no choice.