I see that you are new to us. I want to welcome you to my website. You have come to a place of comfort for spouses/partners who are trying to cope with the Alzheimer's/dementia of their husband/wife/partner. The issues we face in dealing with a spouse/partner with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse/partner.
The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. I recommend starting with "Newly Diagnosed/New Member" and "Understanding the Dementia Experience". There are 4 sections for EOAD members, which, from the sound of your post, probably applies to your husband (diagnosed under age 65) - two of which focus on the young teens whose parents have EOAD (early onset AD). There is a great section on informative videos, and another excellent resource - Early Onset Dementia - A Practical Guide. You can go to the top of this page, click on "search", and type in EOAD, making sure the "topic" circle is filled in. All of the EOAD discussions will come up - there are about a dozen of them.
Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. There is a "search" feature on the home page that allows you to look up different topics that may have been explored in a previous blog. Log onto the home page daily for new blogs; news updates; important information.
Tell us about yourself when you feel comfortable doing so.
Grendelsma, welcome to your new virtual support group. You can come here anytime to talk, vent ,cry & read. The good thing is that we ALL understand. We have either been there or will be soon. Please come back often. We need each other!
Welcome and I am sorry you have to be here. But you will never find a more caring, non-judgmental, loving group of people in your life. Ask anything and you will get many hugs and much support.
Welcome Grendelsma. its so nice to see new members but under the circumstances we know you'd/we rather not have to be a member dealing with AD/Dementia. if you want to talk, rant, or ask questions there are so many who are ahead of you or already crossed over with their journey as caregiver. many who are just starting with their spouse and we all need one another. feel free to join in any conversation. divvi
Welcome, Grendelsma! We are sorry for your need to be here, as Divvi says, but you have surely landed in a soft place. Everyone here is caring and non-judgmental. You can tell us how you really feel. And, yes, anger is an emotion often felt before our spouses decline to the point where pity and compassion take over. Til then, try to find ways to take care of yourself, it helps.