I don't understand why Kaiser (and others) do not believe AD is as bad as Cancer. No one seems to really understand that this is a disease that gets worse and not better. A few months ago, I found that Kaiser has a Pallative Care program (same as Hospice only last about a year instead of 6 months) and our Dr. knew nothing about it (so I gave him a copy of the pamphlet). Anyone have any ideas or suggestions on how to keep getting the necessary help needed to keep LO at home?
And keep on educating Kaiser and your doc with all the information and documentation you can find...do you have anything from a Neurologist that would help you?