My name is Lee. My husband was diagnosed with dementia two years ago. I recently took him out of a facility and brought hime home to live with me and or two twin sons who are 15 years old. The last three years have been a night mare. I've had no support from my family or his. My husbands family are well off and are able to assist, however they are not willing to do so. I recently resigned my position in order to care for my husband. I could not watch him suffering in a facility and where he is not treated as a human being.
Anyway, I have not even touched the surface of my story as to what has happened. I just wanted to communicate with someone who understands exactly what I am talking about. Thanks for taking the time to read part of my nightmare.
Lee, you have landed in a soft place where we will understand, give you encouragement, advice(if asked for!). So many here have walked the walk for a long time, so feel free to rant and vent. Tell us more about yourself and husband when you feel up to it. We also give lot of hugs here!
Hi & Welcome Lee, I am so sorry for your need for this forum, however, I am glad you found us. As Vicki commented, we DO understand and will give encouragement & advice. I just today, put in my 30 day notice to the ALF my husband has been staying in since March of last year, that I will be bringing him home. He does have good care, however, funds are not available for him to stay much longer. Again, Welcome.
Welcome, Lee, with warm cyber hugs. This is the place to find comfort, advice, and just feel free to say whatever you want. Joan has created a place for friends to meet who share a common bond: dementia.
Welcome Lee, my friends have said it all and I am sure that soon you will feel that they're your friends too. Hang on to the dementia caregivers rope and we will swing together. {{{hugs}}}
Hello and welcome Lee. many here have nightmare stories of their journey with Alz disease/dementia. whatever your decisions to bring DH (dear husband) home, i am sure you will find lots of handson suggestions and info so that its a less stressful experience now. unfortunately, yes there are many facilities that are not up to par and our loved ones suffer from their inexpertise and lack of caring. i hope you find comfort here among your many new friends who know how you are feeling. many here also have young kids teens at home so they will chime in and give you some pointers. we also know first hand about lack of family/friends non support. we rely now on our cyber friends for much of our needs. divvi
Welcome to my website. You have come to a place of comfort for spouses/partners who are trying to cope with the Alzheimer's/dementia of their husband/wife/partner. The issues we face in dealing with a spouse/partner with this disease are so different from the issues faced by children and grandchildren caregivers. We discuss all of those issues here - loss of intimacy; social contact; conversation; anger; resentment; stress; and pain of living with the stranger that Alzheimer's Disease has put in place of our beloved spouse/partner.
The message boards are only part of this website. Please be sure to log onto the home page - www.thealzheimerspouse.com - and read all of the resources on the left side. I recommend starting with "Newly Diagnosed/New Member" and "Understanding the Dementia Experience". You did not mention the age of your husband, but I am guessing, since you have 15 year old sons at home, that he is young for Alzheimer's Disease. Early or Young Onset Alzheimer's Disease is defined at aflicting those under the age of 65. There are 4 sections for EOAD members - two of which focus on the young teens whose parents have EOAD (early onset AD). There is a great section on informative videos, and another excellent resource - Early Onset Dementia - A Practical Guide. You can go to the top of this page, click on "search", and type in EOAD, making sure the "topic" circle is filled in. All of the EOAD discussions will come up - there are about a dozen of them.
Do not miss the "previous blog" section. It is there you will find a huge array of topics with which you can relate. There is a "search" feature on the home page that allows you to look up different topics that may have been explored in a previous blog. Log onto the home page daily for new blogs; news updates; important information.
I am sure you will find the support you are looking for here. Visit often.
Welcome, Lee, I have found friends and a sense of family here. We will understand when you need advise, encouragement or just a need to vent. Whatever your problem is someone has been there and will be more than happy to talk to you about how they handled it. We try to find some smiles along the way.
Welcome to bobby1! under where are you from thread. bobby1 glad you found this site. its a very good source of info as you know if you have been reading. if you can, let us know about you and your spouse, we are one big family who care about each other and strive to help one another get thru this disease intact. divvi