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Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

    • CommentAuthorJazzy
    • CommentTimeFeb 16th 2015
     
    Welcome katlady

    I'm from Ontario Canada.
    There will be lots of folks coming on to welcome you. You have found the right site for support and some good advise and lots of hugs.


    Hugs

    Jazzy
  1.  
    Hi katlady. Welcome to the most helpful support forum ever! I have been a member almost since it's beginning and never would have made it through the almost 13 years before my DH died in 2013. We lived in Lakewood, DH was with the Cleveland Clinic; then retired to Kentucky in 1986. After his death, I sold my house and have relocated to FL near my sister. Tell us more about your situation and there will be lots of support here.
    • CommentAuthorjunebug2
    • CommentTimeMar 12th 2015
     
    I am close to Fort Smith, Arkansas
    • CommentAuthorOnewife
    • CommentTimeJun 9th 2015
     
    Deb112958 I'm from downers grove il . Great support group meets in elmhurst for young onset . My husband 58 was ex w Lewy body 6 mo ago.
    • CommentAuthorGawker
    • CommentTimeJun 21st 2015
     
    Rochester, MA near Cape Cod
  2.  
    winnipeg, manitoba, canada
    • CommentAuthorcharlee46
    • CommentTimeAug 1st 2015
     
    Idaho Falls, Idaho
    • CommentAuthorBluTbell
    • CommentTimeAug 8th 2015
     
    Hello - We live in Texas.
    •  
      CommentAuthorCharlotte
    • CommentTimeAug 8th 2015 edited
     
    welcome BluTbell. I see you have been with us since 2013 but not commented much. I looked up earlier post and see you are one of the younger ones. How are you both doing now?
    • CommentAuthorBluTbell
    • CommentTimeAug 9th 2015
     
    Thanks Charlotte. Yes, my husband will be 59 this month and I am 47. The last two months have been have been rough. DH seems to be in stage 5 and some 6. Thanks for asking ;)
    • CommentAuthorbobbie
    • CommentTimeAug 12th 2015
     
    I am from West Texas. I wonder if every state is represented here? Bobbie
    •  
      CommentAuthorCharlotte
    • CommentTimeAug 12th 2015
     
    At one time a few years ago someone did up a sheet showing the states everyone was from. We also have ones from Canada, England, Australia and other countries.
    • CommentAuthorSass
    • CommentTimeSep 22nd 2015
     
    I live in north Florida
    • CommentAuthorozarkhiker
    • CommentTimeMay 23rd 2016
     
    Arkansas
  3.  
    Washington state
    •  
      CommentAuthorCharlotte
    • CommentTimeJun 10th 2016
     
    Welcome - I live in Richland - the sunny side of the state!
    • CommentAuthorHeidi
    • CommentTimeJul 13th 2016
     
    Lets make it international, I'm from Switzerland , but grew up west of Toronto
  4.  
    Heidi, my husband was Swiss, from Zurich. He passed one year ago. I am from Nova Scotia. Is your husband Swiss? Very sorry you had to join this group, and he is so young. People here are very helpful and compassionate. You will get lots of help.
    • CommentAuthorHeidi
    • CommentTimeJul 26th 2016
     
    Yes my husband is Swiss. We live an hour from Zürich. The Infusion treatments that he recieves
    are Right by Zurich. The forum is very good I'm just not used to forums and have to get the Hang of it.
    Sorry to hear that your husband passed away, i hope that you are doing well.
  5.  
    Hi Heidi,
    We made our last visit to Switzerland in the fall of 2011 - my husband already had problems, but we managed the trip, and he so enjoyed seeing his country again and connecting with relatives and very old friends. Then we went up into the mountains, which he loved. I am so happy that we made that trip.

    This forum is very helpful, and you can depend on people responding when you ask for help. Just sorry that your husband is so young. Alle beste going forward.
    • CommentAuthorHeidi
    • CommentTimeJul 27th 2016
     
    I'm so happy that you enjoyed that trip. I'm sure that was great for your husband. In the fall my sisters and I fly home to visit our parents in Toronto (and the husbands look after the kids). This fall I'm taking my husband along and he is really looking forward to it. Good friends will help out with our children who will stay at home. My husband and I go hiking a lot too, it's a good way to spend the day!
    • CommentAuthoraham
    • CommentTimeDec 30th 2016
     
    Southcentral PA.
    • CommentAuthormyrtle*
    • CommentTimeDec 31st 2016
     
    Hi aham, Welcome to the site and don't worry about just lurking, although I hope you'll join in the conversations at some point.
  6.  
    Hi aham, I am in southern Chester County, 5 miles from the PA, MD and DE lines.
  7.  
    I live in Toronto, ON, Canada, and was born and raised in Winnipeg, MB, Canada.
    • CommentAuthorRodstar43
    • CommentTimeSep 14th 2017
     
    Hobbs, New, Mexico 2016 to present

    Before that:
    TEXAS 2007-2016
    Idaho 2003- 2007
    Utah 2003 summer 6 months
    Florida 1999- 2003
    California 1978-1999
    TEXAS 1973-1978
    Japan 1969-1973
    Florida. 1967-1969
    Viet Man 1966-1967
    Florida 1964-1966
    Alaska 1962-1964
    TEXAS 1961-1962
    Florida 1946-1961
    Georgia's 1943-1946

    Is that enough for you?
    •  
      CommentAuthorCharlotte
    • CommentTimeSep 14th 2017
     
    Great job Rodstar. Sounds like me except ours was not military moving but just moving.
    • CommentAuthorRodstar43
    • CommentTimeSep 14th 2017 edited
     
    Retired from Air Force 1984, could not stop moving. Did not include states with less than 3 months. I have only been in New Mexico 20 months.
    • CommentAuthoryankee
    • CommentTimeSep 20th 2017
     
    Yankee here,
    Newbie from Marietta, Ohio
    Originally from Quincy, Massachusetts
    •  
      CommentAuthorCharlotte
    • CommentTimeSep 20th 2017
     
    Welcome Yankee. My husband is from Wilmington, MA but we live in Tri-Cities, WA - the east side of the state where it is desert.
    • CommentAuthorRodstar43
    • CommentTimeSep 25th 2017
     
    I Always like your comments Charlotte, and I have question for You. I Finally got to reading about caregivers on this web sites and realized that I do not have a bracelet or some card in the car saying I am the caregiver for Diane in case I get another TIA or other debilitating illness. I. Am that 24/7 Caregivers a n need eemergency help should I not be. Able to talk. Where can I get bracelet to say I a caregiver for AD person. Also, I Drive us around to doctor appointments etc. Who in the police would I notify about my circumstances? What about a card in wallet. What to say. I am not gun ho about bracelets but what other choices are they?
    Help?
    • CommentAuthorRodstar43
    • CommentTimeSep 25th 2017
     
    I Always like your comments Charlotte, and I have question for You. I Finally got to reading about caregivers on this web sites and realized that I do not have a bracelet or some card in the car saying I am the caregiver for Diane in case I get another TIA or other debilitating illness. I. Am that 24/7 Caregivers a n need eemergency help should I not be. Able to talk. Where can I get bracelet to say I a caregiver for AD person. Also, I Drive us around to doctor appointments etc. Who in the police would I notify about my circumstances? What about a card in wallet. What to say. I am not gun ho about bracelets but what other choices are they?
    Help?
    • CommentAuthorbhv
    • CommentTimeSep 26th 2017
     
    Rodstar43, I have a card in my wallet that says I am caregiver and who to notify in case of emergency. If something happens the firemen or police will look for your wallet. You can put a contact in your phone called ICE for In Case of Emergency. However your phone should be pin protected so that might not help. At home I put info under ICE in my address book next.to the phone. You could also write stuff on an index card and put in the car with registration.
    •  
      CommentAuthorCharlotte
    • CommentTimeSep 26th 2017 edited
     
    Do you wear a watch? Someone one time told me about a 'watch' that carries a computer memory card that has medical records on it. All EMT or hospital ER has to do is pull the card, put in their computer and have all your medical records. I like that cause you can also have your POA, living will, etc all on the chip.

    Garmin fit-bit. Is what it is.

    As for the Medic Alert they have other options besides bracelets. They have a leather bracelet that is like a watch band. They have the necklace like dog tags and also one that goes on your key chain.

    I also have my DPOA and my husband's listed under ICE in my phone. I also carry his DPOA in the car glove box and have a copy sitting in the feed tray on my printer - easy to reach. I also have a notebook for whenever I get around to using respite that has a copy of the DPOA and the POLST form.
    • CommentAuthorWally
    • CommentTimeOct 2nd 2017
     
    Just stumbled onto your site. My wife was diagnosed 6 years ago and has been in a Alzheimer’s Home for the past 1.5 years. We have been married for 53 years and I am lost without her.
    We are living in Eugene Oregon...we are blessed with tremendous support in Eugene.
    I am looking for additional spouse support information
    • CommentAuthorRodstar43
    • CommentTimeOct 2nd 2017 edited
     
    welecome Wally, some have been on this site awile and, some like me only found this group a month ago.
    I have been from all over inculding time in Oregon. My dear wife (DW) and I have logged 55 years an she was dianosed 7-8 years ago. Recently, Parkinson's and cancer have added them seves to the list.

    You are not alone. Some member have gone all the way. It helps to folllow other stories. It helps to realize that as a group, caretakers of spouses is different and it takes a special fortitude to survive!
    • CommentAuthorMickey
    • CommentTimeOct 5th 2017
     
    Mickey .New member from Lafayette Louisiana
    •  
      CommentAuthorCharlotte
    • CommentTimeOct 5th 2017
     
    Welcome Mickey.
    • CommentAuthorMickey
    • CommentTimeOct 6th 2017
     
    Thanks. I have much reading to do before I can comment with any coherence. What a wonderful site. "Wolf" seems to have been in my head.
    • CommentAuthorRodstar43
    • CommentTimeOct 6th 2017
     
    welcome Mickey, take your time. Sharing and asking questions helps.
    • CommentAuthorRodstar43
    • CommentTimeOct 10th 2017
     
    Anyone from New Mexico or Texas?
    • CommentAuthorbobbie
    • CommentTimeOct 11th 2017
     
    I live in far West Texas.
    • CommentAuthorRodstar43
    • CommentTimeOct 11th 2017
     
    After Corsicana area, Hobbs feels like far west Texas.