I'm from Ontario Canada. There will be lots of folks coming on to welcome you. You have found the right site for support and some good advise and lots of hugs.
Hi katlady. Welcome to the most helpful support forum ever! I have been a member almost since it's beginning and never would have made it through the almost 13 years before my DH died in 2013. We lived in Lakewood, DH was with the Cleveland Clinic; then retired to Kentucky in 1986. After his death, I sold my house and have relocated to FL near my sister. Tell us more about your situation and there will be lots of support here.
welcome BluTbell. I see you have been with us since 2013 but not commented much. I looked up earlier post and see you are one of the younger ones. How are you both doing now?
Thanks Charlotte. Yes, my husband will be 59 this month and I am 47. The last two months have been have been rough. DH seems to be in stage 5 and some 6. Thanks for asking ;)
At one time a few years ago someone did up a sheet showing the states everyone was from. We also have ones from Canada, England, Australia and other countries.
Heidi, my husband was Swiss, from Zurich. He passed one year ago. I am from Nova Scotia. Is your husband Swiss? Very sorry you had to join this group, and he is so young. People here are very helpful and compassionate. You will get lots of help.
Yes my husband is Swiss. We live an hour from Zürich. The Infusion treatments that he recieves are Right by Zurich. The forum is very good I'm just not used to forums and have to get the Hang of it. Sorry to hear that your husband passed away, i hope that you are doing well.
Hi Heidi, We made our last visit to Switzerland in the fall of 2011 - my husband already had problems, but we managed the trip, and he so enjoyed seeing his country again and connecting with relatives and very old friends. Then we went up into the mountains, which he loved. I am so happy that we made that trip.
This forum is very helpful, and you can depend on people responding when you ask for help. Just sorry that your husband is so young. Alle beste going forward.
I'm so happy that you enjoyed that trip. I'm sure that was great for your husband. In the fall my sisters and I fly home to visit our parents in Toronto (and the husbands look after the kids). This fall I'm taking my husband along and he is really looking forward to it. Good friends will help out with our children who will stay at home. My husband and I go hiking a lot too, it's a good way to spend the day!
I Always like your comments Charlotte, and I have question for You. I Finally got to reading about caregivers on this web sites and realized that I do not have a bracelet or some card in the car saying I am the caregiver for Diane in case I get another TIA or other debilitating illness. I. Am that 24/7 Caregivers a n need eemergency help should I not be. Able to talk. Where can I get bracelet to say I a caregiver for AD person. Also, I Drive us around to doctor appointments etc. Who in the police would I notify about my circumstances? What about a card in wallet. What to say. I am not gun ho about bracelets but what other choices are they? Help?
I Always like your comments Charlotte, and I have question for You. I Finally got to reading about caregivers on this web sites and realized that I do not have a bracelet or some card in the car saying I am the caregiver for Diane in case I get another TIA or other debilitating illness. I. Am that 24/7 Caregivers a n need eemergency help should I not be. Able to talk. Where can I get bracelet to say I a caregiver for AD person. Also, I Drive us around to doctor appointments etc. Who in the police would I notify about my circumstances? What about a card in wallet. What to say. I am not gun ho about bracelets but what other choices are they? Help?
Rodstar43, I have a card in my wallet that says I am caregiver and who to notify in case of emergency. If something happens the firemen or police will look for your wallet. You can put a contact in your phone called ICE for In Case of Emergency. However your phone should be pin protected so that might not help. At home I put info under ICE in my address book next.to the phone. You could also write stuff on an index card and put in the car with registration.
Do you wear a watch? Someone one time told me about a 'watch' that carries a computer memory card that has medical records on it. All EMT or hospital ER has to do is pull the card, put in their computer and have all your medical records. I like that cause you can also have your POA, living will, etc all on the chip.
Garmin fit-bit. Is what it is.
As for the Medic Alert they have other options besides bracelets. They have a leather bracelet that is like a watch band. They have the necklace like dog tags and also one that goes on your key chain.
I also have my DPOA and my husband's listed under ICE in my phone. I also carry his DPOA in the car glove box and have a copy sitting in the feed tray on my printer - easy to reach. I also have a notebook for whenever I get around to using respite that has a copy of the DPOA and the POLST form.
Just stumbled onto your site. My wife was diagnosed 6 years ago and has been in a Alzheimer’s Home for the past 1.5 years. We have been married for 53 years and I am lost without her. We are living in Eugene Oregon...we are blessed with tremendous support in Eugene. I am looking for additional spouse support information
welecome Wally, some have been on this site awile and, some like me only found this group a month ago. I have been from all over inculding time in Oregon. My dear wife (DW) and I have logged 55 years an she was dianosed 7-8 years ago. Recently, Parkinson's and cancer have added them seves to the list.
You are not alone. Some member have gone all the way. It helps to folllow other stories. It helps to realize that as a group, caretakers of spouses is different and it takes a special fortitude to survive!
Welcome reenie. Tell us a little about yourself and your spouse/partner. We all suggest you read, read, read the treads below to get an idea of the wide range of topics that people talk about. You can comment on the individual threads or start your own.
Thank you for the warm welcome. I'm going through the threads to see if there is one that explains the various abbreviations you all use. A little bit about us: My husband and I have been married for 47 years. There is a 21 yr age difference--He is 86 and I just turned 65. He is now in an assisted living facility. Soooo many emotions involved. Finding this site is one of the best finds ever.
Hi reenie, Welcome. My husband, who died in March, was 19 years older than I was, but so youthful until he got Alzheimer's. What this disease did to him broke my heart. I don't know if I would have survived without the support of the people on this site. I hope you find the same support here.