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      CommentAuthorStarling*
    • CommentTimeAug 5th 2010
     
    therrja, I do notice that at my husband's nursing home if I bring something up to the nurses that light bulbs go off in their heads. Some of the time there are communication issues. I mentioned that my husband was leaning over to one side and that it meant he was tired from standing up too much. The nurse talked to the physical therapist and the aides. He got some therapy to make him stronger but mostly the aides made sure he SAT DOWN once in a while. Two days later no more leaning over.

    So it is reasonable to let them know what you see. They can't fix it if they don't know.

    And I totally agree about comfort care only. So far I've got a DNR and Do not send to the hospital notice on my husband. Several of his medications have been stopped. No reason to continue them and deal with side effects. I don't see a decline from where he was. In fact he is a lot better physically than he was when the hospital took him over there and they had done a lot with his too as a matter of fact. He wasn't as much of a fall risk when he first left the hospital as he was when he had first arrived.

    I'll take it the next step pretty soon. I'm letting him settle down.
    • CommentAuthorbaltobob
    • CommentTimeAug 10th 2010
     
    I agree that good care does slow the decline if by "good care" you mean keeping him as active as possible. We all know that once a person with dementia stops doing a particular task, they can not pick it up again. In the last five years or so, my wife and I took trips, went to restaurants and had adventures like riding the light rail train to the airport and back just for fun. I feel that I was able to provide her with the best quality of life considering her deficits. For the last 18 months, she was in day care and although she was declining, she had a routine, was able to ride in the car and responded to her surroundings. She has lost all of this in only a couple of months. When I visit, I have to work hard to get any kind of response. This is the only stimulatiion she is getting so it may take more than half an hour for her to warm up and start to respond to me.

    On the other hand, a rapid decline does not mean that you are not providing good care. We just can not beat this disease.