I invite you to log onto the home page - www.thealzheimerspouse.com - and read Tracy's June Guest Blog. Although she speaks about how her family's denial of her disease once again caused her grief, this time on Memorial Day, it is her honest admission about disease progression that got my attention. Please read her blog and my comments at the end, and post your comments here.
Is it possible that your siblings don't want to face your problem because, if they do, they might have to face getting this disease themselves? I know that my children worry about it. It isn't an excuse, but it might just explain why they don't seem to be there for you. You did get invited to their Memorial Day celebration. Maybe they thought getting you to help might be too much for you to handle. Perhaps you could simply ask them why they didn't get you involved in the planning. Sometimes getting together to talk might help solve problems before they get too big.
I feel fortunate in that there is NO denial in any members of my family or in our friends. Actually, it was our oldest daughter who first suggested the diagnosis - she had just gone through AD in her mother-in-law so was well aware of the symptoms.
This denial thing is just too common in AD. I donno why but it sure can cause as many or more problems than the disease itself.
Fortunately my wife and I are facing it head on. Fortunately she tries very hard to keep functional, but when she messes up and we both recognize it, I excuse her behavior (which I hope is a comfort to her) by giving her a loving glance and calling her "My Alzheimer's Babe". We then try to laugh at it and accept it. I have tried to make AD just a third person in our marriage. So far it is keeping things going.
My parents (our only other family) are both 100% accepting and thankfully very helpful with things. :-)