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General: I NEED YOU--this helped me go on

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    • CommentAuthorjoyce43*
    • CommentTimeFeb 25th 2010
     
    I have no idea where I first read this poem, but I copied it and put it on my front door and the refrigerator so I would see it every day. Maybe it will give others the strength to go on and remind us that they aren't doing these things because they want to hurt us. I added his picture to the bottom of the poem.

    I NEED YOU

    DO NOT ASK ME TO REMEMBER.
    DON'T TRY TO MAKE ME UNDERSTAND
    LET ME REST AND KNOW YOU'RE WITH ME
    KISS MY CHEEK AND HOLD MY HAND.

    I'M CONFUSED BEYOND YOUR CONCEPT.
    I AM SAD AND SICK AND LOST
    ALL I KNOW IS THAT I NEED YOU
    TO BE WITH ME AT ALL COST.

    DO NOT LOSE YOUR PATIENCE WITH ME
    DO NOT SCOLD OR CURSE OR CRY
    I CAN'T HELP THE WAY I'M ACTING
    CAN'T BE DIFFERENT, THOUGH I TRY.

    JUST REMEMBER THAT I NEED YOU,
    THAT THE BEST OF ME IS GONE
    PLEASE DON'T FAIL TO STAND BESIDE ME
    LOVE ME TILL MY LIFE IS DONE.
    •  
      CommentAuthorSusan L*
    • CommentTimeFeb 25th 2010
     
    Ok, my daughter and I are both crying.........................oh so true.
    • CommentAuthorFayeBay*
    • CommentTimeFeb 25th 2010
     
    Joyce, I have a recent picture of DH laying on the couch. I followed your example and put picture to poem. It turned out really well. I wish you could see it. I put it on the front door. I think this well help people who visit to understand. I want to thank you for the poem and idea. Faye
    •  
      CommentAuthorCarolyn*
    • CommentTimeFeb 25th 2010 edited
     
    I also copied that and have it in our bedroom. It brings tears to my eyes every time I read it.
    •  
      CommentAuthordeb112958
    • CommentTimeFeb 25th 2010
     
    I posted this poem on the FTD forum (with a nod to Joyce, my website friend) and it has touched people there to. This poem is wonderful for any caregiver of a person with dementia. I also saw that they had this poem on the Alzheimers Playbook site. The author seems to be unknown.
    • CommentAuthorIsa
    • CommentTimeFeb 25th 2010
     
    Beautiful. Thanks for sharing this.
  7.  
    Thank you for sharing. Wish I had known of it sooner but will share at his service.
    • CommentAuthorRB13
    • CommentTimeFeb 27th 2010
     
    Dear Joyce, that poem says it all...thank you for sharing
    •  
      CommentAuthorchris r*
    • CommentTimeFeb 27th 2010
     
    I have sent this out to many of my friends, and I also put it on facebook. So many have responded to me with their feelings, for Dick (my DH) and for those in their own families who have this awful disease.
    • CommentAuthorcs
    • CommentTimeMar 1st 2010
     
    Although I choke up everytime I read it, I've put a copy on the fridge door and will take one to the NF tomorrow. cs
    • CommentAuthorandy*
    • CommentTimeFeb 20th 2011
     
    ttt.......just stumbled upon this again and thought some of the new ones would like to see it.
    • CommentAuthorphil4:13*
    • CommentTimeFeb 20th 2011
     
    AMEN!
    • CommentAuthorElaineH
    • CommentTimeFeb 20th 2011
     
    Well after a difficult morning, this really brought a tear to my eye. No matter how much you tell yourself, “It’s the disease talking, not him,” the words still hurt. Then you read a poem like this & it brings it back into perspective. I will also share this with people. Thanks so much!
    • CommentAuthorjoyce43*
    • CommentTimeFeb 20th 2011
     
    I originally posted this one year after dh's journey ended; tomorrow will be the second year of his death and reading it this morning brought tears to my eyes again.
    I read this poem so many times over the years that I could almost recite it. It always helped me remember that none of what we were going through was his choice.
  15.  
    This is just so sad...it goes right a long with ncaregiver's post on what caregivers endure. Sad so sad for both of us.

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