I have had the diagnosis of MD for ten years - get checked by a retina specialist every four months. No problems until last Friday. I got into the doctor right away and was able to begin treatment on Monday. I have been researching this condition and know all of the "facts" but I am looking for a website like the one we have here. One that will give me info to make better decisions about everyday living.
I have access to Lighthouse for the Blind, Books on Tape for the Blind at the Library, ect. but I need to find some new friends with hands on experience like we have here. My researching ability is diminished now because of my vision, so if anyone has any info, I sure would appreciate it. Thanks. We have had some good laughs about I can't see and he can't think. Oh well :-)
Sorry, I can't help you; but empathize. MD is in my family; so opth is watching and gave me a grid to check my eyes from time to time. Hope you find such a friendly, helpful site.
DH has wet MD and has found the shots into the eye very very helpful in stopping the progression. He was a optomotrist, so knew right away what was happening to him and got to a retinologist right away. It's been three years now and he's doing very well.
dagma, I have no experience with this, but the following websites indicate forums for questions/answers, etc. I'm sure there are more and I haven't checked these out.
I have only had WMD (rt. eye) for the last 2 years and shots and drops seem to be doing a good job. I would also be iterested in a message board like ours. Let me know if these above look good. I will try to go visit later tonight.
On top of MD I had a cornea transplatn 4-5 years ago and thought it went well untill I god MD. Since summer, I have been having trouble with cloudiness and they now think I might be having a transplant rejection. Will look forward to other info from here.
Have you tried Yahoo groups? They ususally have groups for everything under the sun. I don't like they way they are setup vs here, but they may. Also, try google groups.
Just found this, try it:http://www.mdjunction.com/macular-degeneration
Thanks for all of your comments. I will try Yahoo and Vickie's suggestions.
I have the grid on my fridge for ten years. I got my first shot in my eye Monday. I can't believe how easy it was - no discomfort at all. The wavy lines went away but the grey cloud is still there. I was very upset ten years ago when I got the diagnosis, but I have had time to get ready just in case. I was beginning to think that I would never have the effects of it. I was surprised how quickly it came on. I see it now as another sign of aging and we all have something to deal with.
I am very organized - thank goodness - we have a very small house. I have gone through this house liike a whirlwind since Friday making sure everything is in place in case the other eye decides to go. I thought I was doing all of this for my AD husband. Will keep you posted.
Before dementia, my DH would never admit he had health problems.. then suddenly Macular came ... He had the shots around the eye,,I think that was Visudine... this preserved the good nerve endings but ultimately he was declared legally blind.. then arthritis beset him, along with terminal prostate cancer...Makes me wonder "what else"... I have made the house navigatable for him,,, He's offended by this and any assistance from others..Will not agree to talking books or learning braille... He's just content to be miserable...I have decent eyesight and even with that, I've begun counting steps to the bed, closet, stairs and all those necessary thing... Any suggestions????
I looked at the forum on vickies 2nd listing: vision.healthcommunities.com and it was not good. Only two posts. I will try to look at the others soon. bill