Hi Tracy, I'm Joyce43 from the other group. I for one welcome you. You are a source of great information on what our spouse is going through. You were a great help to me . Helping me understand what DH was feeling, also helped me to care for him. Where else can we get first hand information on what our spouse is feeling.
younghope it is interesting that the AA Forum is still not letting spouse caregivers have their own place. I have enjoyed reading your posts. You are a very brave woman.
We have discussed at length here about these message boards being a place of comfort for spouses to be able to write their innermost emotions and share them with other spouses who understand. I cannot find the topic in the search to bring it to the top. Most of you were very concerned about our spouse/partners being privy to our most private thoughts about them, and responding to them on these boards. This is a unique support group for spouses.
However, those of you who have been with me since the beginning, know that I am very interested in getting the perspective of the PWD (person with dementia – a new acronym). It has been very difficult, because most PWD have difficulty expressing themselves. Betsy Howe’s husband Dave, with Betsy’s help, wrote “The Evil Fog”, which I featured as a blog. You can find it by doing a search under the previous blog section on the left side of the home page- www.thealzheimerspouse.com. I have extended an invitation to Tracy to contribute the PWD perspective to this website by becoming a monthly guest blogger. She has so much insight to offer as to not only what it is like to have dementia, but what we, as spouses, can do to make their lives easier. She can be the voice that tells us WHY our spouses behave as they do. She can be the voice that helps us understand our spouses’ perspective. I think it would be a fantastic addition to the website. I do hope she accepts my invitation. I am waiting to hear from her.