Thanks Divvi-I really needed to be called an oldie this morning. This fractured knee is a real learning experience. Having to be somewhere on a schedule for classes, etc kept me on track. Now I don't have to set an alarm and each day is the same as the one before. Gives me a real understanding of what is takes to remain oriented to time. Not being able to go where and when I want to is like cold water in my face. Is the strike over-need to pick on somebody :-)
Bluedaze, uh...oldie????.if the shoe fits...?? HEHEHEHE! just kidding, i sure hope your dr appt gives you better news. at least you have agood excuse to be here now more- being indoors! :)Divvi yeah, Mary, pickit lines are up and reading for picking...i like the dirty dozen..since i AM the poop queen, and an 'old regular' the name seems appropriate...divvi
You guys are too funny. I was just thinking recently what would happen if all you that keep the board going, just stopped. I don't want to say regulars as us "quiet ones" are always here to read and learn and yes laugh at you guys at times.
I seen you go on strike last night and couldn't wait till this AM to see who all came out. I like the "dirty dozen" And I'm glad the strike is over. : )
SEE there, Cynfany??? you DO read 'regularly' and our lil strike got you up and posting today..whooo-hoo---it wasnt in vane after all..! we need you too...for SURE! divvi
Well, I obviously need to check into this thread. There were 43 new messages on it when I logged on. <grin>
I come in here and read every day. Sometimes I post. Sometimes someone else has posted anything I could have said and more. Sometimes I post anyway because someone on the thread needs to be told it is OK to say the unsayable, and think the unthinkable and even say it too. And if more than one person says it is OK in more than one way, it tends to sink in.
Occasionally we get a newbie who is really at the end of his or her rope. It can be interesting to see them calm down and become part of the group who can offer help in addition to needing it. So, if you are new, please do post.
Someone on this thread said what is really happening. Even the dirty dozen is needy. We wouldn't be here if we didn't need support as much or more than we offer it to others.
As the cracked egg in the dirty dozen I agree that we all need support. Before I broke my knee I took so much for granted. I usually walked the 5 or 6 miles to local stores on my own schedule. I read about all the physical disabilities so many of our crew endure and wonder how you deal with your own problems as well as coping with your LO's. Sometimes I have very negative feelings about the grief caused by the hooligans. It seems like more than mere mortals should bear. But-no choice is there?
Starling is right, having someone say something once may not be nearly as helpful as having several people say the same thing -- in their own way, or even just by saying "ditto". Often, we need to know that many other people feel the same.
So no fair trying to get out of posting by claiming someone else already said what you would have.
Another thing as a newbie that I try to do (but it is a lot of reading) is read the old trreads before we start a new one that has already been hashed out. But we do learn so much. I wish every doctor who has Dx a LO would also give the website. Joan may be a candiate for the Nobel Peace award!
That had to be the shortest strike on record. BG. I don't post to new people because I don't have the same problems they have. In fact compared to some of them I really don't have any problems. My DH is only on Aricept so I can't tell them anything about the other meds. I also, can't tell them how to handle incontinence, anger or sundowning etc. so I let the those who have "been there" give them the benefit of their experience.
Jean, it isnt always about giving specific advice on how to fix something or how to contend with a certain issue. we never have the very same problems as everyone else here only similiar. ours are unique to each individual here with AD as we all know. just a note of support or letting members know you are hear reading their issues is of comfort to many of us and that is what we were suggesting..we may not have to contend with certain things now but the very same subjects may crop up again in the proximate future -divvi.
hahah, thats funny--i was soooo tempted on more than one occasion...sunshyne!! i got the feeling some of the others were with their keyboards on their laps too..:) yep gal- yall know me too well...those of us stuck in home all day find pleasure bleeping in/out ALL the time..
Grannywhiskers-don't worry about bringing up old threads that have been rehashed. There is comfort in numbers and all of us have something new to learn. My heart breaks for those so young who have joined us. I've already been through the wringer and come out the other side. My greatest satisfaction comes in helping those following my trail. Who but us knows the hell. The cracked egg in the dirty dozrn
bluedaze, you are hilarious. why are you referring to yourself as the 'cracked egg' of the dirty dozen, please?? i think your input is particularly helpful as yes you are a veteran warrior who has come out the other end still alive and kicking, well not with that knee :)..that speaks volumes!!!!!!! divvi
When I first got here I kept bringing old threads up to the top if I had something to say. Frankly I think a lot of the newbies ought to do that. It is good for you, and it is also good for us.
Jean, believe it or not, the early stages of the disease are the hardest. And you probably know more about that than I do because we didn't even look for a diagnosis until quite late in the disease. My husband was easily an early stage 5 before we even began looking. So if someone asks a question about the early stages I can't answer them, but YOU can.
I think sometimes the early stages are hard because you are not "on gaurd", like you become in later stages. In later stages you do not want them out of sight for long. In stage 4, we had a bad year for rattlesnakes, that summer two came in the yard. My DH tried to kill one with a 12 inch ruler and the other with a pair of pliers. That makes your heart stop beating and you fly across the yard.
Like the time my husband had a screwdriver and was standing on the dining room table, with the ceiling fan running and the light fixture portion of it in one of his hands, using that screwdriver to push the wires back into the base!!! I didn't know if he was going to electrocute himself or get decapitated before I could turn off the fan/light and get the screwdriver away from him! The early stages were the scariest for me, and he was himself on occasion still and hard to reason with - until I learned the reason button was broken. Of course this stage was after the personality changes stage.....which hurt the most.
OR like the time when my DH was holding my tiny male chihuahua over the 3rd floor railings and nonchalantly stated he was letting the dog out to pee...i got my first grey hair that day..divvi
Harsh "dirty dozen" <grin> I will definitely try to post more instead of lurking around reading. Want you to know that I had a near panic attack the other day when I went to open the message boards and my computer failed to follow commands. The thought of not being "connected", even silently with you guys practically sent me over the edge!!!! I often feel that the issues with my DH are nothing compared to many that I read about here. Non the less, they are often overwhelming to me. I spend a lot of time worrying about "what comes next" which doesn't do a lot of good. My very wise 25 year old daughter told me months ago that if I live worrying about the future, I will miss the present. (Sort of my mantra when I remember it. ) Thanks for all of your wisdom, caring and humor!!!
That is another asset to this site...if you read enough, you will know what comes next and some ways to handle it. This allows your to relax and rely on others who have been there to lead you through the "scary parts".
This site allows us to vent, read, learn, commiserate (cracked knees and all), and best of all, we all now know that we aren't alone in many of the things that we are seeing and feeling.
I agree with the comment that it is too bad that doctors don't come out here and learn about the "real" world.
I love "dirty dozen"..is the "Poop Queen" head of the realm? Divvi, you brighten my time whenever you post. Yesterday was PCP appt time, and he agreed to double G's Prozac dosge without a qualm..as we left, he touched me and told me I had my hands full. ...gee, I didn't realize that! He's very nice, and does have other patients with the problem. I was going to mention this web site, but got away on a different subject, and it didn't happen. Another time.
Yep people, i guess since i started the pickit lines protesting nonposters:) then couldnt stand it myself for long not posting:)smile) then created the Dozen Dirty brigade.....well i guess i am masters at arms and qualified to lead with my resume of poop queen. unless anyone wants to challenge the title and can show just cause just why they should be entitled such an Honerary position? believe me, i am hoping someone comes along any day and takes my 'crown'..i will gladly give it up.:)divvi
i can see a few of our members have fessedup to not posting as much as we'd like, Kathi for one and grannywhiskers.. they and lots of others have put in in writing to do better. there should be a flurry of activity on this forum at any time now.." onward christian soldiers".....however the song goes...
I don’t post often, either, but try to read as much as time allows. I appreciate all of your contributions and perspectives. Where would I be without you??!! All of you have a wonderful way with words and a quick wit. I can almost “hear” your voices as I read each entry. This really feels like a family.
Thanks, bluedaze. I’m glad that there’s usually someone out there ready to respond. Babies enter the world (their family) kicking and screaming, and that seems to be how we enter the “Alzheimer’s” world – kicking and screaming
divvi, I want to go out dining and dancing and everyone saying she was the life of the party! However, reality is probably going to be "she gave it all she had - and did her best" - kinda sorta...
Guess I don’t post as much as I should. The first time I posted anything, I nearly threw up at the idea of putting something so personal out in the world. That’s hard for me to remember, because when I post now, I usually go on and on.
I appreciate all the people who have shared their experiences. I’ve been able to find out information that I previously had nobody to ask about. And it’s been wonderful if in the middle of the night something comes up, because somebody is almost always around to lend an ear, and offer encouragement.
I honestly don’t know what I would do without this site. This journey is definitely not one that you can manage all alone. If it takes a village to raise a child, it takes a whole country to get through this!
Okay, I posted three times today and my one finger is worn out from typing. I will try to post more often and that's a promise. I do come here several times a day and have really learned a lot. It has made it possible for me to understand and except what is happening. I still need everyones prayer for me to have more patience.
"Dear Lord, in all your wisdom and forgiveness look down on the ever needy souls of this board, and grant each and everyone of us the peace and comfort of patience we so desperately need" ...AMEN