Massachusetts General Hospital now has an FTD Clinic! I am so excited! They are focusing on treatment but also doing some research. We are in the process of setting up an appt. I can't imagine what it will be like to talk to people who know more about FTD than I do, lol! The AFTD website is all new and they have a listing of all the focus groups around the country and many of them are fully paid for, including transportation. It's been a bit frustrating with all the attention Alz gets, trying to get help with FTD. Will keep you posted.