I don't know if this has been in any previous posts but my DD emailed it to me and I found it very interesting.
Caregiver Support: The Caregiver Bill Of Rights I have the right… to take care of myself. This is not an act of selfishness. It will give me the capability of taking better care of my relative.
I have the right… to seek help from others even though my relatives may object. I recognize the limits of my own endurance and strength.
I have the right… to maintain facets of my own life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.
I have the right… to get angry, be depressed, and express other difficult feelings occasionally.
I have the right… to reject any attempts by my relative (either conscious or unconscious) to manipulate me through guilt and/or depression.
I have the right… to receive consideration, affection, forgiveness, and acceptance from my loved one for what I do, for as long as I offer these qualities in return.
I have the right… to take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my relative.
I have the right… to protect my individuality and my right to make a life for myself that will sustain me in the time when my relative no longer needs my full-time help.
I have the right… to expect and demand that as new strides are made in finding resources to aid physically and mentally impaired persons in our country, similar strides will be made towards aiding and supporting caregivers.
"I have the right… to receive consideration, affection, forgiveness, and acceptance from my loved one for what I do, for as long as I offer these qualities in return. ""
Gmaewok, unfortunately this one does not apply to ADLO's. Part of the nature of the sickness is that the poor caregiver does not always have this "right", through no fault of the LO. I think we all agree, it's what makes this caregiving especially hard. Those who do have a LO who shows consideration are really lucky.
I also agree with JeanetteB, the Alzheimer patient does not understand and know to give consideration, affection, or any other feeling except for love. It is part of the disease as it progresses. They are the victim.
JeanetteB, you have the right. You just aren't getting what you have a right to. It is one of those things that disappear with dementia of all kinds.
What the Caregivers Bill of Rights does is remind everyone, including the Caregiver that being a Caregiver DOES NOT MEAN that they have to care until it kills them.