I really didn't post that often but when I did I received help. My husband, Eddie, died on July 29th. It had been my decision a long time ago to keep him at home till the end and I was able to do so. He never was mean or disagreeable. Please and thank you were in his vocabulary till the very, very end. I was with him as he left for his next journey.
My reason for posting this is to say to all of you that have wanted to do the same thing . go for it. Not all AD people are capable to be cared for at home till the end and I am extremely happy and glad that I made the decision to keep him at home and if you are thinking of doing it and the conditions are right, go for it. It is a very hard road and you will find yourself questioning your decision but there is help out there for you if you look. The main thing as everyone has said repeatedly take the time to do something for yourself. It is extremely important.
I will never regret the decision I made. Good Luck to all of you that make the same decision and are able to see it through till the end. Again, I will say I realize that not all people are as lucky as I was.
Sally I brought you into our site and I am happy that we were some help. You and your Eddie deserved each other. Now go back to growing your beautiful garden in peace and knowing you did all you could for your Eddie.
Sally, so sorry to hear about the loss of your beloved husband. I am one who kept mine at home until the end and can appreciate all that you did. Take good care of yourself now....you deserve all good things in life.
Sally, my deepest condolences on the loss of your Eddie. I'm sure he is looking down on you with a smile of gratitude. It was also my hope to do the same, but it doesn't seem it was meant to be. Go forward now and take care of you. Please let us know how you are again in the future.
Sally, God Bless you and your Eddie. I truly admire your decision to keep him home. I am one who hopes to do the same, but it all depends on many things. Please find the peace you so richly deserve, as you have truly earned your 'caregiver wings'. Please let us know how you are doing.
Dear Sally, my sympathies toyou on the loss of your husband and my admiration to you for all you did for him on your journey together.
Thank you for taking the time to reach out to those of us who might be thinking of keeping our LO at home with us. I had been planning on doing just unless he became physically out of my control. However, I must admit that lately reading all the posts about incontinence issues I've really questioned whether I could ever handle it. Your encouragement really helps me to keep my mind open to at least trying.
Sally, thank you for your taking time to let us know and to share your experience. May God grant your peace and comfort. Your Eddie was a very fortunate man to have had you as his mate and care giver. Please keep in touch with us .
Sally, thank you so much for letting us know. Everyone who can do this is a hero in my book. Its such a blessing that your Eddie was a kind sweet fellow. I hope you are doing some good things for YOU now.
Nancy/Sally, thank you for sharing, and please accept my condolences for your loss. I'm glad that Eddie was able to stay at home and that you were able to care for him there. So far, I am able to do so, but seeing how things can change overnight for several of our spouses here, I know that I may not be able to keep him here until the end.
I hope that you are able to get out and about now, and that you will stay in touch with us!!! Take care! ((HUGS))
Sally--Thank you for your post. I, too, have always had the intention of keeping my husband at home until the end. Even before diagnosis, when we knew he may have inherited the disease, this was my goal. I don't know if circumstances will allow it, but you have my utmost respect for your valiant efforts.
sally, i am so very sorry for your loss. i too kept my precious husband at home with me. i will not say it was easy,it wasn't.but i will never regret my decision to do so. he always said he didn't want anyone but me to care for him. we had hospice for 3 weeks and they helped me with what to expect at the end and with support. our family was wonderful. our children were all here, he was at home where he wanted and i wanted him to be. his family,my family and our friends and neighbors were all here that final day. our yard and driveway was full,but everyone was very respectful and quiet. i thank god for all the support we had. god bless them all.
Please accept my deepest sympathies. I admire you for being able to care for him untilhe passed. Im hoping to be able to do that, but I don't know if I will be physically capable when that time comes. We'll see. In the meantime, take care of yourself and let yourself heal. Blessings!