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General: Plaque and Axona

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    • CommentAuthorWinston
    • CommentTimeJul 15th 2009
     
    Brianna,
    If Axona helps ask your neurologist about daily baby aspirin and possible meds to control cholesterol and triglycerides.
    I am a physician and my darling wife has Posterior Cortical Atrophy. We have just started Axona.
    If Axona d has helped try and continue it. Quality of Life is so important that perhaps adding some risk to improve or maintain quality of life is well worth it.
  2.  
    Welcome Winston. Glad to have you join us. Marsh is a retired Physician and we call on him often and it is nice to have two, although I am sorry about your wife.
  3.  
    So happy to have you aboard, Winston. Sorry for why you have to be here, but it's a great place to land. Your input will greatly be appreciated.
    • CommentAuthorShanteuse
    • CommentTimeJul 15th 2009
     
    Winston, if you have not already seen it, please think about reading the very long (over 600 posts) thread about coconut oil and MCT oil.
    • CommentAuthorswarfmaker
    • CommentTimeJul 15th 2009 edited
     
    Contribution withdrawn
  6.  
    Winston, good to have another physician aboard. I think Sandyd (is that right) left us over a disagreement about the effects of coconut oil. From what I have read you do not have to worry about cholesterol or triglycerides with the MCT oil or Axona. My wife took MCT Oil for several months, but I could not see any improvement. I tried her on Axona, but it made her sick.

    I agree with your statement: "Quality of Life is so important that perhaps adding some risk to improve or maintain quality of life is well worth it." I have stopped all Cholesterol meds for my wife on the idea that she doesn't have that much longer to live (she is stage 6) so I am trying to decrease the number of pills I have to try to get her to take. I am getting close to stopping her Metformin and Glypizide.
    • CommentAuthorShanteuse
    • CommentTimeJul 15th 2009
     
    When someone posted the other ingredients in Axona, I noted that they included sucralose and milk protein. Both of those can cause digestive upsets.
  8.  
    If a patient is going to have digestive upset from Axona, does it occur after just one dose or does it take some time to produce upset?
  9.  
    My DW's stomach upset with Axona started immediately after the first, and second and third, doses. At that point I stopped it. She is still on MCT oil, but I'm not sure it is doing anything.
  10.  
    I think the additional ingredients in Axona are supposed to help curb digestive upsets. The first time I gave it to DH, he did complain of stomach upset but we give it now after a full meal and have no problems. I wouldn't advise giving it on an empty stomach. I don't know if it's supposed to help if the AD is in the advanced stages.

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