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    • CommentAuthornatsmom*
    • CommentTimeJun 22nd 2009
     
    I am on FB and go there occasionally to see what people are up to that I used to know in HighSchool...or it's a place to see what others are up to. I have some pics of our cruise from last year on it...a happier time.

    All the talk about old/young looking/being is quite interesting on this thread...on Father's Day I had a little experience of my own. My hubby, very nice looking and 63 walked with me into our local ULTA so I could get a new hairbrush...the woman coming OUT of the store, clearly about my age but older looking (LOL) said "Oh are you bringing dad in for a facial"...I just shook my head & walked on in...Some people are so ignorant. I am 49.5 years old, BUT, thankfully my genes are kind to me & I look much younger...thankful for that, but with my Alz hubby, I guess I really do look like his daugher now...BUT, it just goes to show you to KMS when you think you wanna "say something"...Keep Mouth Shut...Afterwards, I thought I "should have said"...No, this is actually my husband of 27 years and he's 5 years into Alzheimer's & this is what it does to people! And no, not here for a facial, just a hairbrush ~ Not that it's any of your business"!! I get tired of this whole thing sometimes...HOWEVER, launching into "Alzheimer's 101" just might shut some people up!! Wonder how much time that woman had to "chat"! LOL!!

    I don't post often, but every now & then I get amused by things going on here...or sad...TexasJoe, don't give up living...go outside & pull a few of those weeds...it will do you good, however, you might wanna wait til later in the summer as it'll be MUCH too hot over this next week (100's each day)...I do hope you will find a "bright spot" in your day-to-day dealings. I started taking my hubby to a "day program" 3 days a week & I am working on a Medical Transcription course that I hope will help me to make a living after I am through...The "outlet" of learning something "new" helps me to pass the time and "get connected" with life outside of Alzheimer's again...We just passed by our "5-year anniversary" of being diagnosed...it doesn't really get any easier...BUT, I do try to take one-day-at-a-time...most days...I am thankful for a new day to start again most days...unless I'm tired of it all...then I try to start again...HANG IN THERE!!
  1.  
    I just tried to join azgroup but it told me I had to be invited to join......anyone care to invide me??
  2.  
    Me too, Phranque.
    • CommentAuthornatsmom*
    • CommentTimeJun 22nd 2009
     
    I'd like to join too...
    • CommentAuthorCharlotte
    • CommentTimeJun 22nd 2009
     
    I am confused - is this azgroup different from the rest of us that have signs up with each other as friends? i have 11 of us as my friends.
    •  
      CommentAuthordeb112958
    • CommentTimeJun 22nd 2009
     
    briegull,

    I just requested to be invited too
  3.  
    Its the same Charlotte. I also have 11 as does briegull.
    • CommentAuthorbriegull*
    • CommentTimeJun 22nd 2009
     
    It's just a "group" in facebook terms, not a group like here. It makes it easy for you to find your spouse friends and their emails, and for you to see if they post pictures of their cats or spouses or whatever. Nothing fancy. NOT AT ALL to replace this group. You have to follow the instructions I gave earlier. I can't search for "susie q" on facebook and invite them because there are dozens of "suzie qs" so you have to initiate it by finding the group and requesting an ok to join.

    I was ordering a Kent postcard I was out of and I had to redo the design so it took awhile and I didn't get to my email. I think you're all now on.. There should be 14 at this point. What strikes me is all those sweet dear smiling faces. I just know we'd all be friends if we could sit around in a kaffee-klatsch!! (what am I talking about? That's what we're doing!)
    • CommentAuthorKadee*
    • CommentTimeJun 22nd 2009
     
    Thanks Briegull, I checked & there I am!
  4.  
    I don't have Kadee, debs, vicki or natsmom

    I've got to get off the computer....I'll check in the morning...
    • CommentAuthorbriegull*
    • CommentTimeJun 22nd 2009
     
    Remember to refresh your screen (the arrows going around in a circle) if you don't see people. KD, deb, vicki are all on I think, natsmom, I don't know your name so identify yourself when you contact the group..
  5.  
    Thanks, natsmom, but I do have to get after those weeds, 100 degrees or not!
  6.  
    I just requested to join.
    • CommentAuthornatsmom*
    • CommentTimeJun 22nd 2009
     
    briegull, I'm having trouble figuring out "where" to type "what"...in the upper right "SEARCH" box, I typed ALZSPOUSE & it brings me to 6 pages of "ALSHOUSE" people, none of which are the "group"...HELP!
    • CommentAuthordivvi*
    • CommentTimeJun 23rd 2009 edited
     
    i spent a couple of hrs last nite checking the facebook and found some of your pics. its funny how you form a mental picture of someone from how the post/write etc. i was amazed how different many look from what i had pictured in mind! the real names are hard to know exactly who coinside with names here unless they use their real name here. i believe i found, briegull, lois, mary phranque,charlotte,jen, for sure, maybe more just dont recognize their names. how fun! and i havent even joined facebook, just googled ---and yall came up! divvi
    •  
      CommentAuthorStarling*
    • CommentTimeJun 23rd 2009
     
    I've just joined Facebook, and I've requested to join AZSPOUSE. So could whoever owns the group let me in?

    At this point I've only joined and written down my high school and college names. I'm very new to social networks and don't have a clue as to what they are actually for, but my daughter wanted me on Facebook too, and since a group of you are there as well I thought this was a good time to do it.
    • CommentAuthorbriegull*
    • CommentTimeJun 23rd 2009
     
    I think I just hooked you in, Starling. Let me know if not.
    • CommentAuthorbriegull*
    • CommentTimeJun 23rd 2009
     
    Anita, I can't somehow find the link to hook you in - I think it's a FB glitch. Send an email to me at briegull@gmail.com and I'll do it.
    • CommentAuthorAnnMW1157*
    • CommentTimeJun 23rd 2009
     
    I thought I was part of the FB group, but now I'm not sure.......Any suggestions?----I'm SO good at this computer stuff.........Bring back the manual typewriter!

    Thanks!

    Ann
    • CommentAuthorterry*
    • CommentTimeJun 24th 2009
     
    divvi, what did you google to come up with the facebook pages without joining? I tried googling a few things and got nothing except I was able to find briegull -what a fabulous photo. I love having a face to match with the names but I don't want to join facebook.
    • CommentAuthordivvi*
    • CommentTimeJun 24th 2009 edited
     
    deleted. per briegulls request
    • CommentAuthorbriegull*
    • CommentTimeJun 24th 2009 edited
     
    Divvi, I don't think you used GOOGLE to search for me; at least when I google briegull it's not there. You searched for me INSIDE Facebook, right?

    AHA!! - edited - when I google me under Clare Durst I *am* there with some friends. Not much but I am. I'm going to set that so it can't be seen. I think that's done. And I know how to make it happen. Divvi, can you check, google Clare Durst and see if you can see me in Facebook NOW? thx
    • CommentAuthordivvi*
    • CommentTimeJun 24th 2009 edited
     
    mean girl, you did it!:) divvi
  7.  
    I only want to be out there for the spouses.....Divvi, did you see any of the rest of us?

    Ann, I thought I saw you there......

    Natsmom, did you get my invite?
    •  
      CommentAuthorfolly*
    • CommentTimeJun 24th 2009
     
    Okay, I aadmit, publicly, to one and all. I am now completely befuddled. I checked out FB a few months ago, signed up, couldn't seem to get the hang of it and didn't want acquaintances passing my "stuff" along to people I don't know, dropped out (which I gather only "hides" you name, doesn't delete it forever more), and gave up. I must be dimmer than the average light bulb. (-:
  8.  
    Folly, you have to give permission for anyone to see anything but your photo - is my understanding. I'm in kindergarten when it comes to Facebook! I originally joined because it was the only way I could see the pictures of my children and grandchildren, because my sons LOVE Facebook and hate e-mails! They have me text messaging too..it is the only way my grandchildren write me! I'm adjusting to the new technology, but only as much as necessary! <grin>

    I've enjoyed seeing the pictures of this group, and several have posted their children and pets photos, which I love looking at! Most of us do our talking here, but it gives us the opportunity to "see" each other without the world seeing us.
  9.  
    Facebook is fun....lots of friends there....old and new...games to be played and, this morning I got to have a nice online chat with Jen (Stuntgirl). I have been on Facebook for over seven months and have had no problems with it...you have to accept someone as your friend for them to be able to see any of your information so to me it is no scarier than anything else I do on the web.
    • CommentAuthorjimmy
    • CommentTimeJun 24th 2009
     
    Only the people you accept as friends can see your information, you can converse either publicly on the "Wall" or privately. I would suggest leaving your birth year off of your profile. I have had several nice chats with some of our members.

    Like Mary, my daughter and grandchildren got me started on Facebook.
    • CommentAuthorAdmin
    • CommentTimeJun 24th 2009
     
    Once again, I am reminding everyone that I do not want to offend any of you. I am trying to "accept" you as my friends when I get the notice, but I don't always know what I am doing. Not to mention that I have forgotten my own log on and password. I always write them down, but somehow, I missed doing it with Facebook.

    I love looking at all of your pictures, but running this site keeps me too busy to do anything but look at Facebook when I get a notice that one of you wants me to click on something.

    joang
  10.  
    We noticed! <grin> and that is fine, we don't expect you to split your time...this site is most important not only to you, but to US!!!! We have to have this one!!!! The other is icing on the cake! But do load a picture when you remember your log on and password! <grin>
    •  
      CommentAuthorStarling*
    • CommentTimeJun 24th 2009 edited
     
    I'm going to make a suggestion about asking someone to be your friend. I know that I accepted a bunch of people today who's real names made no sense to me mainly because it was obvious from the number of mutual friends that they were on this group. When I've asked someone to let me be their friend on Facebook and GoodReads (which I also recently joined) I told them something about me. Either that I am Starling (in the case of Facebook) or that I was my daughter's mother (in the case of one of her friends on GoodReads.

    One more thing, I'm also currently using the same picture on Facebook that I use here. It should make who I am more obvious.
  11.  
    Could you tell who I was, Starling? <grin>
    • CommentAuthorAdmin
    • CommentTimeJun 24th 2009
     
    Mary,

    Would you do me a favor? Would you put up the picure we took on the cruise? The one of just you and me. Do you have it? If you don't, I'll e-mail it to you. Actually, I'll e-mail it to you this afternoon, so you can see which one I mean.

    Also, I just deleted your "falling out of bed" thread, and put it under the "falling" thread, which I renamed "falling/falling out of bed". All of the answers you are looking for are in that thread. Just didn't want duplicate threads.

    Gotta go.

    joang
    • CommentAuthorbriegull*
    • CommentTimeJun 24th 2009 edited
     
    Across the top of the Facebook page you see Facebook Profile Home Friends Inbox on the left, and on the right,
    your name, settings, logout, and search.

    Under settings, choose privacy settings. Then chose Profile and from the drop down list choose who you want to see your PROFILE.
    Then under privacy settings also, choose Search. And set THOSE settings.

    I'd forgotten that Google made some arrangement with Facebook - and with youtube (which they now own) so that you can find people who have the default settings of "everyone" in their privacy settings. But if you do as I say in the previous para, you'll be behind at least a screen door, if not a vault door.

    I just found a really good comprehensive article about privacy settings:

    http://www.allfacebook.com/2009/02/facebook-privacy/

    In it the writer describes a check on "public search listing" (like google or yahoo). I do not see that at all in my privacy settings so I assume too many people howled about it and it's removed.. I have to research this further.
    • CommentAuthorterry*
    • CommentTimeJun 24th 2009
     
    well heck. i feel kinda left out but i'm pretty sure i don't want to join facebook. did get to see briegull's page with her pics and favorite links or something but that i just tried again and it didn't work. I've had such difficulty getting myself to even read my email the past couple years and the idea of putting myself out there for anyone who ever met me to contact me just well i'm I don't know..... Plus when I was researching joining I turned up a NYT article about how difficult it is to leave facebook - link below:

    http://consumerist.com/355232/joining-facebook-is-like-joining-the-mafia-just-try-to-leave

    So, I wish I could see your pages without having to hand over my personal info to the cyber universe. And I hope this doesn't detract from this message board which I've finally gotten back into and am making a priority. The mess board in my local community started a steep decline when many people joined facebook and chose to take their communications there.

    Anyway, BRIEGULL: Great photo! You look FUN!
  12.  
    Terry--you don't have to use your real name on facebook..if you don't feel comfortable with giving some info, then make it up and use different names...use different birthday, profile info, etc....all my info is not real,,,I am really a giant rhesus monkey who has been trained to type and take care of my dw....that is why I love coconut oil and bananas........lol
  13.  
    Thanks for the message that made me smile today, Frank!
    • CommentAuthorWeejun*
    • CommentTimeJun 24th 2009
     
    Phranqueie, Phranqueie!
  14.  
    Terry...I just changed all my info on facebook....I am now 108 yrs old, look like a monkey and love bananas.....complete security
    • CommentAuthorterry*
    • CommentTimeJun 24th 2009
     
    Thanks phranque. You're a hoot. And obviously sweet as heck. I've you're 108 years old there won't be too many people left in your high school class to facebook connect with though.

    I had a stalker many years ago and have never completely gotten over the fear. I hadn't thought about it since the dementia experience. Since DX I feel like shouting to everyone out to get me in any way, "Oh yeah, you can't make my life worse! You're not even a drop in the bucket!" But as soon as I read about facebook that fear came back just a bit. For years I would look in the rear view mirror and feel sure that person might be in the car behind me.
    • CommentAuthorbriegull*
    • CommentTimeJun 24th 2009
     
    I know exactly what you mean, Terry. Just before I was married (in 1956) I broke up with another boyfriend (he was in school out of town so he didn't know I'd dropped him) and he came over to my house with a knife, to commit suicide in my living room. All very romantic, but terribly scary. After I was married, a few months later, I'd look out from our apartment and see him sitting in his car, smoking. He never confronted me, or I him, but I've never forgotten it.

    YOu don't see the stuff on FB about me anymore bec. I DID change my settings, as outlined above. However, you can find out more about my travels than you want to know at www.briegull.com. For years I did a good number of private or small business web pages, and I tried out different formats, so I could show them to clients. That's why they're all different.

    The article from the Times is over a year old and FB HAS changed some since then.
  15.  
    terry, I wouldn't worry about facebook taking over from AS. Too many of us are just gathering family information and people we have known in the past. Myself, I prefer to post here instead of facebook. Soon as I get over this initial adding friends I won't visit there very often. I
    have never chatted and have no desire to start now.
    •  
      CommentAuthorStarling*
    • CommentTimeJun 24th 2009
     
    I don't think Facebook is going to keep this place from growing. For one thing messages on Facebook seem to be very short. It is really hard to go deeply into things when you are only posting small snippets.

    Like Imohr I'm collecting my little family together on Facebook. And possibly people from other parts of my life will show up.

    For another even our little private group seems to be more for helping us recognize each other and accept each other as friends than for anything else.

    I just tried the chat program and probably upset Deb when I suddenly disappeared, but it was my Internet connection that suddenly closed down. And the chat app is so slow....I frankly have always preferred forums to chat rooms.
  16.  
    Facebook will never compete with this place....It is just nice to see a face with a name.....especially my new picture..(that was for Terry's benefit)
    •  
      CommentAuthordeb112958
    • CommentTimeJun 24th 2009
     
    Starling,

    I know weird things happen with internet connections. Don't worry about it. It was nice to connect for that time. I was not upset at all :)

    Deb
  17.  
    Both my kids were surprised when I told them I quit, and said I should reactivate and just learn more about how to use it. Also not to put my address on it. Or birth year. So I don't know yet....maybe I will, not to chat, but to see who everybody is, and maybe show you all pics of my huge estate..NOT!
  18.  
    Please do Texas Joe. That is basically what I am doing. Enjoying the pictures and amazed at the faces that match the pictures. I still have 4 new names without knowing "who they are here".
    • CommentAuthorterry*
    • CommentTimeJun 24th 2009
     
    Texas Joe: come on come on I want to see pics of your huge estate. Is this a horses and stables estate? A pigs and chickens and goats estate? An RV in the driveway estate? Two tvs and an old fridge on the porch estate? Tell show give us some pics!
    • CommentAuthorWeejun*
    • CommentTimeJun 24th 2009
     
    Just so you will know, I'm ignoring facebook invitations until I figure out how this all works and whether or not I really want to "play". :-)
  19.  
    I joined Facebook to keep up with my kids and grandkids happenings and pics. Is there some way to keep separate what I post to them and what I would post to the Azspouse group?