Hey all, I am really worried, but trying to keep things in perspective. It is so hard to find info on FTD that is really helpful. Jim as you all know was hospitalized Mon - Wed with Syncope, moderate dehydration and a small pneumonia. He is failing right before my eyes. His bp is ok, but he is still having mild dizzy spells, he refuses to use the walker, will sometimes use the cane, his speech is becoming slurred. He doesn't talk much, on his way to becoming mute. I'm afraid that he will not be able to walk much longer. I'm scared. The really hard part is beginning. Our daughter's wedding is 3 weeks from today, he wants so much to walk her down the aisle. I prayed to God to please just get us through till July 18th. I really feel like I am losing him now. Any thoughts?
Susan, would it help any, when he refuses to use the walker, to remind him that he needs to avoid the risk of falls at all costs, in order to be able to walk her down the aisle when the day comes? I know the reason button broken, but maybe that would appeal to him?
I hope this is just the "normal" roller coaster ride that is evident in FTD, an he'll start the uphill swing soon. So very sorry, Susan. I assume the Docs have nothing helpful to say.
Susan L//the wedding will come out perfect...If you need two, grab two of the ushers to escort him down the aisle...one on each arm..they can hold him up and guide him, and it will look like the wedding party.// I am sure the day will be special...higs
He seems more like "himself" this afternoon. Thank you all so much for being here for me. Plan B is to get a wheelchair and have the usher (my younger son) push him down the aisle as they hold hands. There is so much emotion over this day. As many of you may remember, they moved up the wedding date so that he would be able to give her away. We all know we are calling it close. On top of that, my oldest son Stephen who was born to an alcoholic mother and born with Fetal Alcohol Syndrome, is the Best Man! Carmen thought that Stephen would probably never get the chance again, so Steve was his first choice! Talk about emotion! Plus the 8 cousins are all putting their past differences aside and coming together to introduce all their babies and get reaquainted! Hankies for everyone!
My granddaughter made us proud when she chose an Autistic boy as ring bearer and a mentally challenged girl for her flower girl. She worked her way through College as a Respit worker for disturbed children and they were her charges at the time. Very touching.