My first major problem with facebook was finding out how to set it so when I post under one friend, the post does not show up on all my friends pages. It is in the settings.
My sister-in-law talked me into joining facebook several months ago so I did. I have not yet figured out what to do with it. When I check there are various messages that are of no importance. I have not added any messages. I prefer to correspond by e-mail.
My son helped me sign into a chat room over the weekend. I was not impressed. But after spending about two hours in different rooms he showed me I did notice one thing that I believe would prevent them from being a good choice for this site. Once you leave chat room if you return you will only be able to read what is said from the moment you enter the room again. All the information given beofre you enter is lost. The best thing about this site is no matter what time you are able to get on the site everything discussed is still available for everybody to read and learn (in a chatroom all this knowledge would be lost to everybody not present in the chatroom at that time).I believe that would truly defeat the purpose of this site. I know that I have learned a lot here that I would not have learned had it been said in a chat room.
Anchor20--sounds like you're saying that in a chat room we'd have to continually repeat for people coming and going. Repeat and repeat and repeat and re. . . Nope. Not for me. <LOL>
When this thread started I felt they were talking about a way to chat with someone if you up in the middle of the night and just want to chat with someone (short of a phone call). It is not posting but just chatting - may have nothing to do with AD but just would like to have a live chat to pass some time away. Or to get a little more personal than you would want to here or just to chat with one person and have no record of what was said (unless you save the chat). Chat rooms are definitely out and they have never really been a possibility. Instant messaging is the only option for that. And, doing that would not in any way nullify or defeat the purpose of this website.
I just had a facebook experience I thought I would share. My niece recently e-mailed me a invitation to join her facebook site as a friend. I visited her site and signed up and was her friend which immediately gave me a little information about another niece, out of state and a bit of news her way. I sent her a reaquainting e-mail so we how have a connection. Back to the first niece. She had made a entry about her husband soon going to start chemo and radiation therapy and we had not known about it. e-mailed her for details. He is in his 40's and went to have a tooth extracted which turned out to be malignant in his jaw. Stage 4. Third dentist removed his jawbone and a bunch of palet and lymph nodes. If they can get the cancer in remission they will start rebuilding his jaw. I do not normally correspond with them and would not have known had it not been for facebook. I and my kids are going to start a e-mail support system for Don.
Pam from AS is on facebook and I get her entries. That is the only AS I know except stuntgirl and I will soon add her. Personally I dislike chat rooms for the reasons others have mentioned. I am sure some one here, more computer savvy than me can fix it so we can contact others on the alzheimerspouse who are on facebook. I can put that information under my profile, I think. Briegull or someone else here?
I don'[t like chatrooms either for the above mentioned things.
If you want to chat in the middle of the night or whatever, and if each of you have either Yahoo or AOL email, they both have instant message type programs - AIM and Yahoo Messenger. It's a private one-on-one conversation.
I have chatted at 3AM with my sis on AOL. We both happened to be online at the same time. The same thing with my best friend on Yahoo Messenger.
I use Yahoo Messenger all the time. It's great and you know when one of your contacts is on-line - and they know when you are on-line - unless you change your status. You can say you stepped out, are busy etc., if you don't want to chat. I do not like public chat rooms for all the reasons listed above - and more!
gmail does have the same kind of program. Google also has a really neat calendar thing that can be shared. Not for us here but look at it and imagine the possibilities. Look at www.monheganwelcome.com/calendar.html
As far as I can figure out, I'm the only briegull on Facebook (or Clare Durst if you're looking for names). I just looked and found four Lois Mohr names so that won't help. Any of you who want to, look me up on FB and ask to be my friend and when I confirm I'll hook you up to all the others I know are on.
ok briegull. Did that. There is a place on the left side of your photo page to write something about yourself and I wrote "member of thealtzheimerspouse.com website. I had no idea there were so many Lois Mohr. I am the one at Parkersburg, WV
My daughter invited me to join Facebook this morning, I've set up a page and invited those of you I know to become friends. I'll add Briegull and Imohr to my invitation list, I asked Jen earlier. So if you get an invitation from a strange man named James, It's only me.
I think Facebook is an excellent way to get to know our friends here on a more personal basis (as if we didn't already have TMI) and will give us an opportunity to post pictures and other things of interest.
You'll have to excuse me, I'm new at this and don't know all of the rules yet, I promise I'll try my best to behave. I sent you a short reply. Now I've got to get some pictures posted. My daughter has promised to help me out with this.
SOMEBODY VISIT MY REALLY COOL MySpace PAGE AND BE MY FRIEND.....it's so sad and lonely just sitting there. You can decorate your page, play games with each other (or not), it's fun. You can put your music on there to run when your page opens. I had fun with it when I had a page before, when my kids were talking to me. So, come look me up ....I think you can find me at StuntGirl.....or, try Jennifer Lynn Canton.
A chat room can be set up associated with this site. Not sure if there are any associated costs. I think in that case we would not need a moderator. Most are set up with 'rules' so that Joan could block anyone that's abusive, etc. But of course Joan doesn't need anything else to do. But it would be nice if sometimes we could go to a chat room associated with this site and talk to any 'friends' who happen to be online. That would be MUCH more useful than going to an ALZ Assn site with 'strangers'. You can chat thru Facebook (but unless security is set up a certain way it's too public and only one-on-one even then), can all download free chat, e.g. ICQ (is great and has been around a long time), but the logistics of us all doing that and then keeping the word going as new people find this site is...un-do-able. I would personally be willing to donate again if Joan wants to add a 'chat' feature. And BTW, we've set up so eventually this site will be the beneficiary of memorials.