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General: He is driving me crazy at times

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    • CommentAuthordmisey1
    • CommentTimeApr 15th 2009
     
    I work full time then I get home all he wants to do is watch tv,and sometimes going outside.Jim is going to be in A HOMETHIS SUMMER I AM TRYING NOT TO BE SELFISH BUT THIS IS NOT THE MAN I MARRIED.WE HAVE BEEN TOGETHER FOR 16 YEARS 10 OUT OF THE 16 WERE GREAT THE LAST 6 HAVE BEEN VERY CHALLAGING.
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      CommentAuthorStarling*
    • CommentTimeApr 15th 2009
     
    You do what you need to do when you need to do it. Take care of yourself too.
    • CommentAuthorAdmin
    • CommentTimeApr 15th 2009
     
    dmisey1,

    You have expressed what only a spouse can understand - "He is not the man I married." To me, that is the ultimate shock of Alzheimer's Disease - that it turns the person you know into a stranger. Then we have to live with and relate to that stranger. It is very, very difficult.

    joang
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      CommentAuthormoorsb*
    • CommentTimeApr 16th 2009
     
    My wife and I are on a trip to D.C. I hope I can cope with all the changes. She now is unable to use escalators. The airports are full of them. She is constantly asking questions, and I know full well she will not remember the answer, and will ask it again in 15 minutes. My wife has really gone down hill on her mobility. I think this maybe the last trip we take.
  5.  
    Good Luck moorsb. See you when you get back.
    • CommentAuthorjimmy
    • CommentTimeApr 17th 2009
     
    moorsb,

    You should be able to find an elevator in any of the airports, they are required under ADA to accomodate a person in a wheelchair.

    My DW developed a fear of escalators a couple of years ago, they are found in about every mall and major department stores in our area. The elevators aren't always located in a convenient location, but they are there somewhere.

    If you will let the airline know that your wife needs special assistance, they will make arrangements take both of you through the airport on one of those shuttle vehicles to your next gate or baggage claim.
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      CommentAuthormoorsb*
    • CommentTimeApr 17th 2009
     
    Yes, some of the museum have wheel chairs. We do not own a wheel chair, but that will change as soon as I get home. I am hoping the hotel will loan us one she can use while we are here.
  8.  
    Good luck on your trip! Have you called the hotel to see if they have a wheel chair or can get one for you to use?
  9.  
    dmisey1, You need to take care of you. I placed my DH last Friday and I am working on getting my life back. I am working on being at peace with my decision. My friends here and in the "real" world and my family have been very supportive during these challenging years. I know we are both safer. Most of us try to be martyrs, I know I did, I swore I'd take care of him until the end. The end, I have learned, does not have to be death. He's gone -- he just hasn't passed away. This is the saddest disease anyone can get. Today my Mom reminded me of all the good times we used to share with DH and to think about those and to move on with my life. I love her so for understanding.
  10.  
    Maggieroni, your Mom is right - just think of all the good times - then move on with your life. You did all you could do.

    dmisey1, just know we are all here for you. You will do what is right for you. And, do take care of yourself.

    Arms around both of you.

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