I am a bit new to the insurance merry go round. I called dh ins rep and they said with a letter from the dr they would cover it. I called Caremark and they said under our plan they would cover all but $20. The dr office just called. The dr spent 30 min on phone with HealthNet and they said with or without the letter they would not cover it. The Accera rep the dr spent time with said no ins co will touch it until Medicare approves it - which could be who knows when.
My question is - Who do I believe? We can't afford a huge med bill. And how much is it without ins?
Lately, days with business, dh, and kids have been a bit rough - I really did not need this right now!!
My brother in Fla. age 79, is on this med. and his ins. doesn't cover so he gets samples from his Doc. He said today that it will be a long time before it's even approved.
bluedaze: brother lives in Ocala, I am new to this. DW just diagnosed in the last week at U. of Mich. An boy am I lost.thanks, for the WELCOME. I lookat this every nite but never had the nerve to try it out.
dick-we don't bite. You will find this site to be the place to finally be comfortable discussing things the rest of world won't understand. It's ok to get mad at the world-and even at your wife for doing this to you both. Not the way things were supposed to be.
Bluedaze-I'm not mad at the world or my wife. I'm mad more at myself. I had a BIL pass 3 weeks ago, and I was not a big enough person to take the time time to go and see him or my sil. I will be making a public apoligy to her on this site for all to read, as I understand I was a subject of a good butt wooping many times here, and well derserved. The first person to contact me when I did find out about my wife and offered to be my support was my SIL Joyce43 who I'm sure a lot of ypu know. Thats why I find it hard to let go. This may not be the forum for this, but you are the first one I've had contact with. Thanks
dickt33, we tend to get way off topic here and Joan has to get us back in line. You may want to start a new thread titled "Sorry Joyce43" or something like that to make sure she sees it. I'm sure you're forgiven. The only ones who truly understand this disease are the caregivers. Welcome to our group. We do understand.
Caremark told me my insurance would cover Axona but I haven't tried to get a prescription yet. Bet they were wrong. I didn't want to start Axona in addition to the new medications he was given after his heart attack. I'd better order more MCT oil. He has definitely been better on it.
I just checked at our pharmacy. Axona is not covered by our insurance and will cost $98 per month. The MCT oil is $18 per month, so I think I'll stay with that. Also, I have not really seen any change since starting the MCT, but also not much deterioration, so maybe she has the APOE4 gene. I might consider a one month trial of Axona. I'll discuss this with her doctor next week.
welcome brightstar..yes its too new to know yet and some are having issues with who is going to pay if out of pocket or insur. i am sure within a few weeks you will hear more here on who is giving it. welcome-divvi
I suspect it's way too soon to be able to tell if anyone is doing better on Axona than MCT oil. Axona only came out a couple of weeks ago, and most of us haven't managed to get our hands on it yet. And most of us haven't had our spouses on MCT oil all that long, either, to be able to do a valid comparison.
Tell us more about you. We have some fun threads, on the ages of the caregiver and spouse, and where you live, and what your spouse did "before", if you'd like to participate in any of those.
And do you have any other questions that we can't answer for you? <grin>
Hi Brightstar...I have a little white Havanese dog.
You will also enjoy our game of "play-like" or "p'like" as I prefer to call it. We have clam bakes, cocktail parties and sometime, we just run away from home together. The reassuring part of this site is that the friends you'll meet are real, they are NOT imaginary. Such love ...you can never imagine.
"pl-like"???? I thought I was the only one that remembered what that meant! I've found that kids nowdays don't know what "playing pretend" or "play-like" means. I say KICK 'EM OUTSIDE where they belong!! Like my parents did for me! Dont' know where I'd be or what kind of mess I'd be if I were allowed to stay inside and play computer games and watch television eight hours a day every weekend like they let them do today. I once asked my granddaughter if she and her friends ever played pretend and she didn't know what I was talking about. Sad. The best when I was a kid was when a group of us would get on our ponies at night and race around on the woodland trails and "pretend" we were bandits or civil war spies!!! When I think back on it, I think it was dangerous and wonder what my mother was thinking!