In several post here lately, I have seen talk of people not joining in. Come on all you lurkers, we have all been in your shoes. You may not think you have something to contribute but I think you do, So I am asking you to come out of lurkdom and join us. I truly learn more when I can read of everyone's experiences. So please join in, we all need to know we are not the only ones struggling thru this alone. Seems like there have been a lot of new people join in lately, but I have a feeling there are more of you just reading and not sharing your experiences with us. Unfortunately we are all in the same boat, Let's try to keep it afloat together. Come on............................... LURK no more! Rk
Don't forget to post to the post that Welcomes Newbies and Ages, where you live etc.
I look at it this way, the medical community doesn't have all the answers and I believe that by hearing different opinions on subjects from different members I gain a better understanding of it all.
maybe they are cats and enjoy this site cause yall talk bout 'cats' so much:) stressed just joined and shes new...more will join, they are gathering courage..:)divvi
Well, I adopted Noche` from the animal shelter. I was told on good authority that a pet would reduce stress. We've had him for almost 5 months now (how time flies) and I love this little furry creature to death, he's such an athlete, so bold and curious, funny and gives lots of joy, he is a true stress reducer--most of the time! We had some follows here working on the roof--naturally His Highness had to climb their ladder and spent most of the morning on the roof with the guys where all the action was.
Now lurkers, don't let me scare you away with talk about my cat. Just give us a try. We really are a great group of people. Try it. You'll like it! :)_
I will admit I've been lurking for about a month. I'm 55 and DH is 70. His mother has AD, is 90, was dx at 75. We have noticed changes for about 2 yrs. Not dx yet, but were preparing to make appt. when I read about the coconut oil. Been using for 2 wks. We both notice a difference, worth continuing. I use it in cooking, but have made it into candy by melting a tsp. in ice cube tray and adding a sm. amount of choc. then I p pop it into the freezer to harden and then pop them out into a baggie and put in fridge. He remembers to eat them and likes them. FYI I live in KY.
hallelujah Andy!! thank you for coming to our rescue for all the lurkers out there! glad you are finding useful info-post your results on coconut oil candies (excellent idea!!) on the coconut oil thread later!!! glad you joined us. divvi
Andy, hi, and welcome to our family! (Now, posting wasn't painful, was it? See, you other lurkers?)
Please let us know how the appointment goes. The Accera tests showed that AD meds (properly prescribed after an accurate diagnosis) and MCT oil work better together than either one alone. Every little bit helps.
Welcome Andy...I'm an "old timer lurker"........been around since the beginning. These people are the best of the best. They will hold your hand and give you a hug when you need it.......are all ears when you need to just spout off......and make you laugh when you didn't think you could....Oh ya and they can make you blush and giggle.........The best part is...they have been there or are there and they have outstanding advise!
Come on in lurkers....It's a great place to be! : )
Hello dear friends. I've been a'lurkin too. Today, this is the 4th attempt to respond to this.. So I'm just going to say. Hi..things are relatively calm I'm trying to regroup and reclaim studio space here at home so that I can keep painting. As DH's limitations increase, my world/work/etc. decreases and its hard to get to town and settle in to work before its time to get back. I started thinking about 'possibilities' and figured that there's no reason I can't just set up and work here. Furthermore, most of my artist friends have had websites for years. Something I've needed to do but haven't been able to even think about. Anyway, thats whats up out here in the boonies. Still am so thankful for this site and for Joan and for all of you. A hearty welcome to those who are 'newly gathered here'.. Its the very best place to be.
Hi All Well I'm not sure you would call me a "Lurker" as I have posted a couple of times . But I do check the site every day . My DW Is maybe in the 2nnd or 3rd stage . We still go out a lot but just can not be around a lot of people . Have stopped going to Church even though it is a very small Church . She just cannot remember the names . I notice her memory is getting worse . She is now on the Exolon Patch and Nemenno twice a day . Tonight was a frustrating time for us . She wanted to do Dinner . She stills thinks she can do all like she did at one time. As you all know this is not so . I had to go in to finish it . She still put up the dishes from the DW but we have to hunt them a lot LOL .But thank the good LORD she still the sweetest thing in the world . We are in our 59th year . I love this site it so good to share these things . We are very lucky to have two sweet daughters that know what is happening to there MOM . I just wish they were closer . Oh well can't have it all . Thank all of you .
Ribbit, welcome! You sound like you have everything in hand....finishing the dinner after she starts it....allowing her to try and feel useful is SO important. You have developed a lot of patience. As time goes on, your patience will grow as necessary. Congratulations on 59 years!
Ribbit, good to have you back. My DH is in late 5 early 6 and on Aricept and Namenda. He also has severe spinal stenosis and Parkenism, which has him drawn over at the waist. He still wants to go to Church so I take him every Sunday morning. He still remembers names but he cannot sit or stand very long so we just stay an hour. Ours is a small Church also (30 or so) and he has greeted in the foyer and distributed chewing gum for years and also take up the collection. We go a half hour before Church and leave as soon as he takes up the collection. He is happy visiting with friends he knows and doing his jobs. This is pretty much the extent of any socializing he does. Everyone there knows he has dementia and don't expect anything from him.
I have been a lurker for quite sometime but the last couple of days while DH has been watchin TV I have got to post on acouple of discussions. DH is 69 was diagnosed with vascular dementia about 4yrs ago. I am 67yrs.The first we knew of DH been ill was him telling me one morning that the neighbours were going to torture him then kill him, he was terrifed. After a few weeks on medication he was admitted to hospital in the mental health ward, they told us he had a late onset of schizophrenia. After about 18mths under the mental health we were told he had dementia. That first year was terrible we went from the phones been cut to they were putting gas into the house he just couldn't understand why we couldn't smell it.(We have an adult son back living with us) He is now on olanzapine which has helped alot.The voices he hears are now mostly only trying to steal our outdoor furniture or the tiles on our roof.There are not alot of things he can do now but one he likes is washing & drying the dishes though I do find things in funny places.DH goes to daycare twice a week at a Resthome at the bottom of our street which is very handy for me as I have my Father(95)in the dementia ward there & also my Mother(89) in the village part of the same Resthome. I spend one of the days DH is in care with my Mum & visiting my Dad each week. I have also got 30 days a year respite care paid by our goverment which I started using last year. I'm so glad our local Alzheimers Society newsletter put Joan's site address in it. The first time I read Joan's first blogs I just sat at the computer & cried I just couldn't believe someone was writting about just how I felt. Thankyou Joan for your wonderful site & the help it has given me here in New Zealand
Oh my, Patricia - you do have a full plate. I am so sorry for all you are having to endure but I am glad you did find this site. It has been a lifeline to all of us here. Posting and letting your feelings out is great therapy and will help you mentally so I hope you can post more frequently now that you have got started. It is 3 a.m. here in WV tonight and I just had one of my mid-night wide-awake times. DH is fast asleep and thankfully he does sleep good all night.
Thanks Imohr it is 10.20pm there in N.Z. & looks like I will be at the computer for awhile yet as my DH is hearing neighbours getting our outside furniture. He sleeps good most nights but when like this will lie there listening for hours sometimes. I find I sleep better at these times if I stay up untill he is asleep.
Welcome, Ribbit50. It's good to have another man on board. Sounds like we have several things in common. My DW is in early stage 6. She can still do some things, like eating and going to the bathroom when I tell her to, but I have to do a lot - get her dressed, remind her to brush her teeth, grind up her pills (she won't, or can't, swallow them). She still joins me in going to church. We start with an adult forum at 8:30 AM!!!! She doesn't take part in the discussion, but seems to enjoy being there. She then sits quietly through the service, and joins in the coffee hour after (as long as she has her cup of coffee she is happy) She is still sweet and loving, frequently saying she wants me to be happy. We have been married for 55 years, and dated for 8 years before that (starting when I was age 14). We have 2 daughters who are a big help even though they live far away. Our son is all the way across the country (San Francisco and we are Maine) so there's not much he can do.
Hi Marsh Yes looks like we about the same . We have been married 58 years . She is just as sweet now as she was then . I do wish we could get back in our Church but she just will not talk about it . So I let well enough alone . The Church members all understand . Like you we have two daughters . One is about 50 miles from us the other in Olympia Wa. They both very understanding . We just take it one day at the time here