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    • CommentAuthorSunshyne
    • CommentTimeDec 29th 2008
     
    carolfrank posted under "off topic: Making things easy for ourselves"

    lkincaid's wife has been diagnosed with Primary Progressive Aphasia, for those of you whose spouses have received the same diagnosis.
    • CommentAuthorSunshyne
    • CommentTimeDec 29th 2008
     
    folly, when you want to find a particular post, one way is to use the "search" button at the top of the page. Enter the name of the poster, followed by a colon, and then a key word (or key words, or part of a key word), click on "comments", and then click on "search". So if you want a post by me on glucose metabolism, you could enter:

    sunshyne: glucose

    which pulls up seven posts.

    Entering:

    sunshyne: glucose metabolism

    pulls up two posts.

    It those are not the posts you had in mind (or you want additional information) please let me know what you'd like.
    • CommentAuthorKadee*
    • CommentTimeJan 1st 2009
     
    Welcome Martha, I am so sorry for you need to join us, however, I am sure you will find that everyone is kind, helpful & non-judgemental. My husband is 58 & suffers from FTD. We have grown children, however, there are others on this board that have younger children.
    • CommentAuthorKadee*
    • CommentTimeJan 1st 2009
     
    Welcome Ribbit50, Sorry for you need to join us, however, everyone is very helpful as I am sure you have found out reading over the past few months.
    • CommentAuthorEvalena
    • CommentTimeJan 2nd 2009
     
    Welcome to CharlotteE.
    She just posted on the "Where are you from?" and "Anyone going thru the VA?"topics. She lives in Washington State and asked if any of us had used the Portland VA. Not me - I'm on the east coast.
    • CommentAuthorKadee*
    • CommentTimeJan 3rd 2009
     
    Welcome CharlotteE, I am sorry for you need to join us, however, I think you will find everyone helpful.
    • CommentAuthorKadee*
    • CommentTimeJan 3rd 2009
     
    Welcome Desert Barb, Sorry for your need to come here, however, I am sure your will find this a safe place to land. My husband is 58 years old with FTD. Memory problems started about gosh, it's probably been going on 6 years now.
    • CommentAuthorCharlotte
    • CommentTimeJan 3rd 2009
     
    Thank you Kadee. I am glad I found this before my sister returns (she went away for Christmas). We have our RV parked at my oldest sister's. Her husband died in Jan 2008 at age 86. We were here the last two years helping her take care of her place and helping where we could. She did most of his care with breaks when he did his respite at the VA and she put him in a foster home for a couple months. Brought him home where he died a month later. I don't think I can do that - doing all his care like when he gets towards the end.

    The point being - she went into a deep depression after he died and is just coming out of it. I know my sister and she will say she knows what I am going through but she doesn't. She is 14 years older than me, this was her third marriage and they had only be married 7 years when he died. He had a stroke after 2 years of marriage of which he recovered from quickly but he still went downhill - gave up so to speak.

    That is way different than the person you have been grown up with for 37+ years, been through everything with and now have to see your life end at an early age (big difference between 86 and 61). Basically what I am saying is that I don't expect much empathy for her - plus my whole life I was the one that was said to not need any ones help. Long story i wont' go into.

    Thank you for being here because I know as time goes on I will reap even more comfort and help.
    • CommentAuthordivvi*
    • CommentTimeJan 3rd 2009
     
    Welcome to all new members! we had a rush of newbies in the last couple of days. Its a great relief to finally find a place that understands what caring for AD spouses entails. here we offer experience from handson advice and suggestions some will find helpful. hope to see all of you posting and looking forward to knowing you better. my best, Divvi
  1.  
    Welcome to all the newbies. We hope to hear more from you.
    • CommentAuthorSunshyne
    • CommentTimeJan 4th 2009
     
    diana just posted under the thread " Anyone Used a Geriactric Planner?"
    • CommentAuthorKadee*
    • CommentTimeJan 4th 2009
     
    Hi Diana & Welcome. Glad you have decided to post, besides just reading. As you have found everyone is very helpful. I feel this board & these people have been a godsend to me. They even tolerate that I don't have cats.
  2.  
    Kadee-don't push your luck :-)
  3.  
    Nora, I thought Kadee said she would get one if she had to! <grin> Maybe that was someone else!
    • CommentAuthorKadee*
    • CommentTimeJan 4th 2009
     
    I think that was someone else. I do like cats, just don't want one at this time. Please, lip pouting, let me be your friend anyway.
  4.  
    Kadee, I have two dogs and no cats RIGHT NOW. I love cats as much as dogs. I'm an equal! You are our friend, no matter what!
  5.  
    meow (OK)
    • CommentAuthorKadee*
    • CommentTimeJan 4th 2009
     
    Another new member, she snuck in under New Here Post. Hi Carrollouise and Welcome.
  6.  
    Welcome Carrollouise!
  7.  
    Does she have any pets?
  8.  
    ROFLMAO
    • CommentAuthorKadee*
    • CommentTimeJan 4th 2009
     
    Thanks Mary, Let see that's 1.
    • CommentAuthorKadee*
    • CommentTimeJan 4th 2009
     
    When my boys were younger, we did at one time have 3 adult cats & 8 kittens, that should count.
  9.  
    Oh, it does!!!
    • CommentAuthorSunshyne
    • CommentTimeJan 4th 2009
     
    A big fat HI from me, too, Carrollouise! We know you run a support group ... tell us more about yourself and your husband. And tell us what we can do to help...
    • CommentAuthorKadee*
    • CommentTimeJan 5th 2009
     
    Hi & Welcome Herenow, I am sorry you need to join this group, however, I am sure you will find everyone kind, non-judgmental & helpful. Please feel free to post at anytime. My husband is 58 with FTD.
    • CommentAuthorKadee*
    • CommentTimeJan 5th 2009
     
    Hi and welcome to Libby402, I am sorry you need to join this unfortunately increasing family. However, I am sure you will find everyone helpful. My husband is 58 with FTD.
  10.  
    Hi and welcome Carrollouise. If you run a support group, I'm sure you will have a lot of good advice for us here. Welcome also to Libby402. I don't have cats either but apparently I've been forgiven. They're still nice to me.
  11.  
    I'd like to chime in about Carollouise. We got to know her when she was brought in to replace our former support group leader. She is wonderful--very knowledgeable and compassionate, and a great sounding board for my ideas. Although my DH is in the middle stage, he is great at compensating and very high functioning. However, my outlook is very proactive--I want to plan for what's coming and reduce the number of surprises. Carollouise really has been an enormous help to me, in the practical and emotional senses. She has lots of experience with dementia patients in general, and has also become an expert at young onset dementia. When I found this website, Itold her what a great resource it is and that she should check it out.
    • CommentAuthorKitty
    • CommentTimeJan 7th 2009
     
    Wow, so many new members! Welcome all. I hadn't read these posts until today, there were 126 new comments which I knew would take some time. Hope I can keep you all straight. That comes with time. I see there are several cat owners, & yes bluedaze I would want to know! (but I like dogs too) Dazed, you are so funny.
    • CommentAuthorSunshyne
    • CommentTimeJan 7th 2009
     
    ol don just posted on Where are you from?
    •  
      CommentAuthorol don*
    • CommentTimeJan 7th 2009
     
    Saginaw Mich,wife is the unlucky one to have been diagnosed with this terrible disease,she worked for school system an taught for over 30 years an then a few years ago things started to go downhill,we both thought "old age" an kind of blew it off but have since found out it was much more than that.I'm 71 an trying to cope as best I can,she's at the stage now where she thinks her boys live here an always wonders where they are,imagines she still has home in Fla,loses thngs,hides things,doesn't know me her husband of 20 years,asks me who I am,will I be spending the night,wants a divorce because I'm never here,I pray every day for the strength an compassion to care for her like I know she would for me,sorry for the long winded note
    • CommentAuthorSunshyne
    • CommentTimeJan 7th 2009
     
    Long-winded? Gourdchipper and I have been jockeying for who can write the longest posts, and trust me, ol don, you don't come even close! <grin>

    I am so sorry, it's so very difficult to try to deal with what this does to our beloved spouses.

    Have you read "Understanding the Dementia Experience"? Joan has a link to it on the home page (partway down the menu on the left, the picture of the woman with the life jacket and the yellow "need help" sign.) Or copy this and paste into your browser:

    http://www.alzheimercambridge.on.ca/Understanding%20the%20Dementia%20Experience.pdf

    It may help give you ideas on how to do with such questions...
    • CommentAuthorKadee*
    • CommentTimeJan 7th 2009
     
    Welcome Ol Don & Perk, In one sense I am glad you have found this forum, everyone is very helpful. In another sense I am sorry for your need. Sadly, there are so many new members.
    • CommentAuthorKadee*
    • CommentTimeJan 11th 2009
     
    Welcome Lullie, I am sorry for your need to come to this forum, however, I am sure you will find everyone kind & helpful. I have noticed you have posted on some other post, which is great.
    • CommentAuthorLullie
    • CommentTimeJan 11th 2009
     
    EVERYONE THANKS FOR YOUR SUPPORT! I am a "newbie" and your support and care is awesome. What a blessing this site is for all of us when we feel so alone.
    Thanks, Lullie
    • CommentAuthorAdmin
    • CommentTimeJan 12th 2009
     
    I am going to make this discussion stick to the top so it will be easy for new members to find.

    joang
    • CommentAuthorKadee*
    • CommentTimeJan 12th 2009
     
    Joan, That is a great idea.
    • CommentAuthorPatB
    • CommentTimeJan 12th 2009
     
    Lullie,
    You'll love it here.....must warn newcomers......site is addictive.......

    PatB
    • CommentAuthorMMarshall
    • CommentTimeJan 12th 2009
     
    I would like to issue an appology to all new memebers. I have been remiss and involved in my own issues but I would like to send a big welcome to all of you. I hope you stay and learn as I have. Your hand will be held and your heart will be cared for here. M
    • CommentAuthorcarma
    • CommentTimeJan 12th 2009
     
    Hello to all new members. I am also sorry for the cause that brought you here. I have been so busy with my DH that I had very little time to post. I do try and read the posts during the day whenever I get the chance. Again welcome to all newbies.
    • CommentAuthorSunshyne
    • CommentTimeJan 14th 2009
     
    Teri T just posted on the thread "Everyone thinks we're exaggerating!"
    • CommentAuthorKadee*
    • CommentTimeJan 14th 2009
     
    Hi Teri T & Welcome, I am sorry for your need to join this forum, however, since you mentioned you have been reading, you know how helpful Joan has made this site.
    • CommentAuthorEvalena
    • CommentTimeJan 17th 2009
     
    Stressed just posted under the "Venting" topic (how appropriate!). She is 53 and DH is 59.
    I think it's her first post.
    • CommentAuthorKadee*
    • CommentTimeJan 17th 2009
     
    Welcome Stressed!
    • CommentAuthorKadee*
    • CommentTimeJan 18th 2009 edited
     
    Welcome Andy, I am sorry you need this forum, however, you mentioned you have been lurking so, you know everyone is very helpful. Please feel free to post at anytime.

    Andy posted on "Lurkers come out"
    • CommentAuthorKadee*
    • CommentTimeJan 18th 2009 edited
     
    Hi & Welcome JoJoDancer! Sorry for your need to come to this forum, however, I am sure you have realized from reading that everyone is kind, helpful & non-judgemental, venting is good sometimes.

    JoJoDancer posted on "Venting"
    • CommentAuthorMMarshall
    • CommentTimeJan 18th 2009
     
    Hello, TeriT, Stressed, Andy and JoJoDancer. Although I am happy that you have found us here, I am also saddened that there are so many of us that are dealing with this terrible disease. You will find us accepting and helpful. Welcome.
  12.  
    Ribbitt is new and posted a few minutes ago....
    • CommentAuthorSunshyne
    • CommentTimeJan 18th 2009
     
    Ribbit? I could have sworn someone by that name joined a while back... late November, I think. Ribbit50. Do we have another? Where?