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    • CommentAuthorKadee*
    • CommentTimeOct 18th 2008 edited
     
    I apologize if there is a post to Welcome New Members, however, I couldn't find one. So many new folks have decided to join our family, I thought it would be a nice to have a place to welcome them. I know I have not welcomed new members in the past, because I didn't catch a reply to another discussion.


    Welcome Phyllis 9, I am sorry for your need to join our family, however, I am sure you will find everyone kind, helpful, & non-judgmental. There will be others along shortly to welcome you also. Please feel free to post at any time, there always will be someone to listen & try to help.
    • CommentAuthorKadee*
    • CommentTimeOct 18th 2008
     
    Welcome Jules, I am sure you will find this forum very helpful. Everyone is very kind & understanding of the things you are experiencing.
    • CommentAuthorAdmin
    • CommentTimeOct 18th 2008
     
    Comment Author Sunshyne Comment Time 33 minutes ago edit delete

    OK, unless I miss my guess, two newbies have sneaked into our midst ... jules and Phyllis 9.

    A big, warm welcome to you both!

    We know your ages ... this has GOT to be the only place on earth where the first thing we learn about someone is his/her age! <grin> Please tell us more. We'd love to get to know you, and help any way we can.
    • CommentAuthorAdmin
    • CommentTimeOct 18th 2008
     
    I've been out all day, and now I'm lost on my own message boards. I cannot find Phyllis9 or Jules. Where did they post?

    Welcome to my website to both of you, and when I find your comments, I will respond in my more usual chatty manner.

    joang
    • CommentAuthorKadee*
    • CommentTimeOct 18th 2008
     
    Welcome Pamsc, I am so sorry you need to join us....seems I am saying this way too many times here lately. I know you will find this forum very helpful, everyone here is kind, understanding & very helpful. There will be others soon to welcome you also. Please feel free to post at any time, with any question or comment.
    • CommentAuthorSunshyne
    • CommentTimeOct 18th 2008 edited
     
    Joan, Phyllis9 posted on What are the age groups, Medication change/behavior change, and Ages of the caregivers. Jules is only on Ages of the caregivers.

    Pamsc posted on Ages of the caregivers and Surgical anesthesia and dementia progression.
    • CommentAuthorKadee*
    • CommentTimeOct 19th 2008
     
    Welcome RK, I am sorry that you have the need to use this forum, however, I am sure you will find everyone kind, helpful & non-judgemental. My husband is 57, started having memory problems at 52, recently after years of test was diagnosed with Frontal Temporal Dementia.
    • CommentAuthorEvalena
    • CommentTimeOct 19th 2008
     
    Denny joined us yesterday by posting on the Surgical anesthesia and dementia progression.
    There are so many new members. Internet access is a wonderful thing!
    • CommentAuthorSunshyne
    • CommentTimeOct 19th 2008
     
    Rk posted under Respite.

    Belinda.K started the thread "Divorce to save your assets." (Joan already found that post, and is busily digging up info for her.)
    • CommentAuthorKadee*
    • CommentTimeOct 19th 2008
     
    Welcome Don, Joan & others will be along shortly to welcome you also. I am sorry, you need to use a forum like this one, however, you will find everyone very helpful. My husband is 57 years old with FTD.
    • CommentAuthorKadee*
    • CommentTimeNov 4th 2008
     
    Welcome to Bar-bra & Jaydee.
    • CommentAuthordivvi*
    • CommentTimeNov 4th 2008
     
    Welcome to everyone from me too! wow, there was a huge burst of newbies in the last couple of weeks. i know i did the same thing of just joining one topic the first time i posted as well instead of introducing myself:) i hope everyone joins in and puts their 2 cents in for each topic, makes for such interesting reading:)
    divvi
    • CommentAuthorRk
    • CommentTimeNov 4th 2008
     
    Well Thanks for the Welcome, I am just the type that just jumped in as well. Heck, I didn't even lurk! Thanks for such a great place to land! Rk
  1.  
    Welcome, all newcomers! We are here with open arms, and will be happy to hear from you! If there is any question you wish to ask, or any advice you wish to give, please let us know!
  2.  
    Welcome from me also...this is the warmest family you will ever choose. Everyone here has so much wisdom and experience and so willing to share. Hold our hands through this journey.
  3.  
    Another welcome. What Stephanie K-G said is so true. I can't imagine facing this AD journey without joan's place.
    • CommentAuthorBar-bra
    • CommentTimeNov 5th 2008
     
    THANKS all for your warm welcomes ...... yes, we all definitely do need each other as we take this journey with our loved ones.

    I've found, reading all your postings, a wealth of information, all of which I appreciate very much. Hopefully, as time passes, I too will be able to share something I've learned along the way which may help someone else.
    • CommentAuthorJane L.
    • CommentTimeNov 5th 2008
     
    I add my welcome, too, to a site that gives invaluable info from Joan and caregivers who can share experiences and information. It's reassuring to know we're not alone, and folks here are kind and understanding. Reading that a particular behavior has been dealt with by others and how to manage it have been beneficial. A key thing to remember: like fingerprints, if you've seen one person w/a dementia, you've seen one. They're different in one way or another, but the same. AND keep your sense of humor.
    •  
      CommentAuthorStarling*
    • CommentTimeNov 5th 2008
     
    Welcome to everyone who is new. You have found the right place. Do feel free to jump into any of the topics.
    • CommentAuthorKadee*
    • CommentTimeNov 6th 2008
     
    Welcome m-mman, I am sorry you need to join us, however, you have found a place where you will find everyone, kind, helpful & non-judgemental. My husband is 57 years old, his memory started declining about 6 years ago. He had Frontal Temporal Dementia (FTD)
    I am sure there will be others along to welcome you soon. Please feel free to post at any time. Also, I keep the track of ages of spouse & caregivers if you would like to reply to that post. There is also a Where are you from. I will send these to the top.
    • CommentAuthorKadee*
    • CommentTimeNov 6th 2008
     
    Welcome BillH, I am so glad you have decided to post. As you have been lurking for the past year, you already know how kind, helpful & non-judgemental everyone is. Again Welcome.
    • CommentAuthorKadee*
    • CommentTimeNov 6th 2008
     
    ttt
    • CommentAuthorKadee*
    • CommentTimeNov 7th 2008
     
    Welcome Judi
    • CommentAuthorAdmin
    • CommentTimeNov 7th 2008
     
    Somebody please HELP. I try to keep up with new members and welcome each one individually, but I seemed to have missed Bar-bra and Bill H. Where did they post?

    Welcome to my website Bar-bra and Bill H. You will find lots of support and information here. Please log onto the home page - www.thealzheimerspouse.com- and check out the section for new members, the previous blogs, and I would also suggest the section that says HELP - Understanding the Dementia experience, which has been extremely helpful to a lot of us, including me.

    joang
    • CommentAuthorSunshyne
    • CommentTimeNov 7th 2008
     
    Joan, the easiest way to find where they posted is to go to search, and enter "Bar-bra: " and click on the Comments button.

    Both of them posted under Ages of Caregivers

    annieL is new, too.
    •  
      CommentAuthorNikki
    • CommentTimeNov 7th 2008
     
    Goodness, I missed a few too. Welcome welcome Annie L, Bar-bra m-mman and Bill H :)
    • CommentAuthorAdmin
    • CommentTimeNov 7th 2008
     
    Sunshyne - That worked. I found them. Thank you.

    Is there anyone who can figure out how many men we have? I have an administrator account, but it doesn't have a list of members. Advanced thanks to anyone who wants to tackle that project.

    joang
    • CommentAuthorSunshyne
    • CommentTimeNov 7th 2008
     
    It depends on whether you're talking about members who are still actively posting, or you want to include anyone who ever joined who clearly indicated he was male. I counted three dozen for sure (made references to their wives) posting since February.
    •  
      CommentAuthorStarling*
    • CommentTimeNov 7th 2008
     
    As this group gets larger it will get harder to welcome each individual member. To all the new members, and to any lurkers out there who read this, know that you are each and every one welcome to this place. We care.
    • CommentAuthorAdmin
    • CommentTimeNov 7th 2008
     
    No, I wasn't thinking about those actively posting. Just wondering how many have popped in now and then. 3 dozen? Wow!

    joang
    • CommentAuthorSunshyne
    • CommentTimeNov 7th 2008
     
    37 to be precise. As for popping in every now and then, it's surprising how many people pop in without ever posting. Can't tell from the "handles" how many of these are guys.
    • CommentAuthorSunshyne
    • CommentTimeNov 8th 2008
     
    We have another new member, LFL, who just posted under What are the Age Groups. Her husband has FTD.
    • CommentAuthorEvalena
    • CommentTimeNov 8th 2008
     
    Just wanted to welcome to LFL, BillH, m-mman, Bar-bra and others who "jumped in" recently. This is a great place to go for info and support.
    • CommentAuthorKadee*
    • CommentTimeNov 8th 2008
     
    Welcome LFL, My husband is 57 years old, he also has FTD. He has treated for dementia for almost 6 years, however, after the 2nd PET Scan in July he was diagnosed with FTD. Please feel free to post at any time. Everyone here is kind, helpful & non-judgemential.
    • CommentAuthorSunshyne
    • CommentTimeNov 8th 2008
     
    Tish2p, just posted under "dear husband smells different" ... which is pretty much all we know about her so far. :-) (I already welcomed her, Joan. Go back to playing with Zazzle.)
    • CommentAuthorKadee*
    • CommentTimeNov 8th 2008
     
    Welcome Tish2p, I am sorry you need to join us, however, you will find everyone kind, helpful beyond belief & non-judgemental.
    • CommentAuthorSunshyne
    • CommentTimeNov 12th 2008
     
    MMarshall just posted under " Ages Of The Caregivers".
    • CommentAuthorKadee*
    • CommentTimeNov 13th 2008
     
    Welcome MMarshall!
    • CommentAuthorsandy D
    • CommentTimeNov 13th 2008
     
    Welcome everyone! This is a great place to vent, laugh, cry and realize you are not alone. You can ask any question and will not be told you are making a mountain out of a mole hill. This is an amazing group of friends who will support you any way they can...you could not have found a better place to land.
    • CommentAuthordivvi*
    • CommentTimeNov 13th 2008
     
    Welcome to all new members which abound by the minute! so glad you ar taking the time to join in and get the needed support and comfort those of us caregiving for AD so much need-
    will be looking forward to each of your postings! divvi
    • CommentAuthorKadee*
    • CommentTimeNov 13th 2008
     
    Welcome to BLBrown & Brenda
    • CommentAuthorMMarshall
    • CommentTimeNov 13th 2008
     
    Thank you all so much for the warm welcome. I should tell you a little about my situation. My DH was diagnosed with FTD in Oct 2007. He is 68 and I am 64. In truth we knew there was something wrong after hip replacement surgery in December 2004. I am sure that anesthesia had something to do with this. He was in the hospital for a week, some of it in a straight jacket which he promptly got out of and headed for the door. It was scary! Since then, he has gone down hill fast. He is hovering in AD stage 5, with other probles that come with FTD. Manic, aggressive, continually active behavior, hyper sexuality, etc. Not good. We are in the process of adjusting meds to try to keep him calm. He is going to adult day care three times a week. This saves my sanity. Bless his heart, he truly is a sweet man and loves me very much. This damn disease! I hate it....Sorry about that. What a mess! I am a mess, he is a mess and our life is a mess just when we should be able to enjoy it. I thank you for being there. You are a God send.
    • CommentAuthorAdmin
    • CommentTimeNov 13th 2008
     
    MMarshall,

    Welcome to my website. You will find so much information and support here. Coincidentally, the article I put up for my Daily News Section is on Anesthesia and dementia. You will find it on the home page - www.thealzheimerspouse.com in the middle of the page. Alhtough you are not new to the diagnosis, you are new to the website, so I would suggest a good place to start is with the "Newly Diagnosed/New to the website" section on the left side of the website. Also, click on the "previous blog" section and scroll through the topics - I write about my experiences and struggles with an AD husband - I am sure you will find much you can relate to. Look through all of the side topics - they are chock full of information.

    And of course, come here to the message boards for understanding and support. Go to the top of the page, and click the "search" button. Write in FTD, and make sure the "topic" section is circled. Click search, and you will find at least 5 different discussions on FTD.

    joang
    • CommentAuthorSunshyne
    • CommentTimeNov 14th 2008
     
    MMarshall, I have a review paper that discusses the treatments that have been successful (or not) for hypersexuality (and other behavioral issues) in patients with dementia. If you'd like me to email it to you, for your doctor, let me know.
    • CommentAuthorMMarshall
    • CommentTimeNov 14th 2008
     
    Sunshyne,

    I would love you to email the review. My Tom's neurologist has put him on Respradril, along with Aricept and Depakote. We are trying this combo for a week or so to see if it helps. So much to learn! I never dreamed that there were so many spouses in my situation. My email is: marielmarshall@gmail.com.

    Joang,

    I have been navigating your website until my brain aches. You are surely an angel in disguise. Thank you, thank you.

    Marie
    • CommentAuthorSunshyne
    • CommentTimeNov 15th 2008
     
    Done.
    • CommentAuthorMMarshall
    • CommentTimeNov 15th 2008
     
    Received the email, Sunshyne. Thanks again! The correct spelling of DH's new med is Risperdal for anyone else's info. I am now into FTD search. I feel I must learn, learn, learn. It's overwhelming!
    • CommentAuthorKadee*
    • CommentTimeNov 15th 2008
     
    MMarshall, My husband also has FTD. Here is a forum for FTD you might like to check out. http://ftdsupportforum.com
    • CommentAuthorKadee*
    • CommentTimeNov 17th 2008
     
    Welcome jojjo45, Sorry for your need to join us, however, I am sure you will find everyone kind & helpful.
    • CommentAuthorKadee*
    • CommentTimeNov 17th 2008
     
    Welcom SueGall, So sorry you are dealing with this dreadful disease, however, I am sure you will find everyone helpful.