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JOAN'S BLOG - TUES/WED, JULY 28/29, 2009 - IMPORTANT INFORMATION ON SOCIAL SECURITY DISABILITY FOR EOAD -CHICAGO HEARING TODAY

Video Link to Hearing - Click Here

Information on SSI Disability for EOAD - Our member Laura and her husband Jay, were taped on Saturday at their home and were scheduled to be interviewed Monday for ABC News with Charlie Gibson. The program is expected to air on ABC in the evening later this week. Wednesday they will testify at the Social Security Administration Hearing in Chicago. They are testifying concerning getting SSI approved more quickly for the EOAD diagnosis. It is called "Compassionate Allowances", and there are currently 50 diseases for which SSI is approved more quickly for younger patients. Below is the information I have so far:

Compassionate Allowances

"Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.

Compassionate allowances are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. Compassionate allowances allow Social Security to quickly target the most obviously disabled individuals for allowances based on objective medical information that we can obtain quickly.

Commissioner Astrue has held three Compassionate Allowance public outreach hearings. The hearings were on rare diseases, cancers, and traumatic brain injury (TBI) and stroke. The Commissioner will hold the fourth public outreach hearing in Chicago on July 29, 2009. The subject of the hearing is Early-Onset Alzheimer’s Disease and Related Dementias.

The initial list of Compassionate Allowance conditions was developed as a result of information received at public outreach hearings, public comment on an Advance Notice of Proposed Rulemaking, comments received from the Social Security and Disability Determination Service communities, and the counsel of medical and scientific experts. Also, we considered which conditions are most likely to meet our current definition of disability.

A modest 50 conditions were selected for the initiative's rollout. The list which follows will expand over time."


Initial List of Compassionate Allowance Conditions

Additional information about how compassionate allowances are processed

Compassionate Allowance Outreach Hearing on Early-Onset Alzheimer’s Disease and Related Dementia – Chicago, ILL – July 29, 2009


Opening Statements
  • Michael J. Astrue, Commissioner of Social Security Administration
  • Marie A. Bernard, M.D., Deputy Director, National Institute on Aging (NIA), National Institutes of Health (NIH)
  • David A. Rust, Deputy Commissioner for Retirement and Disability Policy, Social Security Administration
  • David Foster, Deputy Commissioner for Disability Adjudication and Review, Social Security Administration
  • James F. Martin, Chicago Regional Commissioner, Social Security Administration

Overview of Early-Onset Alzheimer’s Disease and Related Dementia

  • Harry Johns, MBA, President and CEO, Alzheimer’s Association
  • David Bennett, M.D., Director, Rush Alzheimer’s Disease Center, Rush University Medical Center
  • Michael Weiner, M.D., Director, Center for Imaging of Neurodegenerative Diseases, San Francisco Veterans Affairs Medical Center

Morning Break       

Early-Onset Alzheimer’s:  Today and Tomorrow

  • John Morris, M.D., Director and Principal Investigator of the Alzheimer’s Disease Research Center, Washington University School of Medicine
  • Dan Marson, J.D., Ph.D., Professor of Neurology, Alzheimer’s Disease Research Center, University of Alabama at Birmingham
  • Susan Frick, MSW, Rush Alzheimer’s Disease Center, Rush University Medical Center

Lunch Break

Related Early-Onset Dementia:  Primary Progressive Aphasia

  • Marek-Marsel Mesulam, M.D., Director, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University
  • Sandy Weintraub, Ph.D., Director of Neuropsychology, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine
  • Darby Morhardt, MSW, LCSW, Director of Education, Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine

Afternoon Break

Individuals with Early-Onset Dementia and their Families

  • Jay and Laura Jones, Individual Diagnosed with Early-Onset Alzheimer’s Disease and Wife
  • Joyce Simons, Individual Diagnosed with Mixed Dementia
  • Mary Beth Riedner, Wife of Individual Diagnosed with Primary Progressive Aphasia

Closing Remarks

Feedback to joan@thealzheimerspouse.com

©Copyright 2009 Joan Gershman 
The Alzheimer Spouse LLC
2009 All Rights Reserved

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  


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